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Social isolation continued: Covid-19 shines a light on what self-advocates know too well
- Authors:
- SCHORMANS Ann Fudge, et al
- Journal article citation:
- Qualitative Social Work, 20(1-2), 2021, pp.83-89.
- Publisher:
- Sage
Covid-19 has been an unprecedented time for social work as a profession and even more so for marginalized communities. This paper shares the reflections of three self-advocates (persons labelled/with intellectual disabilities engaged in advocacy and activism), a social worker, and a social work educator and researcher. It is intended as a rallying cry for social work to rethink how we deliver services to ensure that people who have already been made vulnerable through oppressive ableist practices and assumptions are not put at greater disadvantage at times like Covid-19. Hearing directly from self-advocates, we learn of their exclusion from pandemic planning, and of the ways that physical and social distancing protocols have worked to exacerbate the isolation, marginalization and inequities that people labelled/with intellectual disabilities have experienced over the years. We are called upon to more actively focus on advocacy efforts with people labelled/with intellectual disabilities to increase their involvement in planning, as well as access to supports, and to ensure that they do not remain “the left behind of the left behind” . (Edited publisher abstract)
Self-advocacy skills in Asian American parents of children with developmental disabilites: a pilot study
- Authors:
- HUANG Weihe, et al
- Journal article citation:
- Journal of Ethnic and Cultural Diversity in Social Work, 13(1), 2004, pp.1-18.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
The level of self-advocacy skills in Asian American parents of young children with developmental disabilities was assessed. The relationship of self-advocacy skills with social support and with disabilitybased discrimination was investigated. Correlates of self-advocacy skills were explored. Asian American parents of young children with developmental disabilities in this study scored a significantly lower level of assertiveness and other self-advocacy skills than did their non-Asian American counterparts. The level of self-advocacy skills in Asian American parents was found to be positively correlated with the level of social support those parents had received, and negatively correlated with the level of disability-based discrimination against their children with developmental disabilities. Longer length of stay of Asian American parents in the United States was found to be associated with a higher level of self-advocacy skills. The practical implications of the findings of this study are discussed. (Copies of this article are available from: Haworth Document Delivery Centre Haworth Press Inc., 10 Alice Street Binghamton, NY 13904-1580)
"Our homes, not nursing homes" project: lives of people with disabilities in nursing homes
- Authors:
- HAYASHI Reiko, ROUSCULP Tiffany
- Journal article citation:
- Journal of Social Work in Disability and Rehabilitation, 3(2), 2004, pp.57-70.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
The voices of non-elderly adults with disabilities who currently-or used to-reside in nursing homes are rarely heard. A grassroots disability advocacy organization conducts participatory action research in the form of a writing workshop in collaboration with a local community-college. Participants with disabilities describe their lives and their experiences in nursing homes with the help of volunteer scribes. The information provided in their accounts will help strengthen community-organizing efforts of the disability advocacy organization. And participants have been empowered by the realization that their life stories are helping others to leave nursing homes and join community settings. (Copies of this article are available from: Haworth Document Delivery Centre, Haworth Press Inc., 10 Alice Street, Binghamton, NY 13904-1580).
Social work practice and intellectual disability
- Authors:
- BIGBY Christine, FRAWLEY Patsie
- Publisher:
- Palgrave Macmillan
- Publication year:
- 2010
- Pagination:
- 238p., bibliog.
- Place of publication:
- Basingstoke
Provides an understanding of the knowledge, values and skills required for effective practice in the field of learning disability and the opportunity for multidisciplinary collaboration for social change. The book focuses on adults with learning disabilities and their families. Topics include: the changing definitions of learning disability; theory and practice of working with adults with learning disabilities and their families; assessment, planning, monitoring and review; social inclusion and participation. Includes numerous case studies and discussion points.
Leadership and change in human services: selected readings
- Author:
- WOLFENSBERGER Wolf
- Publisher:
- Routledge
- Publication year:
- 2003
- Pagination:
- 272p.,bibliog.
- Place of publication:
- London
Wolf Wolfensberger is a significant figure in the world of human services, especially in the field of learning disability. His work on normalization and citizen advocacy in the late 1960s and early 1970s has been acknowledged by supporters and critics alike to have been fundamental to developments in a number of countries, most notably the USA. Canada, Australasia and the UK. The term citizen advocacy was coined in the 1970's by Wolfensberger, who believed that people in institutional care needed independent representation by people in their communities if they were ever going to experience normal living. His further work in developing the theory of social role valorization, the successor to normalisation, and as a commentator on broader trends in society and their effects on vulnerable people and services for them have ensured his place as a major voice for values and the human worth of all people.
Positive approaches to promoting advocacy: a workbook to support the advocacy optional units of the Certificates in Working with People who have Learning Disabilities
- Author:
- BROOKE John
- Publisher:
- British Institute of Learning Disabilities
- Publication year:
- 2002
- Pagination:
- 62p.,bibliog
- Place of publication:
- Kidderminster
This workbook uses case studies, activities, and clear information based on current best practice to cover the underlying principles of different forms of advocacy. Topics examined include: the advocacy relationship; how to put advocacy into action; ways to overcome barriers to advocacy; advocacy in the workplace; and evaluation of advocacy. The guide is intended for staff who are working through the optional units of the LDAF certificates at levels 2 and 3 and who wish to develop the understanding and skills required to support service users in self-advocacy, and to promote citizen, peer and short term advocacy. The workbook covers all the learning outcomes for the LDAF level 2 unit 015 Understand Advocacy and the level 3 unit 111 Promote Advocacy.