Search results for ‘Subject term:"learning disabilities"’ Sort:
Results 1 - 10 of 22
Advocacy strategy: Mencap's three year plan for supporting people with a learning disability to speak up for themselves
- Author:
- MENCAP
- Publisher:
- Mencap
- Publication year:
- 2004
- Pagination:
- 28p.
- Place of publication:
- London
Mencap's advocacy strategy outlines its three-year plan for supporting people with a learning disability to speak up for themselves. As advocacy becomes an increasingly important part of Mencap’s work, the strategy details the legal and policy context in which advocacy is provided. It also identifies the advocacy work being done in Mencap and the opportunities to develop and improve work. Within the strategy, the organisation recognises that there is a need for a range of different types of advocacy to meet different needs and that different types of advocacy will suit different people at different times in their lives.
Planning for the future with adults with a learning disability living with older carers
- Authors:
- GORFIN Laura, McGLAUGHLIN Alex
- Journal article citation:
- Housing Care and Support, 7(3), September 2004, pp.20-24.
- Publisher:
- Emerald
Planning for the future for adults with a learning disability who live with older carers is an important aspect of the white paper Valuing People. Most research about future planning has tended to focus on the perspective of the family carer rather than the service user. This paper considers the findings of a project which directly sought the views of adults with a learning disability, including their experiences of living with their older carers and planning for future housing and support. Demonstrates that adults with a learning disability are very aware of the likelihood of an end to family care and have preferences about their future housing and support. However, planning for the future can be difficult because of the mutually supportive relationships that often exist in these families.
Learning disability in Wales: a technical document produced by a panel considering people centred issues
- Author:
- CROWSON David (chair)
- Publisher:
- Great Britain. Welsh Office. NHS Directorate. Welsh Health Planning Forum
- Publication year:
- 1992
- Pagination:
- 43p.
- Place of publication:
- Cardiff
Individual programme planning: where is the 'individual'?
- Author:
- CARNABY Steven
- Journal article citation:
- Tizard Learning Disability Review, 4(3), July 1999, pp.4-9.
- Publisher:
- Emerald
Individual programme planning, or person-centred planning, is widely recognised as a tool for assisting learning disability services to structure and co-ordinate the support offered to the service. This article reviews the research evidence, to assess the extent to which planning processes are considered person-centred, and how services ensure that users have a major say in planning and determining the help they receive. A case study describes the role of working groups and the importance of communication in determining specific person-centred planning processes.
Planning for individuals putting the person at the centre
- Author:
- MAUGHAN Joan
- Journal article citation:
- Soundtrack, 14, November 1998, pp.6-7.
- Publisher:
- National Development Team
The author, assistant director of the National Development Team, Manchester who leads the Family Matters Programme, explains how person-centred planning can help avoid costly mistakes.
Domains of planning for future long‐term care of adults with intellectual and developmental disabilities: parent and sibling perspectives
- Authors:
- LINDAHL Jane, et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 32(5), 2019, pp.1103-1115.
- Publisher:
- Wiley
Background: Research shows that adults with intellectual and developmental disabilities (IDD) increasingly outlive caregivers, who often struggle to plan for the future and have little support and knowledge surrounding long‐term care planning. Methods: The study team conducted interviews with parents and siblings of adults with IDD and performed qualitative coding using a modified grounded theory to explore domains of future planning and identify barriers and facilitators. Results: Themes from the interviews revealed seven major domains of future planning that should be considered by caregivers of adults with IDD. These domains are housing, legal planning, identification of primary caregiver(s), financial planning, day‐to‐day care, medical management and transportation. Approaches to planning within each domain varied greatly. Conclusions: The study team identified the domain of “identification of primary caregiver(s)” as potentially the most important step for caregivers when planning for the future, but also observed that the domains identified are significantly interrelated and should be considered together. (Edited publisher abstract)
Transitions in the lives of older adults with intellectual disabilities: “having a sense of dignity and independence”
- Author:
- STRNADOVA Iva
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 16(1), 2019, pp.58-66.
- Publisher:
- Wiley
Older people with intellectual disabilities (ID) experience numerous transitions in their lives, which include transitions between jobs, places of residence, relationship transitions, and transitions to retirement. Ensuring quality planning for the future is important so that older people with ID can live good lives. Thus, the aim of this study was to explore planning for the future and transitions experienced by older people with ID. The author conducted semi‐structured in‐depth interviews with 17 people with ID aged 40 years and more. The interviews were analyzed using inductive content analysis. The three main themes were types of transitions, planning for future, and barriers to planning for future. The implications for research and practice are discussed, with a focus on enhancing independence and choice‐making. (Edited publisher abstract)
Constructing adulthood in discussions about the futures of young people with moderate-profound intellectual disabilities
- Authors:
- MURPHY Elizabeth, CLEGG Jennifer, ALMACK Kathryn
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 24(1), January 2011, pp.61-73.
- Publisher:
- Wiley
This paper investigated how those planning the futures for young people with intellectual disabilities create definitions of adulthood and interpret those in relation to young people’s perceived capacity to plan their own futures. Participants included 28 young people who transitioned from children’s to adult services. Data is composed of interviews with the young people, their carers and transition staff. Findings revealed two distinct views. One considered young people as adults entitled to self-determination, invoking policy injunctions to do so. The other qualified the young people’s adult status and claims to self-determination, emphasising the reality of intellectual disability. The authors concluded that that transition to adult services for those with intellectual disabilities highlights difficulties regarding the relationship between vulnerable young people, families, professionals and society. Reducing these to right and wrong creates an unhelpful context for good decision making. A more constructive approach would include all stakeholders concerning the correct decision.
Older carers of adults with a learning disability confront the future: issues and preferences in planning
- Authors:
- BOWEY Laura, McGLAUGHLIN Alex
- Journal article citation:
- British Journal of Social Work, 37(1), January 2007, pp.39-54.
- Publisher:
- Oxford University Press
The Valuing People White Paper (Department of Health, 2001) requires services to secure a plan for all service-users with learning disabilities living with older carers and promises them and their families more choice and control over how and where they live. This paper examines the views of the older carers (aged over seventy) of sixty-two adults with a learning disability about planning for the future. Fifty-six took part in interviews in their own homes and six completed a questionnaire. All carers were white and recruited from one local authority in response to the requirements of the White Paper. Findings indicate that a significant proportion is either not ready or is unwilling to make future plans. Barriers to planning include a perceived lack of need due to the existence of two carers, a lack of awareness of timescales involved in securing housing, difficulties in letting go, a lack of confidence in available housing options, and the existence of mutually supportive relationships. The findings show a need for a proactive approach to information and support provision to enable these families to work through a process of making plans for the future. This is essential to prevent the need for emergency placements in response to crisis and in turn to ensure that adults with learning disabilities have genuine choice and involvement in how and where they live.
Learning difficulties
- Author:
- WARD Linda
- Journal article citation:
- Research Matters, October 2001, pp.26-28.
- Publisher:
- Community Care
Looks at some of the research to come out of the Growing Older with Learning Disabilities (GOLD) Programme at the Foundation for People with Learning Disabilities. The article focuses on projects in housing, residential services for older people and involving people with learning disabilities in planning their futures.