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Reflections: life stories, quotes, poems and snapshots from people with support needs
- Author:
- FAMILY MOSAIC
- Publisher:
- Family Mosaic
- Publication year:
- 2006
- Pagination:
- 40p.
- Place of publication:
- Pitsea
This collection of ‘Life Stories’ has been pulled together in this booklet, the people writing them have a range of different backgrounds, different needs and abilities including young people leaving care, adults with learning difficulties, adults with mental health problems, adults with acquired brain injuries, vulnerable single homeless and vulnerable families. Some of the stories are uplifting, some are sad but all of them show the person behind the ‘label’.
Parenting stress in mothers of adults with an intellectual disability: parental cognitions in relation to child characteristics and family support
- Authors:
- HILL C., ROSE J.
- Journal article citation:
- Journal of Intellectual Disability Research, 53(12), December 2009, pp.969-980.
- Publisher:
- Wiley
There is limited evidence about the impact of adult children with intellectual disabilities (ID) on the experience of their parents and on the family as a whole. This study investigated the applicability of the Mash and Johnston model of parenting stress to mothers of adults with ID, with particular focus on parental cognitions of parenting self-esteem and parental locus of control. A total of 44 mothers (51 to 84 years) from a single urban area of the UK took part in face-to face interviews. They completed the Vineland Adaptive and Maladaptive Behaviour Scale, the Family Support Scale, the Parenting Sense of Competence Scale, a shortened version of the Parental Locus of Control Scale and the Parenting Stress Index. Correlations were observed between parenting stress and other study variables. Regression analysis revealed that parental cognitive variables predicted 61% of the variance in parenting stress. Parenting satisfaction, a subscale of the measure of parenting sense of competence, mediated the relationships between adaptive behaviour and parenting stress and between family support and parenting stress. Drawing their conclusions, the authors emphasise the importance of cognitive variables in the stress of mothers of adults with ID. Further research is suggested on the experience of fathers and the impact of positive perceptions as a cognitive factor.
Valuing people with profound and multiple learning difficulties (PMLD)
- Author:
- PMLD NETWORK
- Publisher:
- Mencap
- Publication year:
- 2003
- Pagination:
- 32p., bibliog.
- Place of publication:
- London
In November 2000 Mencap and the Foundation for People with Learning Disabilities brought together a small group from other organisations (membership list attached) with an interest and expertise in working with children and adults with profound and multiple learning disabilities and their parents and carers. The group, now known as the PMLD Network, agreed that its first task should be to provide a response to the White Paper and work to influence its implementation. ‘Valuing People’ does not fully address the issues for children and adults with PMLD. This is apparent in the way that it does not: use consistent terminology; identify that children and adults with PMLD are amongst the most excluded people in society; identify children and adults with PMLD as a priority group; make any specific objective or sub-objective for people with PMLD; and does not identify family carers of children and adults with PMLD as a priority group.
Families of 30-35 year olds with Down's Syndrome
- Author:
- CARR Janet
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 18(1), March 2005, pp.75-84.
- Publisher:
- Wiley
The families of a population sample of people with Down's syndrome (DS), and of their non-disabled controls, have been followed since early childhood, and the families have now been seen again as their sons and daughters reached age 30 and 35 years. A semi-structured interview schedule was used, including items from the handicaps, behaviour and skills schedule and from Holmes' thesis relating to leisure and social life and experience of services. Most parents, now in their late 60s, reported good health and a satisfactory social life. Mothers' mean stress scores were slightly higher in the Down's syndrome group than in the controls: possible explanations for this are discussed. Only one factor relating to the offspring with Down's syndrome could be shown to influence stress. Few adverse effects on the siblings were identified. The study is in agreement with others in showing families of older people with Down's syndrome to be well-adjusted and not unduly stressed.
Supporting People: folder 2: part 3: operational guidance
- Author:
- SCOTLAND. Scottish Executive Development Department
- Publisher:
- Scotland. Scottish Executive Development Department
- Publication year:
- 2003
- Pagination:
- 180p.
- Place of publication:
- Edinburgh
Bridging the divide at transition: what happens for young people with learning difficulties and their families?
- Authors:
- HESLOP Pauline, et al
- Publisher:
- British Institute of Learning Disabilities
- Publication year:
- 2002
- Pagination:
- 140p.,bibliog.
- Place of publication:
- Kidderminster
This report is based on a survey of 283 families, interviews with parents and young people with learning difficulties. Contents include: the need for transition planning; moving between children's and adult services; what affects a young person's move towards independence; what families and young people themselves say would improve the transition experience; examples of innovative practice.
Supporting People: Folder 1- strategic guidance: interim guidance
- Author:
- SCOTLAND. Scottish Executive. Development Department
- Publisher:
- Scotland. Scottish Executive
- Publication year:
- 2002
- Pagination:
- 94p.
- Place of publication:
- Edinburgh
Sexual abuse in adulthood: ongoing risks for people with learning disabilities
- Authors:
- BROWN Hilary, TURK Vicky
- Journal article citation:
- Child Abuse Review, 3(1), March 1994, pp.26-35.
- Publisher:
- Wiley
Reports findings of a 3-year research programme into the sexual abuse of adults with learning disabilities. Inconsistent reporting to and by services can be seen in the results, including lack of agreed practice around consent to sexual activities between service users. Abuse is also perpetrated by staff, volunteers, family members and other known and trusted adults. Thus both definition and detection are important competencies for services to develop. Abuse reported was predominantly perpetrated by men on both women and men with learning disabilities, and the gender issues raised by tackling sexual abuse in unequal staff teams, with their male style of management and a female workforce, are considered.
Relative justice: the experiences and views of family members of people with particular needs in contact with the criminal justice and liaison and diversion services
- Author:
- TALBOT Jenny
- Publisher:
- Prison Reform Trust
- Publication year:
- 2015
- Pagination:
- vi, 43
- Place of publication:
- London
Presents the findings from a consultation designed to inform the development of liaison and diversion services prior to national roll out in 2017. The consultation consisted of four focus groups, involving between 24 and 48 family members and carers of people with particular needs in contact with criminal justice - two focus groups were held in the north of England and two in the south. Liaison and diversion is a process whereby people of all ages with mental health problems, learning disabilities, substance misuse problems or other vulnerabilities are identified and assessed as early as possible as they pass through the criminal justice system. The report discusses the five main themes which emerged in the consultation, including: support for families; meeting families’ needs; awareness of, and contact with, liaison and diversion services; confidentiality; and awareness training. Family members in this study who were in contact with liaison and diversion services spoke highly of the ongoing support both they and their families received. Whether through direct experience, or having heard about liaison and diversion by participating in this study, all family members welcomed the idea that such services could help to facilitate access to information and support. (Edited publisher abstract)
Family involvement in the pre-discharge assessment of long-stay patients with learning disabilities: a qualitative study
- Author:
- BARTON R.
- Journal article citation:
- Journal of Learning Disabilities for Nursing Health and Social Care, 2(2), June 1998, pp.79-88.
This article focuses on relatives' attitudes to, and feelings about, their involvement in a programme of individual assessments carried out in anticipation of the discharge of adults with learning disabilities from a long-stay hospital. It emerged that although most respondents were reasonably satisfied with the assessment process itself, this did not imply that they were satisfied with their relative's future prospects. It was concluded that although attempts had been made to involve relatives in the assessment process respondents had little sense of working in partnership with professionals.