Search results for ‘Subject term:"learning disabilities"’ Sort:
Results 1 - 10 of 17
The importance of romantic love to people with learning disabilities
- Authors:
- BATES Claire, TERRY Louise, POPPLE Keith
- Journal article citation:
- British Journal of Learning Disabilities, 45(1), 2017, pp.64-72.
- Publisher:
- Wiley
Background: Love is important aspect of life, including to people with learning disabilities both historically and more recently. Participants value the companionship, support and social status associated with a partner. Relationships are considered mechanisms to meet certain needs including feeling loved, company, intimacy and enabling individuals to marry and have children. This article examines the importance of romantic love to people with learning disabilities. Methods: A hermeneutic phenomenological study, guided by the theory of Van Manen was conducted using interviews with eleven people with learning disabilities examining the importance of romantic love. Results: The analysis revealed that love was important to them, specifically the companionship and support a loving partner provided. The physical expression of love by a partner was valued highly, especially kissing and cuddling. Most participants had experienced some form of abuse, but it appeared that the love of a partner was reparative and they were able to form satisfying relationships. Conclusion: Participants’ narratives highlighted the role staff play in supporting them to fulfill their romantic needs. The romantic relationship needs of people with learning disabilities were examined in relation to Maslow's hierarchy of needs. The hierarchy was revised to reflect the value of having a loving relationship to people with learning disabilities and to identify the support they required to facilitate and maintain this. (Publisher abstract)
Lost in transition?: how to find your way through: an overview of recent transitions research for parents and practitioners
- Author:
- EVERITT Gabriella
- Publisher:
- Dimensions
- Publication year:
- 2007
- Pagination:
- 100p.
- Place of publication:
- Theale
The lack of effective support for young adults with a learning difficulty at transition has been highlighted as a key issue in the learning difficulty sector. Yet, although everybody seems to be talking about it, nothing seems to be changing. It seems we’re still wary of taking the plunge and developing the right kind of services to meet the needs of young people with a learning difficulty today.
Predicting additional care in young children with neurodevelopmental disability: a systematic review
- Authors:
- MEESTER-DELVER Anke, et al
- Journal article citation:
- Developmental Medicine and Child Neurology, 48(2), 2006, pp.143-150.
- Publisher:
- John Wiley and Sons
Children with developmental disabilities have a variety of associated impairments that require lifelong additional care, and assessment of these needs is necessary not only for diagnostic purposes but to inform parents and other care givers and providers about what care is likely to be needed in the future. This review identifies and evaluates seven existing assessment instruments: Pediatric Evaluation of Disability Inventory (PEDI); Functional Independence Measure for Children (WeeFIM); Health Utility Index (HUI-3); Life Habits Assessment (LIFE-H); Lifestyle Assessment Questionnaire; Support Intensity Scale (SIS); and Amount of Assistance Questionnaire (AAQ). None have been developed to predict future additional care requirements, and the authors conclude that new instruments should be developed to provide parents and other care providers with the information they need.
Behavioural supports for parents of children with an intellectual disability and problem behaviours: an overview of the literature
- Authors:
- GAVIDIA-PAYNE Susana, HUDSOB Alan
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 27(1), March 2002, pp.31-55.
- Publisher:
- Taylor and Francis
A considerable body of knowledge that allows for the design of effective interventions with problem behaviour in children with an intellectual disability is now in existence. The development of behavioural supports for parents, in particular, has taken momentum in the last few years. The purpose of this paper is to provide an overview of research on the supports provided to parents in the assessment of and intervention with the problem behaviour of their children with an intellectual disability. It is concluded that while research in the area has made considerable advances, gaps in research on the development of practical applications of "parent friendly" programmes are still evident.
Ageing carers and intellectual disability: a scoping review
- Authors:
- MAHON Aoife, et al
- Journal article citation:
- Quality in Ageing and Older Adults, 20(4), 2019, pp.162-178.
- Publisher:
- Emerald
Purpose: Individuals with intellectual disability(ies) are living longer contributing to an overall increase in the average age of caregivers. The purpose of this paper is to review the literature on the physical, social and psychological needs of ageing carers of individuals with intellectual disability(ies) in the UK. Design/methodology/approach: A scoping review framework was used to identify literature from eleven databases, the grey literature and the references lists of relevant studies. Only primary research studies that discussed the needs of non-professional carers, aged 65+ years old, of individuals with intellectual disability(ies) in the UK were included. No date restrictions were applied. Thematic analysis was used to narratively synthesise findings. Findings: Six studies were included. Five key themes were identified: Living with fear, lack of information, rebuilding trust, proactive professional involvement and being ignored. Housing and support information is not communicated well to carers. Professionals require more training on carer needs and trust must be rebuilt between carers and professionals. Proactive approaches would help identify carer needs, reduce marginalisation, help carers feel heard and reduce the risk of care crisis. Greater recognition of mutual caring relationships is needed. Originality/value: This review highlighted the needs of older caregivers for individuals with intellectual disability(ies) as well as the need for more high-quality research in this field. The information presented in this review may be considered by primary care providers and funding bodies when planning future support for this growing population of carers. (Edited publisher abstract)
Supporting children of parents with intellectual disability: a scoping review
- Authors:
- GUDKOVA Tatiana, HEDLUND Marianne, MIDJO Turid
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 32(4), 2019, pp.737-749.
- Publisher:
- Wiley
Background: Parents with intellectual disability live normal lives and have children, but many of them lose custody of their children. However, little is known about the support, if any, that these children receive. Here, the present authors review the literature on the help and support given to children of parents with intellectual disability. Method: A scoping review of peer‐reviewed and grey literature was conducted, covering 1997 to November 2017. Results: Thirteen publications were identified. The children benefited from help and support received through informal networks. They also benefited from formal support if it focused on the children's needs and interests. Conclusions: The review shows that even though support from informal networks might be an influential factor in supporting children, there is a need for more research addressing the formal support these children receive and how they benefit from it. (Edited publisher abstract)
Easy read and accessible information for people with intellectual disabilities: Is it worth it? A meta-narrative literature review
- Authors:
- CHINN Deborah, HOMEYARD Claire
- Journal article citation:
- Health Expectations, 20(6), 2017, pp.1189-1200. Online only
- Publisher:
- Wiley
Background: The proliferation of “accessible information” for people with intellectual disabilities in UK health care has accelerated in recent years, underpinned by policy guidance alongside the recent introduction of mandatory standards. However, questions have been raised as to the impact of such resources as a means of enhancing involvement in health care and addressing health inequalities. Objective: To review and synthesise the evidence from different approaches used to evaluate the impact of accessible information for people with intellectual disabilities using a meta-narrative approach. Search strategy: Literature searches were iterative and incorporated formal databases, grey literature and hand searches alongside more intuitive and opportunistic methods. Inclusion criteria: Included English language papers published before December 2015 described the design and evaluation of written information adapted for adults with intellectual disabilities. Data extraction and synthesis: The authors organised the papers into five groups according to similarity in authors’ writing styles and presentation, epistemology and theoretical foundations, aims and methodologies, professional and organisational identities. Main results: The 42 included papers in the five groupings occupied diverse positions on (i) public communication vs individualised materials, (ii) literacy as contextualised skills vs social practices and (iii) the expertise of patients vs professionals. There was limited evidence for the impact of accessible health information, notwithstanding the potential benefits associated with their creation. Conclusions: Individually tailored information is more likely to meet personalised health information needs for people with intellectual disabilities. The emergence of different social formations in the creation of accessible information has potential for advancing engagement of diverse groups. (Edited publisher abstract)
Agency, social and healthcare supports for adults with intellectual disability at the end of life in out-of-home, non-institutional community residences in Western nations: a literature review
- Authors:
- MORO Teresa T., SAVAGE Teresa A., GEHLERT Sarah
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 30(6), 2017, pp.1045-1056.
- Publisher:
- Wiley
Background: The nature and quality of end-of-life care received by adults with intellectual disabilities in out-of-home, non-institutional community agency residences in Western nations is not well understood. Method: A range of databases and search engines were used to locate conceptual, clinical and research articles from relevant peer-reviewed journals. Results: The present authors present a literature review of the agency, social and healthcare supports that impact end-of-life care for adults with intellectual disabilities. More information is needed about where people with intellectual disabilities are living at the very end of life and where they die. Conclusions: The support needs for adults with intellectual disabilities will change over time, particularly at the end of life. There are some areas, such as removing barriers to providing services, staff training, partnerships between agencies and palliative care providers, and advocacy, where further research may help to improve the end-of-life care for adults with intellectual disabilities. (Publisher abstract)
Fathers of people with intellectual disability: a review of the literature
- Authors:
- DAVYS Deborah, MITCHELL Duncan, MARTIN Rachel
- Journal article citation:
- Journal of Intellectual Disabilities, 21(2), 2017, pp.175-196.
- Publisher:
- Sage
- Place of publication:
- London
The aim of this article is to review the literature related to fathers of people who have an intellectual disability (ID). Electronic databases and citation tracking were used to collate data using key terms such as fathers, adults with an ID, learning disability, mental handicap and developmental disability. Relevant articles were analysed and compared for commonality and difference. Eight themes emerged from the literature: response to diagnosis, varied response to ID, concern for the future, work, roles and relationships, impact of fathers upon child development, fathers and service providers, fathers’ needs and coping strategies. This review of the literature presents areas of similarity and divergence and highlights the lack of information that relates specifically to fathers of adults. There are clear messages to service providers to support the inclusion of fathers and the need for further research in this area is indicated. (Publisher abstract)
The formal support experiences of family carers of people with an intellectual disability who also display challenging behaviour and/or mental health issues: what do carers say?
- Author:
- JAMES Neil
- Journal article citation:
- Journal of Intellectual Disabilities, 17(1), 2013, pp.6-23.
- Publisher:
- Sage
- Place of publication:
- London
Legislation, policy and strategies encourage services and professionals to work with carers in ways that complement and enhance their roles in order to maximize their capacity to care for their relative. Family carers therefore are recognized as a valuable resource. This article reports the findings of a review of research that explored the support experiences of family carers of a person with an intellectual disability who displays challenging behaviour and/or has a mental health problem. The purpose of this review is to provide an overview of the reported experiences of family carers from recent research studies, about their own support. Carers commonly reported that the support they want from services and professionals is the provision of clear, understandable information about their relative’s condition and treatment. Also, they want help to develop skills that enable them to manage in difficult situations, the provision of psychological support for themselves and a break from their caring role. They desire well-coordinated services as well as skilled and knowledgeable professionals. Recommendations made for the development of future research and practice.