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What do Joint Strategic Needs Assessments tell us about people with learning disabilities in England?
- Authors:
- BAINES Susannah, HATTON Chris
- Journal article citation:
- Tizard Learning Disability Review, 20(2), 2015, pp.92-96.
- Publisher:
- Emerald
Purpose: A 2013 analysis of local authority Joint Strategic Needs Assessments (JSNAs) showed that JSNAs were not routinely including information on the numbers and health needs of people with learning disabilities, particularly children. This paper compares the information included in 2013 and 2014 JSNAs. Design/methodology/approach: JSNAs for 141 local authorities in England were sought. Local authorities were contacted when JSNAs were not initially found online. All 137 JSNAs found were analysed for mentions and specific sections concerning people with learning disabilities, and content analysed concerning the specific information they contained. Findings: In total, 72 per cent of JSNAs mentioned people with learning disabilities (vs 82 per cent in 2013); 24 per cent mentioned children (vs 39 per cent in 2013) and 72 per cent mentioned adults (vs 81 per cent in 2013). Overall, 13 per cent of JSNAs included a section on children with learning disabilities (vs 9 per cent in 2013), 65 per cent included a section on adults (vs 48 per cent in 2013) and 11 per cent included a section on older adults (vs 8 per cent in the 2013). More JSNAs contained information on current and projected future populations, health needs, social context and service usage concerning adults with learning disabilities compared to children. There was large regional variation in all these indicators. Originality/value: Further work is needed for JSNAs to contain sufficient information on people with learning disabilities to allow for strategic planning, and for JSNAs to be accessible to the public. (Edited publisher abstract)
Access to services and meeting the needs of people with learning disabilities
- Authors:
- LENNOX Tasmin, et al
- Journal article citation:
- Journal of Learning Disabilities, 7(1), March 2003, pp.34-50.
- Publisher:
- Sage
People with learning disabilities have greater primary health care needs than the general population, yet these needs often go unmet. A local survey of 49 adults with learning disabilities was carried out to consider patterns of access and need. Findings indicate that basic health needs, such as feet problems, incontinence, eyesight problems and specific medical conditions, of people with learning disabilities are frequently noted. Access to primary care services to address these needs is discussed along with suggestions for future research and recommendations for service planning.
Facilitating future planning for ageing adults with intellectual disabilities using a planning tool that incorporates quality of life domains
- Authors:
- O'GRADY Kathy, CONCLIFFE Chris
- Journal article citation:
- Journal of Gerontological Social Work, 37(3/4), 2002, pp.105-119.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
When ageing families of an adult with a lifelong disability embark on a process of planning for the future, they generally think in terms of making hard and fast decisions about where the person with the disability is going to live when “the time comes”; and who will take on their direct care. When ageing families do make plans, they often focus only a place to live. This can mean that other significant aspects of a person’s life (i.e., quality of life factors) are negated or neglected. Reviewing population demographics for both the Republic of Ireland and Northern Ireland, it was ascertained that a sizable number of parents will be aging in the near future and that some formalised assistance for future planning was needed. To this end, a planning instrument, was developed in order to help families and other carers with planning for the future and involving a variety of quality of life domains, including health, financial, vocational, social, civil, and residential well-being.
Considerations in care for individuals with intellectual disability with advanced dementia
- Author:
- SERVICE Kathryn Pekala
- Journal article citation:
- Journal of Gerontological Social Work, 38(1/2), 2002, pp.213-223.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
A number of physical, psychosocial, or ethical issues related to the care of the individual with advanced dementia are reviewed and related to individuals with intellectual disabilities.The author notes that through anticipation and early planning, advanced directives and service planning (which looks to adaptation of services and other care management interventions), can effectively impact care at the end. Areas that need to be addressed include technical information, including a reviewof and, as appropriate, adaptation of general advanced dementia resources, relief, rest, support, reassurance, receipt of on-going information, participation in planning, a sense of humor, and appreciation. Also noted, are the differences experienced because of the presence of paid staff as carers and residence outside of the family home.
Meeting the health needs of people who have a learning disability
- Authors:
- THOMPSON Jeanette, PICKERING Sharon
- Publisher:
- Bailliere Tindall
- Publication year:
- 2001
- Pagination:
- 347p.,bibliog.
- Place of publication:
- Edinburgh
The notion of addressing the poor health and promoting good health for people who have a learning disability is relatively new. Concepts such as normalisation and integration of people into the local community and providing an inclusive rather than exclusive ethos for care, have led to the policy that people with learning difficulties have the right to be treated with the same respect as every one else. This includes their right to live long and healthylives.
Health gain through screening - mental health: developing primary health care services for people with an intellectual disability
- Authors:
- ROY A., MARTIN D. M., WELLS M. B.
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 22(4), December 1997, pp.227-239.
- Publisher:
- Taylor and Francis
Referrals to mental health services are highly variable and depend on local factors such as availability of psychiatric and community nursing services, general practitioners' awareness of mental health problems in people with an intellectual disability, and knowledge and attitudes of professional and family carers. This article describes a study which aims to identify individuals with significant mental health problems who were not receiving services. Difficulties encountered in targeting services.
Health gain through screening - users' and carers' perspectives of health care: developing primary health care services for people with an intellectual disability
- Authors:
- MARTIN D.M., et al
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 22(4), December 1997, pp.241-249.
- Publisher:
- Taylor and Francis
Describes Primary Health Care Project for People with an Intellectual Disability which began early in 1995 in Northern Birmingham to facilitate equal access to health care services for adults with an intellectual disability, and to establish a health screening protocol. The aim of the study was to identify the experiences, expectations and opinions of the people using these services. The implications of this methodology and its findings are discussed.