CORREIA Raquel Alveirinho, SEABRA-SANTOS Maria Joao, PINTO Paula Campos
Journal article citation:
Journal of Policy and Practice in Intellectual Disabilities, 14(1), 2017, pp.59-67.
Publisher:
Wiley
The major purpose of this study was to give voice to persons with intellectual disabilities (ID), and to explore their perspectives about their family quality of life (FQoL). Four focus groups were conducted with 17 men and women with ID (mild and moderate), aged between 16 and 53 years old. Full transcriptions of the focus group discussions were analyzed with the NVivo 10 software. The findings showed that persons with ID identify family relationships as the most important dimension for FQoL and that some differences between younger and older participants existed. Ethical and practical challenges, as well as the implications for research and intervention are discussed. The inclusion of individuals with ID as informants in research is a way to value their point of view, empower them, and recognise the knowledge that they are able to bring to research.
(Edited publisher abstract)
The major purpose of this study was to give voice to persons with intellectual disabilities (ID), and to explore their perspectives about their family quality of life (FQoL). Four focus groups were conducted with 17 men and women with ID (mild and moderate), aged between 16 and 53 years old. Full transcriptions of the focus group discussions were analyzed with the NVivo 10 software. The findings showed that persons with ID identify family relationships as the most important dimension for FQoL and that some differences between younger and older participants existed. Ethical and practical challenges, as well as the implications for research and intervention are discussed. The inclusion of individuals with ID as informants in research is a way to value their point of view, empower them, and recognise the knowledge that they are able to bring to research.
(Edited publisher abstract)
Subject terms:
quality of life, learning disabilities, families, family relations, user views;
Aims to provide an inter-disciplinary projection of the factors affecting the lives of Europe's children in the coming decade. Includes chapters on: childhood and the demographic transition; family trends and children's futures; family in society in transition; the mother-child relationship as a component of mental health; the role of fathers; psychological and ethical issues in assisted reproduction; communication and the special child; growing up in a violent family; family and employment; the child and the environment (including urban areas, quality of life, and education and recreation); children and education (including issues of literacy, incorporating children with learning difficulties into mainstream schooling; social exclusion in Greece; education for parenthood; children and health (including genetic advances, AIDS and children, community psychology, and health services for children in Portugal); and social policy for Europe's children. Concludes with a section on the future of Europe's children.
Aims to provide an inter-disciplinary projection of the factors affecting the lives of Europe's children in the coming decade. Includes chapters on: childhood and the demographic transition; family trends and children's futures; family in society in transition; the mother-child relationship as a component of mental health; the role of fathers; psychological and ethical issues in assisted reproduction; communication and the special child; growing up in a violent family; family and employment; the child and the environment (including urban areas, quality of life, and education and recreation); children and education (including issues of literacy, incorporating children with learning difficulties into mainstream schooling; social exclusion in Greece; education for parenthood; children and health (including genetic advances, AIDS and children, community psychology, and health services for children in Portugal); and social policy for Europe's children. Concludes with a section on the future of Europe's children.
Subject terms:
HIV AIDS, learning disabilities, mothers, parents, policy formulation, social exclusion, social policy, urban areas, assisted reproduction, child protection, children, community mental health services, comparative studies, demographics, education, families, environmental factors, health care;
University of Kent. European Institute of Social Services
Publication year:
1993
Pagination:
401p.
Place of publication:
Canterbury
Detailed account of social services in the twelve member states of the European Community. Contains sections on: organisation, responsibility and finance for social services; preventative services; children and families; elderly people; people with disabilities; addictions; illnesses; AIDS/HIV; socially excluded people; young people; services for migrants; names and addresses of major public and private social services agencies.
Detailed account of social services in the twelve member states of the European Community. Contains sections on: organisation, responsibility and finance for social services; preventative services; children and families; elderly people; people with disabilities; addictions; illnesses; AIDS/HIV; socially excluded people; young people; services for migrants; names and addresses of major public and private social services agencies.
Subject terms:
HIV AIDS, immigration, learning disabilities, mental health, mental health problems, older people, physical disabilities, poverty, prevention, private health care, social exclusion, social services, voluntary organisations, young people, addiction, alcohol misuse, black and minority ethnic people, children, drug misuse, families, health care;