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Learning disability and dementia: are we prepared?
- Authors:
- KERR Diana, CUNNINGHAM Colm, WILKINSON Heather
- Journal article citation:
- Journal of Dementia Care, 14(3), May 2006, pp.17-19.
- Publisher:
- Hawker
This article describes a research project funded by the Joseph Rowntree Foundation (JRF) which was undertaken to explore the needs of people with learning disabilities and dementia, the obstacles to meeting their needs and examples of good practice. The study explored the experiences of 18 people with learning disabilities living in small-scale, community-based residential homes. The study also looked at the knowledge and experience of service providers, look at the impact of different models of provision, and to identify examples of good practice. The three models of care considered were: ageing in place (where individuals remain in their own accommodation); in place progression (where staff are trained and the environment developed to become increasingly specialised); and referral out (where the person is moved to a long-term nursing facility, usually outside of the learning disability service).
An archi-texture of learning disability services: the use of Michel Foucault
- Author:
- MCINTOSH Paul
- Journal article citation:
- Disability and Society, 17(1), January 2002, pp.65-79.
- Publisher:
- Taylor and Francis
The work of Michel Foucault has been widely used in the social sciences to explore relationships of power and knowledge. This article utilises Foucault's methods in an initial formation of discourse in the problem of care of people with learning disabilities, and focuses on the problematisation of people with learning disabilities and their care needs. This article is spilt into two halves; first classification and support structures, and secondly an architexture of learning disability services.
Services for people with learning disabilities
- Author:
- LINDSEY Mary
- Journal article citation:
- Mental Health Review, 5(2), June 2000, pp.5-14.
- Publisher:
- Pier Professional
Looks at the services available for people with learning difficulties and mental health problems, and argues that generic services are often insufficient.
Reliability and validity of the CANDID: a needs assessment instrument for adults with learning disabilities and mental health problems
- Authors:
- XENITIDIS K., et al
- Journal article citation:
- British Journal of Psychiatry, 176, May 2000, pp.473-478.
- Publisher:
- Cambridge University Press
Although people with learning disabilities are more likely to develop mental health problems than their non-disabled counterparts, there is no widely accepted instrument for measuring needs in this group. This study aimed to develop the Camberwell Assessment of Need for Adults with Developmental and Intellectual Disabilities (CANDID) and investigate its validity and reliability.
Camberwell Assessment of Need for the Elderly (CANE): development, validity and reliability
- Authors:
- REYNOLDS Tom, et al
- Journal article citation:
- British Journal of Psychiatry, 176, May 2000, pp.444-452.
- Publisher:
- Cambridge University Press
There exists no instrument specifically designed to measure comprehensively the needs of older people with mental disorders. This article describes the development of such an instrument which would take account of patients', staff and carers' views on needs. The Camberwell Assessment of Need for the Elderly (CANE) comprises 24 items (plus two items for carer needs), and records staff, carer and patient views. Concludes that the psychometric properties of the CANE seem to be highly acceptable. It was easily used by a wide range of professionals without formal training.
Assessing cultural identity in people with learning disabilities
- Author:
- NEWLAND John
- Journal article citation:
- Tizard Learning Disability Review, 4(4), November 1999, pp.20-24.
- Publisher:
- Emerald
Presents a method for assessing personal cultural identity for people with learning disabilities, based on the theoretical framework of Hutnik (1991) and the operational procedure developed by Parker et al. (1991). Two case examples are briefly presented that illustrate the method for assessing personal cultural identity. Discussed how incorporating personal cultural identity information into the community living assessment process can both facilitate more relevant care planning and increase service usage.
Parents together: action research and advocacy support for parents with learning difficulties
- Authors:
- BOOTH Tim, BOOTH Wendy
- Journal article citation:
- Health and Social Care in the Community, 7(6), November 1999, pp.464-474.
- Publisher:
- Wiley
Describes the work of Parents Together, a pioneering action research project that set out to support parents with learning difficulties in ways that were non-stigmatising, non-intrusive and responsive to their perceptions of their own needs. Based on an explicit model of parenting and social support, Parents Together used an advocacy approach to challenge discriminatory views of parents' competence and to lighten the load on families by reducing the environmental pressures that undermined them. Concludes by drawing out the wider lessons of the project for policy and practice.
Reviewing respite services: some lessons from the literature
- Authors:
- COTTERILL Lesley, et al
- Journal article citation:
- Disability and Society, 12(5), November 1997, pp.775-788.
- Publisher:
- Taylor and Francis
Although the community care reforms raised the profile of respite services for adults with learning disabilities, little is known about the character of respite provision in Britain. This lack of information is compounded by the way the literature about respite is dispersed across user groups and is often restricted to particular types of services or to specific localities. Highlight some of the key issues associated with respite, and draws on a wide range of literature. Argues that a break with the traditional notion of respite as primarily a way to relieve carer burden is long overdue.
Health care needs assessment: the epidemiologically based needs assessment reviews; part 19; people with learning disabilities
- Authors:
- FELCE D., TAYLOR D., WRIGHT K
- Publisher:
- Radcliffe Medical Press
- Publication year:
- 1996
- Pagination:
- 43p.,tables,bibliog.
- Place of publication:
- Oxford
No. 19 in a series of booklets looking at health care needs in the population and using a triangular model of measurement for purchasers and providers of health services. Examines the prevalence and incidence of learning difficulty in the population, services available, effectiveness of services, models of care, outcome measures, targets, and research priorities.
'Why parents: how parents'
- Author:
- MADDEN Phil
- Journal article citation:
- British Journal of Learning Disabilities, 23(3), 1995, pp.90-93.
- Publisher:
- Wiley
Parents of both children and adults with learning disabilities have an important role in the development of services. There are examples of good parent/professional partnership, and successful individual and collective parent empowerment, particularly in the USA. This paper argues that there are opportunities to learn from these developments and to build a new model of partnership.