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Hydra revisited: substituting formal for self- and informal in-home care among older adults with disabilities
- Author:
- PENNING Margaret J.
- Journal article citation:
- Gerontologist, 42(1), February 2002, pp.4-16.
- Publisher:
- Oxford University Press
In response to concerns among policy makers and others that increases in the availability of publicly funded formal services will lead to reductions in self- and informal care, this study examines the relationship between the extent of formal in-home care received and levels of self- and informal care. Two-stage least squares regression analyses were conducted, using data drawn from interviews conducted with a sample of 661 older users and nonusers of publicly subsidized home care services. No evidence was found to indicate that more extensive use of formal services is associated with less extensive self- or informal care. This is true among those receiving publicly subsidized services as well as those required to pay part or all of the cost of the in-home services they receive. The findings provide little support for the substitution hypothesis that an increase in the use of formal in-home services will tend to erode levels of informal or self-care.
Adult family placement schemes for older carers: perceptions of users, family carers, placement providers and social workers
- Authors:
- McCONKEY Roy, et al
- Publisher:
- Foundation for People with Learning Disabilities
- Publication year:
- 2002
- Pagination:
- 55p., bibliog.
- Place of publication:
- London
This report culminates from research undertaken into the feasibility of adult placement schemes in meeting the needs of older carers and their relatives with learning disabilities in Northern Ireland. This research was funded in part by a grant from the Foundation for People with Learning Disabilities, as part of the GOLD (Growing Older with Learning Disabilities) Programme.
Death does not become us: the absence of death and dying in intellectual disability research
- Author:
- TODD Stuart
- Journal article citation:
- Journal of Gerontological Social Work, 38(1/2), 2002, pp.225-239.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
The social issues of death, dying and bereavement represent important but neglected research areas, and such issues need attention both for practical reform and for deciphering what living with intellectual disability entails. The difficulties which life poses for people with intellectual disabilities may well persist in the times before and after death. As research issues they offer not only potential practical significance, but also a means of determining the social status and value of people with intellectual disabilities. This paper reviews the issues of death and dying from the viewpoint of sociological research and seeks to identify the ways death and dying have been treated within the research literature on living with intellectual disability. It is suggested that these issues have been discounted with some important consequences for the way intellectualdisability is perceived.
Later life planning training programme: a pre-test assessment in Israel
- Author:
- LIFSHITZ Hefziba
- Journal article citation:
- Journal of Gerontological Social Work, 37(3/4), 2002, pp.87-103.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
Data are provided on the outcome of an assessment on a knowledge of aging andfutures planning tool administered to 38 adults, age 40 and older, with an intellectual disability living in community residences in Israel. The subjects participated in the Later Life Planning Training Programme (LLPTP) which is designed to teach people with intellectual disability about later life planning issues, and increase their participation in choice making. Comparisons were made between two samples, one Israeli and one American. Differences were found on three areas of the LLPTP: Choice-making, Life Satisfaction, and Social Support.
Research into practice
- Author:
- FOSKETT Andy
- Journal article citation:
- Community Care, 1.8.02, 2002, p.49.
- Publisher:
- Reed Business Information
Looks at research into the implementation of 'No Secrets', the government guidance on the protection of vulnerable adults.
Misplaced and forgotten: people with learning disabilities in residential homes for older people
- Author:
- THOMPSON David
- Journal article citation:
- Housing Care and Support, 5(1), February 2002, pp.19-22.
- Publisher:
- Emerald
A significant number of people with learning disabilities live in nursing and residential homes for older people. Based on research undertaken by the Foundation for People with Learning Disabilities, this article describes why they entered these services and their lives once there. It raises serious concerns about their quality of life and challenges learning disability services to meet better the needs of people with learning disabilities as they age.
Today and tomorrow: the report of the Growing Older with Learning Disabilities programme
- Author:
- THE FOUNDATION FOR PEOPLE WITH LEARNING DISABILITIES
- Publisher:
- Mental Health Foundation
- Publication year:
- 2002
- Pagination:
- 131p.
- Place of publication:
- London
Reports the findings and lessons from the Growing Older with Learning Disabilities (GOLD) programme. This UK-wide initiative aims to increase understanding of the concerns of older people with learning disabilities and older family carers and how services can help them realise their aspirations. Reporting the results of externally funded and in-house projects, spanning service development and research, the book focuses on inclusion, health, older family carers, where people are living, dementia and Down’s syndrome and terminal illness. The report includes a charter of rights for older people with learning disabilities and for older family carers. It also underlines the need for service providers to think today about how they will meet people’s age-related changing needs and support them, as they grow older, using person-centred planning.The report concludes with a series of recommendations for policy makers and planners, commissioners and providers.
Let's make it happen: the national service framework for older people; a briefing and local action plan for staff, volunteers and supporters of the Alzheimer's Society
- Author:
- ALZHEIMER'S SOCIETY
- Publisher:
- Alzheimer's Society
- Publication year:
- 2002
- Pagination:
- 40p.
- Place of publication:
- London
The National Service Framework for Older People (NSF), outlines the government’s ten year strategy to provide comprehensive, integrated and high quality health and social care services for older people in England. It also includes the needs of younger people with dementia. Its success depends on how well it is implemented across the country. This document has been written to help branches of the Alzheimer’s Society to get involved in implementing the NSF in their area.
Life members: women with intellectual disabilities and aging
- Author:
- WALSH Patricia Noonan
- Journal article citation:
- Journal of Gerontological Social Work, 38(1/2), 2002, pp.121-135.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
Reviews some of the dilemmas faced by women with intellectual disabilities as they age and are trying to stake out a place in their communities. The article draws on recent testimony of older women themselves, their carers and advocates about optimal paths to healthy ageing. The author suggests that more flexible, individualized forms of support are likely to enhance the quality of longer lives and that supports for women with intellectual disabilities can be appraised in terms of efficacy in strengthening women's membership of their respective communities as they age. The author speaks to the implications for best practice on the part of professionals and othercarers who work with and support women as they age and proffers suggested research strategies for future women's studies.
Well, we’ve all got to get old haven’t we?:reflections of older people with intellectual disabilities
- Author:
- THOMPSON David
- Journal article citation:
- Journal of Gerontological Social Work, 37(3/4), 2002, pp.7-23.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
The findings of a qualitative study of the perceptions and experiences of a select group of aging older people with intellectual disabilities are reported. The study data were drawn from the collective responses of 242 questionnaires completed by a group of older people with intellectual disabilities (ID) and their carers in the United Kingdom. The study was designed to provide qualitative insight into the lives of a select group of older adults from the vantage point of their perceptions and memories. Results suggest that the physical changes associated with aging do not appear to be a major concern for older people with ID. What is more of concern are other changes, only some of which are related to aging (such as, changes in the services and family circumstances).