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Why are conferences "Sometimes about us, without us"?
- Authors:
- FRAWLEY Patsie, BIGBY Christine, FORSYTH Heather
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 31(4), December 2006, pp.249-251.
- Publisher:
- Taylor and Francis
In this article the authors identify a number of issues, and make suggestions, of how to make conferences about people with learning disabilities to be more accessible to people with learning disabilities. The article is based on their involvement with the Australasian Society for the Study of Intellectual Disability (ASSID) National Conferences.
Reflections on doing inclusive research in the “Making Life Good in the Community” study
- Authors:
- BIGBY Christine, FRAWLEY Patsie
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 35(2), June 2010, pp.53-61.
- Publisher:
- Taylor and Francis
The involvement of people with intellectual disability in research is framed as inclusive, denoting their active participation in its processes. However, questions are raised about ownership and control, genuineness of involvement, and the need for honest accounts to develop practice. This study used action research to reflect on and progressively refine the support provided by a research mentor to a co-researcher with intellectual disability employed on a large multimethod study. The co-researcher with intellectual disability was employed to be involved in the investigation of ‘homeliness’ in the ‘Making Life Good in the Community’ study. This paper describes the process of supporting the co-researcher rather than the findings of the research. The paper concludes that accepting the co-researcher's strengths and designing support on the job rather than teaching them to ‘pass’ before venturing out in the field are important in ceding control. Support required for a co-researcher is more than practical and involves developing a relationship that can actively challenge views and foster reflection. Ownership of questions and disseminating of outcomes are hampered by contextual factors such as tender processes, short-term positions, and a failure to acknowledge the support required to present findings.
A collaborative group method of inclusive research
- Authors:
- BIGBY Christine, FRAWLEY Patsie, RAMCHARAN Paul
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 27(1), 2013, pp.54-56.
- Publisher:
- Wiley
This study proposes one method of inclusive research with people with learning disabilities, the ‘collaborative group' approach. It examines the processes used to conduct a study involving academics and self-advocates, presenting findings derived from an inductive analysis of field note data, interview and meeting transcripts. Five components are identified: shared and distinct purposes of participants equally valued, shared involvement and distinct contributions equally valued, flexible, adapted research methods, working as a group with trusting relationships and dispersed power, and scaffolding for inclusion. This collaborative group method potentially results in better research than either academics or self-advocates could achieve alone and has multiple knowledge outcomes with differing accessibility and complexity. (Edited publisher abstract)
Social work practice and intellectual disability
- Authors:
- BIGBY Christine, FRAWLEY Patsie
- Publisher:
- Palgrave Macmillan
- Publication year:
- 2010
- Pagination:
- 238p., bibliog.
- Place of publication:
- Basingstoke
Provides an understanding of the knowledge, values and skills required for effective practice in the field of learning disability and the opportunity for multidisciplinary collaboration for social change. The book focuses on adults with learning disabilities and their families. Topics include: the changing definitions of learning disability; theory and practice of working with adults with learning disabilities and their families; assessment, planning, monitoring and review; social inclusion and participation. Includes numerous case studies and discussion points.