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Now is the time: supporting disabled children and their families
- Author:
- SAMARASINGHE Shane
- Publisher:
- SCOPE
- Publication year:
- 2018
- Pagination:
- 20
- Place of publication:
- London
This report provides qualitative evidence on the experiences of families raising a disabled child and identifies some of the barriers in early years which can prevent disabled children fulfilling their potential. It draws on interviews with parents of disabled children and an analysis of survey data to examine current and historical attitudes towards disability. The research also commissioned a poll of parents of disabled children to test the findings from the research. Analysis of interview data identified a number of barriers facing families, which included: access to timely and appropriate information and support; negative attitudes and prejudice against disabled children; and the emotional stress experienced by many parents, which can make supporting their child more difficult. Quotations from parents are included throughout illustrate to illustrate the key themes. The recommendations include for Government appoint a Minister for Disabled Children and Families and to establish an early intervention and family resilience fund. The fund would include investment in emotional support for the whole family during the diagnosis journey, such as counselling, advocacy, and relationship advice. (Edited publisher abstract)