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Dignity in care: choice and control
- Author:
- SOCIAL CARE INSTITUTE FOR EXCELLENCE
- Publisher:
- Social Care Institute for Excellence
- Publication year:
- 2014
- Pagination:
- 13 minutes 30 seconds
- Place of publication:
- London
Everyone has the right to make choices about how they live and how their support is provided. This film shows how people with care and support needs can be supported to have choice and control. Three examples shown are owning a budgerigar; deciding between mince with dumplings or a roast chicken dinner; and going shopping. The young men with learning disabilities who draw up their preferred shopping list travel to town unsupported, buy the food, come back and cook it and then eat it. It's important to take time to understand and know the person, their previous lives and past achievements, and to support people to develop things like ‘life story books'. If you treat people as equals, you can make sure they remain in control of what happens to them. (Edited publisher abstract)
Developing social care: service users' vision for adult support
- Authors:
- SOCIAL CARE INSTITUTE FOR EXCELLENCE, BERESFORD Peter, et al
- Publisher:
- Social Care Institute for Excellence
- Publication year:
- 2005
- Pagination:
- 61p.
- Place of publication:
- London
This report is based on the views of a very diverse range of social care service users – 112 in all – gathered from many different parts of the country. More than a quarter of the participants in this project were black or from minority ethnic communities. The study was almost entirely undertaken by service users and their organisations, drawing on their networks and experience at local and national levels in undertaking user-led research, evaluation and consultation. There was a remarkable degree of consistency and agreement in what different service users and service users from different parts of the country said. The report is organised in three parts: the first sets out how the consultation was undertaken; the second contains the views of service users generally; and the third reports the views of three specific groups of of people with learning difficulties to ensure that their comments have equal visibility.
Working with people with autism: the autistic perspective
- Author:
- SOCIAL CARE INSTITUTE FOR EXCELLENCE
- Publisher:
- Social Care Institute for Excellence
- Publication year:
- 2014
- Pagination:
- 11 minutes 56 seconds
- Place of publication:
- London
- Edition:
- Revised
In this film, we see how Scott, a man with autism and learning disabilities, and Marie, a professor with Asperger’s Syndrome, learn to make sense of society, with the support of colleagues and family members. Scott’s parents speak of the rituals he employs to cope with daily life and the behaviours that are triggered when the world does not make sense to him. Marie talks of the challenges she faces in learning the rules of professional communication and the techniques she uses to interact with others and manage her anxieties. She makes the point, however, that these anxieties come about because society does not yet understand people with autism, and disables them as a result.
Has service user participation made a difference to social care services?
- Authors:
- SOCIAL CARE INSTITUTE FOR EXCELLENCE, CARR Sarah
- Publisher:
- Social Care Institute for Excellence
- Publication year:
- 2004
- Pagination:
- 31p.,bibliog.
- Place of publication:
- London
This paper brings together the key themes and findings from the synthesis of six literature reviews on the impact of user participation on change and improvement in social care services. Reviews on older people, children and young people, people with learning difficulties and disabled people were commissioned by the Social Care Institute for Excellence (SCIE). Reviews on mental health service user participation and on general user/ consumer involvement were commissioned by NHS Service Delivery and Organisation Research and Development Programme. The aim of this work is to give an overview or synthesis of these reviews in order to provide a comprehensive, accessible account of what is currently known about the impact of service user participation on change and improvement in social care services. It will also provide a basis for SCIE Practice guides on service user participation.