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- Authors:
- BROCK Zoe, HEWLETT Davida
- Journal article citation:
- Llais, 99, Spring 2011, pp.6-7.
- Publisher:
- Learning Disability Wales
As part of a project to train sexual health nurses about making information accessible to people, a self-advocacy group for young people with learning disabilities created an accessible information booklet on sex and relationships. The process of creating the booklet and of delivering training to health professionals is briefly described.
Choice processes and satisfaction with care according to parents of children and young adults with intellectual disability in the Netherlands
- Authors:
- NEIBOER Anna P., et al
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 36(2), June 2011, pp.127-136.
- Publisher:
- Taylor and Francis
Quality information on care for people with intellectual disabilities has become available in the Netherlands in recent years. However, despite the expressed desire for access to information on care providers, use of the available information seems to fall short of expectations. There is limited information on the decision-making processes and on what influences it. This study was designed design to better understand the effects of providing decision-support information only (services/quality indicators) and providing a combination of information and personal decision-making support (counselling/peer meetings) on the choice process and satisfaction with care. The study population consisted of 147 parents who sought protected living arrangements, assisted daily activities, or both for their child. The form of support affected the choice process, but did not affect satisfaction with care. Decision-support information combined with personal decision-making support led to less frequent switching of care providers and to more satisfaction with choice information. The parents made limited use of online decision-support information, but did use decision counselling. It is concluded that this population is better supported with an intensified personal approach rather than through the currently available generic approach using websites.