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Quality of life: Its application to persons with intellectual disabilities and their families -introduction and overview
- Authors:
- BROWN Roy I., SCHALOCK Robert L., BROWN Ivan
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 6(1), March 2009, pp.2-6.
- Publisher:
- Wiley
The authors provide an overview of quality of life (QoL) conceptualization in the field of intellectual disabilities (ID), provide background information, and set an organizing framework for presenting concepts and concrete ideas for applying QoL. This framework is useful for three broad categories of application in the field of ID that form the application of QoL to individuals, groups of individuals, and to families. QoL thus can be used as a sensitizing notion that gives a sense of reference and guidance from the individual's perspective, focusing on the person and the individual's environment and provides a framework for conceptualizing, measuring, and applying the QoL construct. The applications also frame evaluation strategies for QoL research. The authors conclude that there is a need to identify relevant QoL evidence from the literature in a proactive way, and to ensure that it is methodologically sound, provides both quantitative and qualitative data, represents inter- and intra-individual variability, and illustrates changes over both the lifespan and across cultural settings.
Quality of life: challenges to research, practice and policy
- Author:
- BROWN Roy I.
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 14(1), 2017, pp.7-14.
- Publisher:
- Wiley
Quality of life (QOL) has been developing in the field of IDD since the early 1980s, and ever since there have been research, models, and theoretical constructs along with many recommendations. Ignored in its early development, QOL is now seen as important for support and intervention. The research has resulted in new insights yet there remain many challenges, three of which are discussed in this article. (1) Much QOL research requires the acceptance of parent and allied commentary that is regarded as subjective and frequently carries less weight than objective evidence. This can raise questions across disciplines regarding the validity and therefore the value of QOL in the field of research, practice, and policy. (2) Family quality of life (FQOL) research, which is an outgrowth of QOL in IDD, has resulted in a number of questions concerning our perception and management of family challenges. One is our understanding or lack of understanding of the process of inclusion, which is discussed suggesting the need for a much more clear articulation of exclusion and inclusion and its relevance to research and application within a QOL context. (3) QOL involves an holistic approach and much of this approach has been researched and applied in the field of IDD. It is posited in this article that the QOL approach should now be seen as a paradigm for research, policy, and intervention in which other procedures can be explored and addressed. To do so the paradigm requires further development and integration and an understanding of its specificity and breadth of potential application. Each of these issues is discussed and recommendations are put forward for action under the headings of Perceptual and Objective Data, Education of Personnel, Further Research and Application, and Policy Integration. (Publisher abstract)
Quality of life for people with disabilities: models, research and practice
- Author:
- BROWN Roy I.
- Publisher:
- Stanley Thornes
- Publication year:
- 1997
- Pagination:
- 369p.
- Place of publication:
- Cheltenham
Examines critically the concepts and issues surrounding quality of life; looks at new ways of assessing and managing in the different fields of disabilities; re-examines professional training; and takes a holistic approach to the concept of quality of life. Includes chapters on: focusing on the individual; assessing the quality of life of adults with profound disabilities; developmental systems and narrative approaches to working with families of people with disabilities; disabled children; disabled people and ageing; environmental design and quality of life; sexual rights and people with learning difficulties; and human spirituality in relation to quality of life.