Search results for ‘Subject term:"learning disabilities"’ Sort:
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Ageing and elderly people with mental handicap: a bibliography
- Authors:
- MOSS S., HOGG J
- Publisher:
- University of Manchester, Hester Adrian Research Centre
- Publication year:
- 1986
- Pagination:
- 50p.
- Place of publication:
- Manchester
The importance of hearing: a review of the literature on hearing loss for older people with learning disabilities
- Authors:
- BENT Sarah, McSHEA Lynzee, BRENNAN Siobhan
- Journal article citation:
- British Journal of Learning Disabilities, 43(4), 2015, pp.277-284.
- Publisher:
- Wiley
Background: Hearing loss has a significant impact on living well and on communication in all adults, with the numbers affected increasing with age, and adults with learning disabilities being at particular risk. Methods: A review of the literature on hearing loss in older adults with learning disabilities was completed. Results: A significant increase in hearing loss with increasing age in this group was demonstrated, at a greater level than in the general population. Prevalence rates have been the main focus of research, with few considerations of access to hearing assessment or benefits of rehabilitation such as hearing aids, or the effect that age has on living with hearing loss. Conclusions: With advances in audiology services and increased life expectancy of those with learning disabilities, further research would be valuable. In addition, all health and social care services should consider actively promoting hearing assessment and rehabilitation. Individuals, carers and families should also take action, not only when concerns around memory arise, but proactively for all. (Publisher abstract)
Ageing carers and intellectual disability: a scoping review
- Authors:
- MAHON Aoife, et al
- Journal article citation:
- Quality in Ageing and Older Adults, 20(4), 2019, pp.162-178.
- Publisher:
- Emerald
Purpose: Individuals with intellectual disability(ies) are living longer contributing to an overall increase in the average age of caregivers. The purpose of this paper is to review the literature on the physical, social and psychological needs of ageing carers of individuals with intellectual disability(ies) in the UK. Design/methodology/approach: A scoping review framework was used to identify literature from eleven databases, the grey literature and the references lists of relevant studies. Only primary research studies that discussed the needs of non-professional carers, aged 65+ years old, of individuals with intellectual disability(ies) in the UK were included. No date restrictions were applied. Thematic analysis was used to narratively synthesise findings. Findings: Six studies were included. Five key themes were identified: Living with fear, lack of information, rebuilding trust, proactive professional involvement and being ignored. Housing and support information is not communicated well to carers. Professionals require more training on carer needs and trust must be rebuilt between carers and professionals. Proactive approaches would help identify carer needs, reduce marginalisation, help carers feel heard and reduce the risk of care crisis. Greater recognition of mutual caring relationships is needed. Originality/value: This review highlighted the needs of older caregivers for individuals with intellectual disability(ies) as well as the need for more high-quality research in this field. The information presented in this review may be considered by primary care providers and funding bodies when planning future support for this growing population of carers. (Edited publisher abstract)
People with learning disabilities and ‘active ageing’
- Authors:
- FOSTER Liam, BOXALL Kathy
- Journal article citation:
- British Journal of Learning Disabilities, 43(4), 2015, pp.270-276.
- Publisher:
- Wiley
People with and without learning disabilities are living longer. Demographic ageing creates challenges and the leading policy response to these challenges is ‘active ageing’. ‘Active’ does not just refer to the ability to be physically and economically active, but also includes ongoing social and civic engagement in the communities of which older people are a part. Active ageing should apply to all citizens, including the experiences of older people with learning disabilities. This literature based paper explores the focus of active ageing discussions in relation to the general population drawing comparisons with the experiences of older people with learning disabilities. It points out that older people with learning disabilities and their experiences are largely missing from broader policy discussions of active ageing. The paper concludes by arguing for inclusive research in active ageing which takes account of the concerns and interests of older people with learning disabilities. (Edited publisher abstract)
Ageing and people with learning disabilities: in search of evidence
- Author:
- WALKER Carol
- Journal article citation:
- British Journal of Learning Disabilities, 43(4), 2015, pp.246-253.
- Publisher:
- Wiley
Background: Growing numbers of people with learning disabilities are now living into older age. This study aims to examine the state of knowledge about their lives and the challenges that ageing has for both family carers and policymakers and practitioners. Materials and Methods: The article synthesises existing research in the fields of learning disability, ageing and family and social care with a view to learning lessons from these separate fields, identifying possibilities for collaboration and identifying gaps in knowledge. Results: The article concludes that existing research in the fields of ageing and family and social care can add significantly to an understanding of the impact of ageing on people with learning disabilities and their carers but, to date, there has been little collaboration or sharing of knowledge between the three areas. Conclusion: The article concludes that further research is required to fully understand the impact of ageing on the quality of life of people with learning disabilities and their family carers and to inform the design and delivery of services. A useful and productive way forward would be learn from and to work with researchers in cogniscent fields, notably, but not only, in the fields of social gerontology and family and social care. (Publisher abstract)
"Advocacy is for the people": research into the impact of independent advocacy on the lives of older people
- Author:
- BOCIOAGA Andreea
- Publisher:
- Scottish Independent Advocacy Alliance
- Publication year:
- 2014
- Pagination:
- ii, 35
- Place of publication:
- Edinburgh
This report aims to investigate the impact of independent advocacy on the lives of older advocacy partners. The study is based on qualitative data and it explores people’s perspectives of advocacy. 13 interviews were conducted at 7 different advocacy organisations across Scotland. The findings, which draw on interviews with the advocacy partners and previous literature, suggest that: advocacy can help older people maintain their independence – the support participants had accessed helped them to regain control over their own lives and situations, either by finding new accommodation, making complaints or dealing with the services around them; advocacy can help older people access relevant information and address any power imbalance - participants credited advocacy with helping them access the information they needed in order to make informed choices, challenge the status quo and achieve their goals; advocacy helps safeguard the rights of older people; for those older people suffering from a (perceived or actual) physical or cognitive impairment advocacy can offer vital support when dealing with official matters - some of the participants reported on how their advocate helped them make sense of official documents and ensured that their views were heard when raising an issue with statutory or non-statutory agencies or when making a complaint; advocacy makes the advocacy partners feel valued and listened to, improved their confidence and contributed to reduced stress when dealing with difficult issues. (Edited publisher abstract)
Future need of ageing people with an intellectual disability in the Republic of Ireland: lessons learned from the literature
- Authors:
- DOODY Catriona M., MARKEY Kathleen, DOODY Owen
- Journal article citation:
- British Journal of Learning Disabilities, 41(1), 2013, pp.13-21.
- Publisher:
- Wiley
This article synthesises current literature regarding ageing and service provision for people with an intellectual disability. It presents the context of intellectual disability in Ireland and ageing for people with intellectual disability in relation to increased longevity and service provision. Searches were conducted through electronic databases (EBSCO and CINAHL) retrieving literature published between 1980 and 2010. Computerised searches using the terms, ‘old age, aged, ageing, ageing, mortality, morbidity’, were used in conjunction with the terms ‘intellectual disability, mental handicap and mental retardation’. The review found that Ireland has and is seeing a dramatic change in the age profile of clients and the support services they require. While Ireland had specifically trained nurses in intellectual disability, they predominately work in residential settings. This can be seen as been at odds with the philosophy of supporting people with intellectual disability live at home with their family and the primary care system. As the ageing population is rising, intellectual disability services need to proactively develop and respond to this changing age profile by reviewing and adjusting the way in which they deliver services, not only in terms of how services develop and respond to a changing age profile but also in terms of collaborative working across all health services. (Edited publisher abstract)
The role of nurses in meeting the health care needs of older people with intellectual disabilities: a review of the published literature
- Author:
- JENKINS Robert
- Journal article citation:
- Journal of Intellectual Disabilities, 16(2), June 2012, pp.85-95.
- Publisher:
- Sage
- Place of publication:
- London
Through medical intervention, people with intellectual disabilities now live longer in the UK and Ireland. As a consequence they are likely to have greater physical and mental health needs when compared to the general population. This review explored whether nurses have a crucial role to play in meeting such needs, and whether nurses are prepared for this role. A search was conducted for relevant English language articles dated between 1990 and 2011. Overall, there was little evidence of nurses undertaking effective interventions in meeting the health needs of older people with intellectual disabilities. Nurses have been alerted to the increase in numbers of older people with intellectual disabilities and offered some direction on their future role in this area. However, most of the current literature is based on informed opinion rather than research.
The needs of people with learning disabilities who develop dementia: a literature review
- Author:
- LLEWELLYN Penny
- Journal article citation:
- Dementia: the International Journal of Social Research and Practice, 10(2), May 2011, pp.235-247.
- Publisher:
- Sage
The longevity of people with learning disabilities is rising, and they are increasingly developing age related conditions including dementia. When this occurs, their medical and social needs pose many challenges for services. A literature review was undertaken of articles published between 1996 and 2006. Data were collected relating to the needs of people with learning disabilities and dementia, their carers and their peers. Findings revealed that the primary medical need was for timely and accurate diagnosis. There were a multitude of diagnostic tools, and advice was available as to which are most suitable for different client groups. The needs of carers are intertwined with those of people with learning disabilities and dementia and meeting their needs for education, training and increased staff numbers, has proved beneficial. Although multiple services were responsible for the needs of this client group, there was an agreement that learning disability services should be central to social care service provision.
Dementia in older adults with intellectual disabilities: epidemiology, presentation and diagnosis
- Authors:
- STRYDOM Andre, et al
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 7(2), June 2010, pp.96-110.
- Publisher:
- Wiley
The authors conducted a literature review on the epidemiology, presentation and diagnosis of dementia in older adults with intellectual or learning disabilities (ID) and specific genetic syndromes, such as Downs syndrome (DS) using Medline, EMBASE and PsycINFO for original papers in English, German or Dutch, between 1997 and 2008. Articles from the United Kingdom, Canada, Australia, United States, Netherlands, Ireland; Japan, South Africa, Scandinavia and Italy had varied methodologies and differences in diagnoses resulting in a wide range of prevalence rates of dementia. Rates of dementia in those with ID, not because of DS, were comparable or higher than those in the general population. The onset of Alzheimers disease in DS appears earlier and the prevalence increases from less than 10% in the 40’s, to more than 30% in the 50’s with varying prevalence reported in those over 60 years. Incidence rates increased with age. Presentation differs in the ID population compared with the general population, with those with DS presenting with behavioural changes believed to be due to frontal lobe deficits. Few studies of dementia in other genetic syndromes such as Rett syndrome, an autistic spectrum disorder, and Sanfilippo syndrome were located in the literature, but these are discussed and tabulated along with others found.