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Making written information easier to understand for people with learning disabilities: guidance for people who commission or produce easy read information: revised edition 2010
- Author:
- GREAT BRITAIN. Department of Health
- Publisher:
- Great Britain. Department of Health
- Publication year:
- 2010
- Pagination:
- 37p.
- Place of publication:
- London
- Edition:
- Rev. ed.
Good practice guidance on commissioning and preparing easy read information for people with learning disabilities. Main areas covered include: defining easy read, commissioning material, and involving people with learning disabilities. Short case study examples are included. An additional section briefly covers other formats, such as audio, video/DVD, or interactive CD-ROMs or webpages. Annexes cover: Guidelines for producing Easy Read; Supplementary guidelines for professional typesetting and printing. The document is primarily at local and national public sector organisations who produce public information specifically for people with learning disabilities.
Passport to health
- Authors:
- BLAIR Jim, GLAYSHER Kirsty, COOPER Sue
- Journal article citation:
- Learning Disability Today, 10(1), January 2010, pp.28-30.
- Publisher:
- Pavilion
- Place of publication:
- Hove
To help improve the hospital experience and the standard for care for people with learning disabilities and their families, St Georges Hospital in south west London has been running a new passport scheme. The passport contains important information about the person, such as their health and health difficulties, likes and dislikes, and any medication that they may be on. It is divided into 3 sections: things that must be known; things that are important; and likes and dislikes. The information provides a good overview of the whole individual and not just their ill health, and enables the staff to understand them as people and thus provide better care. Passports have been widely distributed to people with learning disabilities, and are filled out by the person or their supporters before admission. Following the success of the scheme with people with learning disabilities, it has also been rolled out to people with dementia care needs, mental health problems, people who have experienced strokes, and younger people.
Explaining renal treatment to people with learning disabilities
- Authors:
- JENKINS Jean P., JONES ANN R., GRIFFITHS Christopher
- Journal article citation:
- Nursing Times, 4.11.08, 2008, pp.28-29.
- Publisher:
- Nursing Times
Patients with chronic kidney diseases need to understand different treatment options if they are to make informed choices about which to accept. This article outlines the development of a booklet by health care staff designed to improve information-giving to people with learning disabilities who have chronic kidney disease. The leaflet design also involved service users and a multidisciplinary team.
Inclusion and accessibility
- Author:
- BOX Leandra
- Journal article citation:
- Disability, Pregnancy and Parenthood International, 71, Winter 2010, pp.10-11.
- Publisher:
- National Centre for Disabled Parents
As part of the Strengthening Families, Strengthening Communities parent programme, resources were developed to meet the needs of parents with learning disabilities. An overview of the project is provided, with information on developing the accessible manual, recommendations to consider when working with parents with learning disabilities and feedback from the parents themselves. The project was developed by the Race Equality Foundation in partnership with learning disability organisation CHANGE.
All the juicy bits!
- Authors:
- BROCK Zoe, HEWLETT Davida
- Journal article citation:
- Llais, 99, Spring 2011, pp.6-7.
- Publisher:
- Learning Disability Wales
As part of a project to train sexual health nurses about making information accessible to people, a self-advocacy group for young people with learning disabilities created an accessible information booklet on sex and relationships. The process of creating the booklet and of delivering training to health professionals is briefly described.
A capital idea
- Author:
- MACKENZIE Alick
- Journal article citation:
- Learning Disability Today, 10(9), November 2010, pp.30-31.
- Publisher:
- Pavilion
- Place of publication:
- Hove
This article describes the work of enabledlondon, which has grown from an online leisure resource into a consultancy aimed at creating jobs and making a full life more accessible to people with learning disabilities and other excluded groups. As the number and nature of the projects taken on by enabledlondon has developed this has led to the opportunity to engage more people with different skills in paid freelance work. The initiative has a small group of people with learning disabilities who they call on to discuss how a project is shaping up, share thoughts with, and learn from, in order to shape the finished product. Other consultants test the product at the end. The article describes a few of the projects: Enabled Maps produces maps which are set out as photo story; Word Bank provides animations and explanations of difficult words; and the recruitment of a new member of staff has encouraged the setting up of a photography service.
Valuing people: health visiting and people with learning disabilities
- Authors:
- HARRISON Scott, BERRY Liz
- Journal article citation:
- Community Practitioner, 79(2), February 2006, pp.56-59.
- Publisher:
- Community Practitioners' and Health Visitors' Association
In a joint effort to challenge exclusion of people with learning disabilities, Warrington Primary Care Trust and Five Boroughs Partnership NHS Trust joined forces at a practical level. Two health visitors developed a comprehensive programme of socially inclusive healthcare aimed at engaging people with learning disabilities more fully in their health care. This article discusses Access All Areas - a comprehensive programme using a public health model of health care where people with learning disabilities are being supported to make healthy choices and given information in accessible formats to support those choices. Led by health visitors, staff from all agencies involved in the care and support of people with learning disabilities are being trained and engaged in order to raise the standards across organisations and prioritise the health and wellbeing of this marginalised group. Health visitors are leading locally in the implementation of both health improvement and long-term condition strategies.
Ten years plus of Total Communication
- Author:
- MILLER Nigel
- Journal article citation:
- Llais, 105, Winter 2012/13, pp.14-16.
- Publisher:
- Learning Disability Wales
The Speech and Language team of the Hywel Dda Local Health Board in Wales worked with services users to develop a Total Communication Strategy which could be implemented across three counties (Carmarthenshire, Ceredigion and Pembrokeshire) in Wales. The strategy aims to improve communication for service users with learning disabilities and communication difficulties. It is now formally recognised as a policy and is provided across all third sector homes, residential homes and tenancies, and social services and health setting. The package, which is briefly described, consists of: Total Communication training; signing training; making information accessible training; and separate training to cover specialist communication needs of services users with profound and multiple disabilities. Within each location there is a designated Total Communication coordinator who takes the role of promoting communication. A website has also been developed for service users.