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Exploring the ethical underpinnings of self-advocacy support for intellectually disabled adults
- Authors:
- CHAPMAN Rohhss, TILLY Liz
- Journal article citation:
- Ethics and Social Welfare, 7(3), 2013, pp.257-271.
- Publisher:
- Taylor and Francis
- Place of publication:
- Abingdon
Self-advocacy organisations support people in a wide range of political activities, alongside providing key social networks. The emergence of formalised self-advocacy for intellectually disabled people marked an important cultural shift. These groups soon became associated with the pursuit of social change and the attainment of rights. The role of the self-advocacy support worker, working together with self-advocates, has been pivotal. However, studies have shown there has been concern over the relationship between self-advocates and those who advise or support them. Both parties are aware of the potential tensions of supporters teaching people skills to take control, to manage their workers, whilst, perhaps inadvertently, assuming a powerful position in the relationship. This interesting paradox hints at ethical complexities inherent in the role. A key challenge facing these support workers is how they can support their employers to run successful organisations, without ‘taking over’. Using material from both Chapman and Tilley's research of self-advocacy organisations in the UK, this article problematises some key ethical issues within the role. (Edited publisher abstract)
Having friends – they help you when you are stuck from Money, Friends and Making Ends Meet research group
- Authors:
- TILLY Liz, et al
- Journal article citation:
- British Journal of Learning Disabilities, 40(2), June 2012, pp.128-133.
- Publisher:
- Wiley
This article explores the experiences and friendships of a small group of people with a learning disability who live without support in one of the most deprived areas in the UK. The findings are from an inclusive research project, that was named Money, Friends and Making Ends Meet and the participants who researched their own lives become known as the Money, Friends and Making Ends Meet research group. The research took place from July 2010 to June 2011 and examined the issues that affected the groups’ day-to-day living. Themes that emerged included: day-to-day coping; being poor; friends and social networks; losing our children; and personal stories. The group all experienced poverty, had limited social networks, many of whom are other people with a learning disability but did value the support they had from friends and family and local organisations.