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An exploration of the self-advocacy support role through collaborative research: ‘there should never be a them and us’
- Author:
- CHAPMAN Rohhss
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 27(1), 2013, pp.44-53.
- Publisher:
- Wiley
This paper reports on the findings of a qualitative team research project, exploring the role of support workers in UK self-advocacy organizations. A secondary aim of the paper was to add to understanding around inclusive research methodology, reporting on some of the experiences of collaboration. The research was undertaken by the author working with the Carlisle People First Research Team (CPFRT). The study developed an inclusive team approach working alongside researchers labelled with learning difficulties. Emphasis was placed on making all aspects of the research cycle accessible to the team. A variety of qualitative methods were used. Findings from emergent themes are discussed under three areas: (i) governance, leadership and policy; (ii) process and methods within groups, and; (iii) use of models and theories. The result found that despite supporters’ allegiances to disability equality and their emphasis on reflexivity, many crucial aspects of organizational practice and support remained hidden. However, an emerging shared narrative about the potential of people first implied the possibility of increased collaboration. This was evidenced in some of the groups. (Edited publisher abstract)
A collaborative group method of inclusive research
- Authors:
- BIGBY Christine, FRAWLEY Patsie, RAMCHARAN Paul
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 27(1), 2013, pp.54-56.
- Publisher:
- Wiley
This study proposes one method of inclusive research with people with learning disabilities, the ‘collaborative group' approach. It examines the processes used to conduct a study involving academics and self-advocates, presenting findings derived from an inductive analysis of field note data, interview and meeting transcripts. Five components are identified: shared and distinct purposes of participants equally valued, shared involvement and distinct contributions equally valued, flexible, adapted research methods, working as a group with trusting relationships and dispersed power, and scaffolding for inclusion. This collaborative group method potentially results in better research than either academics or self-advocates could achieve alone and has multiple knowledge outcomes with differing accessibility and complexity. (Edited publisher abstract)
Having friends – they help you when you are stuck from Money, Friends and Making Ends Meet research group
- Authors:
- TILLY Liz, et al
- Journal article citation:
- British Journal of Learning Disabilities, 40(2), June 2012, pp.128-133.
- Publisher:
- Wiley
This article explores the experiences and friendships of a small group of people with a learning disability who live without support in one of the most deprived areas in the UK. The findings are from an inclusive research project, that was named Money, Friends and Making Ends Meet and the participants who researched their own lives become known as the Money, Friends and Making Ends Meet research group. The research took place from July 2010 to June 2011 and examined the issues that affected the groups’ day-to-day living. Themes that emerged included: day-to-day coping; being poor; friends and social networks; losing our children; and personal stories. The group all experienced poverty, had limited social networks, many of whom are other people with a learning disability but did value the support they had from friends and family and local organisations.