Search results for ‘Subject term:"learning disabilities"’ Sort:
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Learning with families: involving families in staff training
- Author:
- DAVIES Jill
- Journal article citation:
- Tizard Learning Disability Review, 10(3), July 2005, pp.12-17.
- Publisher:
- Emerald
The Foundation for People with Learning Disabilities has developed a tool to help staff and families to work better together. This article reports on the development of the training resource called Learning with Families where the contents were developed by family carers, who are also being encouraged to deliver the training, alongside professionals, to staff who work in learning disability services, in order to improve their understanding of the experiences of families.
A systematic review of hospital experiences of people with intellectual disability
- Authors:
- IACONO Teresa, et al
- Journal article citation:
- BMC Health Services Research, 14(505), 2014, Online only
- Publisher:
- BioMed Central Ltd
Background: People with intellectual disability are at risk of poor hospital experiences and outcomes. The aims were to conducts a content and quality review of research into the acute hospital experiences of both people with intellectual disabilities and their carers, and to identify research gaps. Method: A systematic search was conducted of primary research between 2009 and 2013 that addressed the experiences of people with learning disabilities and their carers in general acute care hospitals. Quality appraisal tools yielded scores for quantitative and qualitative studies, and overarching themes across studies were sought. Results: Sixteen studies met inclusion criteria. Quality scores were 6/8 for a survey, and 2/11-9/11 (mean =5.25) for qualitative studies/components. Content analysis revealed seven over-arching themes covering individuals fear of hospital encounters, carer responsibilities, and problems with delivery of care in hospitals including staff knowledge, skills and attitudes. Conclusions: The review of eligible papers revealed that despite 20 years of research and government initiatives, people with intellectual disability continue to have poor hospital experiences. The need for research to identify and investigate care at specific points of encounter across a hospital journey (such as admission, diagnostic testing, placement on a ward, and discharge) as well as to include people with a diversity of disabilities is discussed in terms of potential to influence policy and practice across health and disability sectors. (Publisher abstract)
Communication for person centred planning
- Authors:
- GROVE Nicola, McINTOSH Barbara
- Publisher:
- Foundation for People with Learning Disabilities
- Publication year:
- 2005
- Pagination:
- 17p.
- Place of publication:
- London
This information pack was designed to help staff, self advocates, families and friends to make communication better. The aim is to help people who are working in a Person Centred way, to better understand the communication styles of self advocates.
Power-sharing brings greater satisfaction
- Author:
- WOOD Dave
- Journal article citation:
- Nursing Times, 22.4.98, 1998, pp.54-55.
- Publisher:
- Nursing Times
Explains how a community trust involving services users with learning difficulties and their parents in appointing staff is having outstanding results.
Improving mental handicap services: involving clients' families and staff in selecting areas for service development
- Authors:
- PORTERFIELD Jan, EVANS Gerry, BLUNDEN Roger
- Publisher:
- Mental Handicap in Wales. Applied Research Unit
- Publication year:
- 1982
- Pagination:
- 43p., bibliog.
- Place of publication:
- Cardiff
Working with families: what do your staff need to know and do?
- Authors:
- SKILLS FOR CARE, AVENUES
- Publisher:
- Skills for Care
- Publication year:
- 2018
- Pagination:
- 18
- Place of publication:
- Leeds
This draft framework, developed in partnership with the Avenues Group, explains the skills and knowledge adult social care staff need to work effectively with the families of people with learning disabilities who need care and support. Based on the findings from research, it covers four key aims that any learning and development programme about working with families should cover. These are: the importance of partnership working and of taking a family, person centred approach; maintaining positive relationships with families; maintaining open communication with families and reviewing how you work with them; and encouraging people who need care and support to maintain family relationships and social networks. The framework includes a sample training session, with session plan, facilitator notes, handouts and activities. It will be useful for managers or those in learning and development roles, such as HR, training staff and learning providers. It is open to consultation until 1 April 2019. (Edited publisher abstract)
Bridging the divide: attitudes towards learning disabilities
- Author:
- MUIR Alison
- Journal article citation:
- Learning Disability Today, 14(4), July/August 2014, pp.24-25.
- Publisher:
- Pavilion
- Place of publication:
- Hove
Attitudes towards people with learning disabilities still vary and many have negative perceptions, including some staff who work with them. In 2013 Hertfordshire Partnership Foundation University NHS Trust (HPUFT), ran a survey to examine attitudes towards people with learning disabilities. The survey asked: 'What does a learning disability mean to you?' and also asked why staff were working with learning disabilities. Over 160 people responded to the survey. Of these 43% were people with learning disabilities; 5% family and carers of people with learning disabilities; 36% staff working with people with learning disabilities; and 16% members of the public. The survey found that 43% of staff demonstrated a negative or ambivalent attitude towards people with learning disabilities. (Original abstract)
Goodies and baddies: equivocal thoughts about families using an autoethnographic approach to explore some tensions between service providers and families of people with learning disabilities
- Author:
- DUMBLETON Sue
- Journal article citation:
- Ethics and Social Welfare, 7(3), 2013, pp.282-292.
- Publisher:
- Taylor and Francis
- Place of publication:
- Abingdon
This paper will explore the power of history in affecting contemporary caring practice. Drawing on the author's personal experience as a social worker in Scotland, researcher and parent of a daughter with learning disabilities, the article will consider the ways in which the experience of (and to an extent, nostalgia for) the ‘heady days’ of de-institutionalisation continues to influence staff perceptions about their work. In doing so, this article will critique normative notions of choice and control that are at the heart of current moves towards self-directed support and personalised services. The author contends that staff who support people who have learning disabilities need something with which to compare and validate their practice. In the 1980s the hospitals were easily identifiable as something negative with which practice ‘in the community’ could be compared. In the twenty-first century the need for a comparator is still there, but the hospitals and many of their associated structures such as Adult Training Centres have gone. The paper argues that the family can be a contemporary structure against which current practice can be measured. (Edited publisher abstract)
Exploring the lived experiences of people with learning disabilities who are dying of cancer
- Authors:
- TUFFREY-WIJNE Irene, et al
- Journal article citation:
- Nursing Times, 18.5.10, 2010, pp.15-18.
- Publisher:
- Nursing Times
Participant observation was used with 13 people with learning disabilities with a cancer diagnosis, 10 of who terminally ill. The study aimed to explore their experiences. The main themes were: dependent lives; deprived lives; truth telling and understanding; the importance of families; inexperienced carers and unprepared services; and resilience. It is concluded that in order to understand the experiences of people with learning disabilities who are dying with cancer it is important to understand their previous life experiences and key relationships. Treating patients with respect, dignity and openness can make a positive difference to their care.
You can make a difference: improving primary care services for disabled people
- Author:
- GREAT BRITAIN. Department of Health
- Publisher:
- Great Britain. Department of Health
- Publication year:
- 2006
- Pagination:
- 12p.
- Place of publication:
- London
From December 2006, the Disability Discrimination Act 2005 (DDA) introduces a duty for public bodies to positively promote disability equality. This guide aims to assist front line primary care staff to improve the overall experience of disabled patients, their families and visitors and to make sure they play an active role in complying with the DDA.