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Learning disability partnership boards: making participation real?
- Author:
- NICOLL Tricia
- Journal article citation:
- Journal of Integrated Care, 12(6), December 2004, pp.36-42.
- Publisher:
- Emerald
Considers the role and function of learning disability partnership boards, focusing on how they have developed their skills in working in partnership with people with learning disabilities (self-advocates) and using examples from self-advocates themselves.
Progress on participation?: self-advocate involvement in learning disability partnership boards
- Authors:
- FYSON Rachel, McBRIDE Gordon, MYERS Brian
- Journal article citation:
- Tizard Learning Disability Review, 9(3), July 2004, pp.27-36.
- Publisher:
- Emerald
Aimed to gather information about the objective and subjective experiences of self-advocates attending learning disability partnership boards, in order to promote effective practices. Findings show that although people with learning disabilities were present at meetings a variety of barriers limited their ability to participate actively. Problems included lack of financial and practical help as well as the limited availability of accessible information. There were, however, examples of good practice, and many self-advocates were pleased at how local authorities were beginning to implement effective partnership working practices. Ways of supporting self-advocates and others with learning disabilities to fulfil a truly representative, rather than merely symbolic, function at meetings are discussed.
One for all - all for one! An account of the joint fight for human rights by Flemish Musketters and their Tinker Ladies
- Authors:
- GOETS Griet, et al
- Journal article citation:
- British Journal of Learning Disabilities, 32(2), June 2004, pp.54-64.
- Publisher:
- Wiley
The Musketeer book One for All – All for One! A joint fight for human rights written by Onze Nieuwe Toekomst is a disclosure of oral accounts of people with the label of learning difficulties. The Musketeer book is an articulation of their individual and collective politics of resistance. With this collection of stories activists and their allies hope to bring tangible shifts in beliefs and attitudes in disabling society. In this article, the Head Musketeer Danny and his right-hand Musketeer Ludo reflect upon their relational perspective on the process of (self-) empowerment with their Tinker Ladies. Our experience unfolds like walking a high wire. Our Flemish perspective reveals a profound awareness of power dynamics in an intensely felt cooperative research process.
Street law
- Authors:
- SPEAKUP SELF ADVOCACY, BUBBLE MEDIA, (Producers)
- Publisher:
- Speakup Self Advocacy
- Publication year:
- 2004
- Pagination:
- DVD
- Place of publication:
- Rotherham
This DVD is for disabled people and people with learning disabilities. Some people think the law is just about being arrested. There are lots of things to do to be safe when out and about. Being safe is also about responsibility. There are lots of things to do to be safe. But what if someone doesn't respect and value rights. How can the law help? The law is all about rights and responsibility.
Lighting beacons throughout the land: a description of the VIA advocacy project and reflections on developments in self advocacy
- Author:
- DAWSON Peter
- Publisher:
- Values into Action
- Publication year:
- 2004
- Pagination:
- 44p.
- Place of publication:
- London
For 3 years Values into Action (VIA) managed the Valuing People funding for self advocacy groups. This report describes how the grants were given out, where the money went and how it was used. It also describes the development work carried out by the Project team, and reflects on the tensions and potential for the future of self advocacy.
Changing selves: a grounded theory account of belonging to a self-advocacy group for people with intellectual disabilities
- Authors:
- BART Suzie, HARDY Gilian, BUCHAN Linda
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 17(1), June 2004, pp.91-100.
- Publisher:
- Wiley
The aim was to explore the experience of belonging to a self-advocacy group for people with intellectual disabilities, and how membership of such a group impacts on individual members. Eight people with intellectual disabilities, who belonged to a self-advocacy group for at least 6 months, were interviewed about their experiences of membership. A grounded theory approach was used to generate and analyse the interview data. A model of the impact of belonging to a self-advocacy group for people with intellectual disabilities on individual members' self-concept is developed. The model proposes that participants' self-concept changes as a result of group membership and that this process of change involves six key categories: joining the group; learning about and doing self-advocacy; becoming aware of group aims and identity; experiencing a positive social environment; identifying positive change in self-concept and seeing the future of self and group as interlinked. Membership of a self-advocacy group for people with intellectual disabilities changes the self-concept of participants. The processes surrounding these changes have important implications for self-advocacy groups both, in recruitment and in supporting group members.
Building bridges? The role of research support in self-advocacy
- Authors:
- CHAPMAN Rohhss, McNULTY Niall
- Journal article citation:
- British Journal of Learning Disabilities, 32(2), June 2004, pp.77-85.
- Publisher:
- Wiley
The Carlisle Research Group 'Co-op' is a group which aim to carry out 'person-led' research in a way that changes ideas and makes life better for people with learning disabilities. Six of the eight members in the group are labelled as having a learning difficulty, the two other people act in a role of involved support. In this article the members of the group with a support role explain what they do, highlight the changes occurring within the group, and to open up a debate as to the research support role in the self-advocacy movement. The article also includes a case study on the process of writing an article for a journal article.
Self-advocacy skills in Asian American parents of children with developmental disabilites: a pilot study
- Authors:
- HUANG Weihe, et al
- Journal article citation:
- Journal of Ethnic and Cultural Diversity in Social Work, 13(1), 2004, pp.1-18.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
The level of self-advocacy skills in Asian American parents of young children with developmental disabilities was assessed. The relationship of self-advocacy skills with social support and with disabilitybased discrimination was investigated. Correlates of self-advocacy skills were explored. Asian American parents of young children with developmental disabilities in this study scored a significantly lower level of assertiveness and other self-advocacy skills than did their non-Asian American counterparts. The level of self-advocacy skills in Asian American parents was found to be positively correlated with the level of social support those parents had received, and negatively correlated with the level of disability-based discrimination against their children with developmental disabilities. Longer length of stay of Asian American parents in the United States was found to be associated with a higher level of self-advocacy skills. The practical implications of the findings of this study are discussed. (Copies of this article are available from: Haworth Document Delivery Centre Haworth Press Inc., 10 Alice Street Binghamton, NY 13904-1580)
"Our homes, not nursing homes" project: lives of people with disabilities in nursing homes
- Authors:
- HAYASHI Reiko, ROUSCULP Tiffany
- Journal article citation:
- Journal of Social Work in Disability and Rehabilitation, 3(2), 2004, pp.57-70.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
The voices of non-elderly adults with disabilities who currently-or used to-reside in nursing homes are rarely heard. A grassroots disability advocacy organization conducts participatory action research in the form of a writing workshop in collaboration with a local community-college. Participants with disabilities describe their lives and their experiences in nursing homes with the help of volunteer scribes. The information provided in their accounts will help strengthen community-organizing efforts of the disability advocacy organization. And participants have been empowered by the realization that their life stories are helping others to leave nursing homes and join community settings. (Copies of this article are available from: Haworth Document Delivery Centre, Haworth Press Inc., 10 Alice Street, Binghamton, NY 13904-1580).
The Learning Disability Strategy: the user group report
- Author:
- GREAT BRITAIN. Department of Health
- Publisher:
- Great Britain. Department of Health
- Publication year:
- 2004
- Pagination:
- 24p.
- Place of publication:
- London
'Valuing People’ places considerable emphasis on the importance of developing services in the light of person-centred planning and on modernising day centres. In brief, this means that the wishes and aspirations of individuals should be taken as the starting point and that holistic, individualised services should be created around them rather than their fitting into pre-determined services.