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Development and psychometric properties of a self-report instrument for the assessment of sexual behaviour and concerns of people with mild intellectual disabilities (SEBECOMID-S)
- Authors:
- GIL-LLARIO Maria Dolores, et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 35(1), 2022, pp.134-142.
- Publisher:
- Wiley
Background: This paper presents a description of the development and psychometric properties of a self-report instrument for the assessment of sexual behaviour and concerns of people with mild intellectual disabilities (SEBECOMID-S). Methods and procedures: The study included 281 people with mild intellectual disabilities. The psychometric properties were examined through exploratory factorial analysis, descriptive statistics, and reliability indices. Results: The exploratory factor analyses offered a structure with three factors: concern about the appropriateness of their sexual behaviour, sexual practices performed, and safe sex practices. The model presents an excellent fit (χ2/df = 1.10, RMSEA = 0.019, CFI = 0.997, TLI = 0.995, and SRMR = 0.065). General test reliability was good (α = 0.77, Ω = 0.76). Conclusions: SEBECOMID-S is a valid and reliable tool to obtain objective information about the sexual behaviour and concerns of people with mild intellectual disabilities. The use of this instrument will make it possible to adjust their training to their real experiences, making it more effective. (Edited publisher abstract)
Analysis of the implementation level of best practices to facilitate the transition of young people with intellectual disabilities from childhood to adulthood in the Basque Country
- Authors:
- ATUTXA Garazi Yurrebaso, MARTINEZ-RUEDA Natxo, LASA Javier Galarreta
- Journal article citation:
- British Journal of Learning Disabilities, 49(1), 2021, pp.72-79.
- Publisher:
- Wiley
Background: Although studies have long identified the practices that must be included in transition programmes to improve the outcomes for young people with intellectual disabilities when becoming adults, less information is available regarding the degree to which those best practices are being developed and/or implemented. Materials and methods: This exploratory research assesses the implementation level of those best practices in a school programme to facilitate the transition to adult life in the Basque Country, Spain. The opinions of professionals were asked through an ad hoc questionnaire, and a case study of three schools was conducted through observation, documentation analysis, interviews and focus groups. Results and discussion: The professionals were found to have a positive opinion of the implementation degree of the best practices, except for the inclusion dimension. Although analysing the cases partially confirmed this opinion, contradictions emerge as these best practices cannot always be identified in the running of schools. The dimensions with major discrepancy are related to the individualised transition planning, family involvement and interagency collaboration. Conclusion: Despite having identified best practices in all dimensions, delving deep into the professionals' understanding concerning best practices is crucial. (Edited publisher abstract)
Supports for people with intellectual and developmental disabilities during the COVID-19 pandemic from their own perspective
- Authors:
- NAVAS Patricia, et al
- Journal article citation:
- Research in Developmental Disabilities, 108, 2021, p.103813.
- Publisher:
- Elsevier
Background: Individuals with intellectual and developmental disabilities (IDD) represent a particularly vulnerable group to the threats posed by COVID-19. However, they have not yet been given a voice on how their living conditions have been affected by COVID-19. Aims: This study aims to report the impact on people with IDD of COVID-19 and the response measures applied in Spain during the lockdown. Method: Data on 582 individuals with IDD were collected through a survey. Seven open questions were included to capture the perspectives of people with IDD on COVID-19 and its consequences. Content analysis was performed to identify themes and categories across participant responses. Chi-square tests were used to analyze the relationship between reporting a specific category and participants’ characteristics. Results: Supports have been conditioned by the living context. People living in specific settings had fewer natural supports, while those living with their family relied heavily on it. Participants also lacked supports considered necessary. It is worth stressing that persons with IDD have also provided support to others. Conclusions: Although people with IDD have generally received the assistance they need during the lockdown, it must be ensured that appropriate supports are provided regardless of the context in which they live. (Edited publisher abstract)
Intellectual disability and independent living: professionals’ views via a Delphi study
- Authors:
- FULLANA Judit, et al
- Journal article citation:
- Journal of Intellectual Disabilities, 24(4), 2020, pp.433-447.
- Publisher:
- Sage
- Place of publication:
- London
Background:: The Convention on the Rights of Persons with Disabilities (2006) states that people have the right to decide where to live and with whom. Professionals play a key role in supporting processes for independent living (IL). This research aimed to identify which ideas generated more or less consensus among professionals regarding the role of different agents involved in the processes of IL in Spain. Method: The Delphi method was applied to an expert panel of 25 professionals. Results: A high consensus was reached regarding the role that people with intellectual disabilities, their families and their natural support networks play in supporting IL processes, but there was less consensus on the role played by organizations and professionals. Conclusions: The study highlights the need to promote practices that favour the decision-making capacity of individuals to move towards models of support based on community and the human rights model. (Edited publisher abstract)
Improving healthcare access for older adults with intellectual disability: what are the needs?
- Authors:
- NAVAS Patricia, et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 32(6), 2019, pp.1453-1464.
- Publisher:
- Wiley
This qualitative study was carried out in Spain with the aim of identifying the changes that the health system should make to improve healthcare access for older adults with intellectual disability. Three hundred and sixty‐nine family members and professionals expressed their opinion on how healthcare access could be improved. Participants responded to two open‐ended questions included in a general survey about the health status of older individuals with intellectual disability. Most informants were women and professionals who had known the person with intellectual disability for more than 12 months. A system of categories, which showed good inter‐rater agreement, was developed to analyse participants’ written responses. Both family members and professionals emphasized the need to improve disability training for healthcare practitioners and highlighted the urgent need for flexibility in the structure of a healthcare system that currently overlooks the specific needs of this vulnerable population. (Publisher abstract)
The dream school: mind‐changing perspectives of people with intellectual disabilities
- Authors:
- NIETO Cristina, MORINA Anabel
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 32(6), 2019, pp.1549-1557.
- Publisher:
- Wiley
This study analyses the characteristics that define an ideal school, from the perspective of people with intellectual disabilities. The researchers carried out an inclusive research qualitative study with 36 Spanish adults with intellectual disabilities. Information from individual interviews about educational inclusion was summarized on to notecards, allowing participants to place messages into categories on a poster board. Identified themes included facilities and resources; values and rules; intimidation; what students learn; how students learn best; exams; teachers; and classmates. Results highlight the importance of inclusive values and the need for a curriculum that meets the needs of all students. (Edited publisher abstract)
Application of the Rasch rating scale model to the assessment of quality of life of persons with intellectual disability
- Authors:
- GOMEZ Laura E., et al
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 37(2), June 2012, pp.141-150.
- Publisher:
- Taylor and Francis
Individual quality of life is a concept referring to core domains influenced by personal characteristics and environmental factors, and has received increasing attention in the field of intellectual disability. This study aimed to test and improve the psychometric properties of the INTEGRAL quality of life scale (a questionnaire to measure quality of life for adults with intellectual disability), including the observed fit of data to the Rasch model. The research involved a sample of 271 adults from provinces across Spain who had intellectual disability and used social services, and questionnaires were completed by qualified interviewers. The article describes and discusses the methodology, data analysis and results.
Love and loving relationships in people with learning disabilities: a scientific approach
- Authors:
- MORENTIN Raquel, et al
- Journal article citation:
- Tizard Learning Disability Review, 13(2), August 2008, pp.33-41.
- Publisher:
- Emerald
The study reported here was based on research with 376 people with learning disabilities in Spain, and aimed to analyse their appraisal of love, loving relationships and related issues (satisfaction, role of the family and self-determination). A Likert-type measure was developed, and the outcomes indicate that the measures have satisfactory psychometric characteristics. It is also evident that the theoretical model of love for people without disabilities can be applied to individuals with disabilities, and includes three key factors: commitment, stability and idealisation; passion and physiological arousal; and intimacy and romanticism. It also indicates that the perceptions of love in people with learning disabilities are relatively idealised and influenced by context, and interference from family and self-determination are key issues.
Support network on disability: a resource guide to disability groups and organisations
- Author:
- ARAMAYO Manuel
- Publisher:
- Manchester Metropolitan University. Interpersonal and Organisational Development Research Group
- Publication year:
- 2000
- Pagination:
- 98p.
- Place of publication:
- Manchester
Directory and resource guide to disability groups and organisations arranged alphabetically by disability.
Quality of life of workers with an intellectual disability in supported employment
- Authors:
- VERDUGO M.A., et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 19(4), December 2006, pp.309-316.
- Publisher:
- Wiley
This study investigate what characteristics of supported employment increase quality of life and whether quality of life is higher in supported employment workers or the sheltered ones in Spain. Typicalness, the degree to which the characteristics of a job are the same as those of co-workers without a disability in the same company, was considered as one of the supported employment characteristics in the analysis. Two groups were put together to obtain the data using two questionnaires that were administered by trained professionals. Correlational analysis of the data and manova were also employed. No differences were found between the two groups regarding quality of life but results indicate that in supported employment, high levels of typicalness are associated with a higher quality of life and that the handling of certain characteristics of support and the job, for example the hours of direct external support, are related to the enhancement of quality of life of the workers. Workers in supported employment show the same quality of life as those in sheltered employment centers. In Spain, the greater the typicalness of the employment, the higher the quality of life. The implications of this for the amount of direct external support for workers with disability is that such support should be used only when absolutely necessary – the minimum support necessary to encourage development.