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Making a difference. Visual health needs of people with a learning disability
- Authors:
- MCGLADE Anne, et al
- Journal article citation:
- British Journal of Learning Disabilities, 38(3), September 2010, pp.187-193.
- Publisher:
- Wiley
This article discusses the findings from a study to assess the impact of corrective eye treatment in adults with a learning disability. The service was delivered by the Special Visual Assessment Clinic (SVAC) an optometry led, multi professional out-reach service delivered in a Resource Centre in Belfast, Northern Ireland. It was designed to provide high quality optometric services to people with learning disability and to improve the uptake of visual assessments amongst this group of the population. The study, which included user and carer input in its design, involved 15 people with a learning disability, 21 of their family carers, and 12 members of staff in interviews, group discussions, completion of checklists and clinical audit. The findings revealed that prior to the SVAC taking place there was limited awareness of vision related problems amongst all these groups. Following assessment and corrective treatment which, in the main included the provision of glasses, there was a heightened awareness of visual needs and of the benefits of eye examinations which included some tentative links to quality of life.
Getting older: feeling good
- Authors:
- BRADLEY Alice, et al
- Publisher:
- British Institute of Learning Disabilities
- Publication year:
- 2004
- Pagination:
- 12p.
- Place of publication:
- Kidderminster
This easy read booklet about growing older by people with learning disabilities can be used with individuals or groups and enhanced with other activities.
Themed visit to hospital units for the assessment and treatment of people with learning disabilities
- Author:
- MENTAL WELFARE COMMISSION FOR SCOTLAND
- Publisher:
- Mental Welfare Commission for Scotland
- Publication year:
- 2012
- Pagination:
- 33p.
- Place of publication:
- Edinburgh
There has been widespread closure of long stay hospitals for people with learning disabilities. Today, excluding forensic beds, there are fewer than 240 people in acute and longer stay assessment and treatment beds in Scotland. However it is recognised that there is a need for a small number of inpatient beds for those with specialised or complex needs which cannot be met in the community. This report presents the findings of visits from June 2011 to September 2011 to all 20 hospital units (19 NHS and 1 private hospital) for the assessment and treatment of people with learning disabilities. Information was gathered from Clinical Service Managers, staff, service users, care plans and other records, and relatives. The care and treatment of 113 people was looked at. There were 4 general areas of enquiry: health needs; rights and restrictions; quality of life; and participation and involvement. The findings were mainly positive. A number of key messages and recommendations are provided based on these findings, and areas of best practice are highlighted.
Spirituality and intellectual disability: international perspectives on the effect of culture and religion on healing body, mind and soul
- Editors:
- GAVENTA William, COULTER David
- Publisher:
- Haworth Press
- Publication year:
- 2001
- Pagination:
- 182p.,bibliogs.
- Place of publication:
- Binghamton, NY
Spirituality is a fundamental aspect of human experience that includes but is not limited to religious participation. Individuals express and manifest spirituality in a variety of ways. Disabilities in one area may co-exist with substantial well-being in other areas of health.
Facilitating future planning for ageing adults with intellectual disabilities using a planning tool that incorporates quality of life domains
- Authors:
- O'GRADY Kathy, CONCLIFFE Chris
- Journal article citation:
- Journal of Gerontological Social Work, 37(3/4), 2002, pp.105-119.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
When ageing families of an adult with a lifelong disability embark on a process of planning for the future, they generally think in terms of making hard and fast decisions about where the person with the disability is going to live when “the time comes”; and who will take on their direct care. When ageing families do make plans, they often focus only a place to live. This can mean that other significant aspects of a person’s life (i.e., quality of life factors) are negated or neglected. Reviewing population demographics for both the Republic of Ireland and Northern Ireland, it was ascertained that a sizable number of parents will be aging in the near future and that some formalised assistance for future planning was needed. To this end, a planning instrument, was developed in order to help families and other carers with planning for the future and involving a variety of quality of life domains, including health, financial, vocational, social, civil, and residential well-being.
Health, age, and gender: how do women with intellectual disabilities fare?
- Author:
- ANDERSON Deborah J.
- Journal article citation:
- Journal of Gerontological Social Work, 38(1/2), 2002, pp.137-159.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
The 1994-1995 Disability Supplement to the National Health Interview Survey (administeredto a representative sample of the U.S. population) was analyzed for women age 30 and older with intellectual disabilities (ID), developmental disabilities (DD) or both, in order to describe their functioning as they aged in the community. Definitions of ID and DD consistent with professional and legal standards were developedand adapted to the NHIS-D questions. An estimated .56% of the approximately 77 million civilian, noninstitutionalized, women age 30 and older in the United States have one of these disabilities. Compared with women in general,women with these disabilities had negative perceptions of their health status, particularlywomen with DD and health indicators tended to support their perceptions. Most were independent in activities of daily living , but instrumental activities of daily living posed more of a callenge, and limitations in major activities were common as was a high rate of distress and psychosocial difficulties.
Healthy ageing - adults with intellectual disabilities: women's health and related issues
- Authors:
- WALSH P.N., et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 14(3), 2001, pp.195-217.
- Publisher:
- Wiley
This report has been prepared by the Ageing Special Interest Research Group of the International Association for the Scientific Study of Intellectual Disabilities (IASSID) in collaboration with the Department of Mental Health and Substance Dependence and the Programme on Ageing and Health, World Health Organisation (WHO), Geneva, Switzerland. Explores factors related to well-being and quality of life for women, examines and defines sex-linked differences in their life experiences and opportunities and to define their distinctive vulnerabilities - including research on health status and access to healthcare.
Dementia-related care decision-making in group homes for persons with intellectual disabilities
- Authors:
- JANICKI Matthew P., MCCALLION Philip, DALTON Arthur J.
- Journal article citation:
- Journal of Gerontological Social Work, 38(1/2), 2002, pp.179-195.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
Alzheimer’s disease and related dementias affects a significant number of adults with intellectual disability (ID), in particular those with Down syndrome. Many affected adults live in small community group homes or with their families. How to provide sound and responsive community care is becoming a challenge for agencies faced with an increasing number of affected adults. This study reports the outcome of a survey of group homes serving adults with ID and dementia, explores the onset, duration and effects of dementia, and speaks to the impact of these on planning for community care of adults with ID. It also examines emerging community care models that provide for “dementia capable” supports and services. Two models, “aging in place” and “in place progression” are examined, as well as “referral out” reactions, with regard to care practices and critical agency decision making.
Considerations in care for individuals with intellectual disability with advanced dementia
- Author:
- SERVICE Kathryn Pekala
- Journal article citation:
- Journal of Gerontological Social Work, 38(1/2), 2002, pp.213-223.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
A number of physical, psychosocial, or ethical issues related to the care of the individual with advanced dementia are reviewed and related to individuals with intellectual disabilities.The author notes that through anticipation and early planning, advanced directives and service planning (which looks to adaptation of services and other care management interventions), can effectively impact care at the end. Areas that need to be addressed include technical information, including a reviewof and, as appropriate, adaptation of general advanced dementia resources, relief, rest, support, reassurance, receipt of on-going information, participation in planning, a sense of humor, and appreciation. Also noted, are the differences experienced because of the presence of paid staff as carers and residence outside of the family home.
Barriers and supports for exercise participation among adults with Down Syndrome
- Authors:
- HELLER Tamar, HSIEH Kelly, RIMMER James
- Journal article citation:
- Journal of Gerontological Social Work, 38(1/2), 2002, pp.161-177.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
Examines the impact of exercise barriers and carer attitudes regarding exercise outcomes on the exercise participation of adults with Down syndrome (DS). The sample included 44 adults age 30 years and older with DS and mild to moderate intellectual disability and their carers (family members or staff). Measures included personal characteristics of the adults with DS (age, level of adaptive behavior, and health status),carer perceived outcomes of exercise for people with DS, socio-emotional barriers, and access barriers to exercising. The significant determinants of exercise participation were carers' perceived outcomes of exercise for persons with DS and access barriers. When carers perceived greater benefits of exercise and when there were fewer access barriers, the adults with DS were likely to exercise more frequently.