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Conceptualizing inclusive research with people with intellectual disability
- Authors:
- BIGBY Christine, FRAWLEY Patsie, RAMCHARAN Paul
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 27(1), 2013, pp.3-12.
- Publisher:
- Wiley
A comprehensive review of the peer reviewed literature and key texts was undertaken to more clearly conceptualize inclusive research with people with intellectual disability and identify the issues associated with ways of approaching it. Three approaches to inclusive research were identified: advisory, leading and controlling, and collaborative group. Using the literature and the authors' own experience, each approach is illustrated and discussed. A clearer conceptual framework is developed to guide researchers and administrators as they consider inclusive research and its feasibility to particular research questions. A strong self-advocacy movement is identified as one of the conditions necessary for inclusive research to flourish. (Edited publisher abstract)
Out of order
- Authors:
- RAMCHARAN Paul, McCLIMENS Alex, ROBERTS Bronwen
- Journal article citation:
- Community Care, 22.06.06, 2006, pp.34-35.
- Publisher:
- Reed Business Information
Community care, as it affects individuals labelled with learning difficulties, offers a chance of inclusion within mainstream society. More recently, the government's policy on antisocial behaviour orders threatens to encroach on ideas of tolerance, acceptance and diversity. The authors discuss the potential effects on people with learning difficulties.
Reconciling value-directed and value-relative approaches to evaluation research: the case of the service packaging project
- Authors:
- RAMCHARAN Paul, GRANT Gordon, MCGRATH Morag
- Publisher:
- University of Wales. Centre for Social Policy Research and Development
- Publication year:
- 1990
- Pagination:
- 34p.,bibliog.
- Place of publication:
- Bangor
Paper explaining a research approach which looked at the outcomes of services provided to people with learning difficulties in Wales. Part of the All Wales Strategy.
A collaborative group method of inclusive research
- Authors:
- BIGBY Christine, FRAWLEY Patsie, RAMCHARAN Paul
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 27(1), 2013, pp.54-56.
- Publisher:
- Wiley
This study proposes one method of inclusive research with people with learning disabilities, the ‘collaborative group' approach. It examines the processes used to conduct a study involving academics and self-advocates, presenting findings derived from an inductive analysis of field note data, interview and meeting transcripts. Five components are identified: shared and distinct purposes of participants equally valued, shared involvement and distinct contributions equally valued, flexible, adapted research methods, working as a group with trusting relationships and dispersed power, and scaffolding for inclusion. This collaborative group method potentially results in better research than either academics or self-advocates could achieve alone and has multiple knowledge outcomes with differing accessibility and complexity. (Edited publisher abstract)
Valuing People and research: outcomes of the Learning Disability Research Initiative
- Authors:
- GRANT Gordon, RAMCHARAN Paul
- Journal article citation:
- Tizard Learning Disability Review, 14(2), April 2009, pp.25-34.
- Publisher:
- Emerald
Prior to the launch of Valuing People (DH, 2001), Gordon Grant and Paul Ramcharan were appointed by the Department of Health as co-ordinators of the Learning Disability Research Initiative (LDRI). The LDRI was a £2m research initiative, funded through the Department of Health's Policy Research Programme, linked to the implementation of Valuing People. The LDRI was brought to a conclusion in November 2007. This paper summarises the main findings of the LDRI and includes a listing of the resultant 13 studies. Reference is made to Valuing People's main principles of rights, choice, inclusion and independence. The authors conclude by suggesting priorities for extending the evidence base.
Resilience in families with children and adult members with intellectual disabilities: tracing elements of a psycho-social model
- Authors:
- GRANT Gordon, RAMCHARAN Paul, FLYNN Margaret
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 20(6), November 2007, pp.563-575.
- Publisher:
- Wiley
This paper seeks to illumine how families with children and adult members with intellectual disabilities manage to manifest a buoyant and durable capacity over time. It is therefore concerned centrally with the idea of resilience. Drawing from diverse theoretical literatures from child development and protection and gerontology, the paper begins with a review of constructions of resilience. In an attempt to assess where there seems to be support for resilience in families, the core of the paper tests empirical evidence about positive experiences of families supporting children and adults with intellectual disabilities against the theoretical literature on resilience. The findings are used to suggest conditions under which resilience is produced and maintained, and to identify emergent elements of a psycho-social model of resilience in families with children and adult members with intellectual disabilities.
Views and experiences of people with intellectual disabilities and their families: (1) the user perspective
- Authors:
- RAMCHARAN Paul, GRANT Gordon
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 14(4), 2001, pp.348-363.
- Publisher:
- Wiley
Presents a descriptive summary of the views and experiences of people with intellectual disabilities (IDs) as they have been represented in research and other literature. The authors develop further the DoH Research Initiative on Learning Disability: Proposal for a Research Review on the Views and Experiences of Users and Carers, a review report commissioned by the Department of Health on the views and experiences of users and family carers focusing on the ways in which research might contribute to policy and practice. The literature review of user views and experiences produced three broad categories: testaments of life, which are mainly ethnographies and life histories; user movement media produced in an accessible format for people with IDs or by people with IDs themselves; and research based studies in their varying forms. It is demonstrated that no single approach is able to encompass all the interests of knowledge production, policy planning, and action or practice on its own. A more coordinated and broad-based research approach to user views and experiences is advocated.
Views and experiences of people with intellectual disabilities and their families: (2) the family perspective
- Authors:
- GRANT Gordon, RAMCHARAN Paul
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 14(4), 2001, pp.364-380.
- Publisher:
- Wiley
Examines findings from research into the views and experiences of families of people with intellectual disabilities (IDs). It draws from the authors' report on the views and experiences of users and carers, the DoH Research Initiative on Learning Disability: Proposal for a Research Review on the Views and Experiences of Users and Carers, which was commissioned by the Department of Health, and was intended to inform some of the thinking behind Valuing People and the associated research programme. This article traces the development and scope of research on family carers in relation to the personal and psychological experience of care as well as in relation to receipt of services. Theoretical and methodological gaps in the literature are outlined. Social systems theory is proposed as a means of addressing the requirements of a future research agenda about family care.
Valuing people and research: the learning disability research initiative: overview report
- Authors:
- GRANT Gordon, RAMCHARAN Paul
- Publisher:
- Great Britain. Department of Health
- Publication year:
- 2007
- Pagination:
- 146p., bibliog.
- Place of publication:
- London
This initiative is designed to address two main questions: What are the main lessons to be drawn from the learning disability research initiative (LDRI), a programme of 13 studies commissioned to examine different aspects of the implementation of Valuing People?; and What is the future for research linked to a refreshed Valuing People and the service modernisation agenda building on existing research capability and knowledge
Researching Valuing People
- Authors:
- GRANT Gordon, RAMCHARAN Paul
- Journal article citation:
- Tizard Learning Disability Review, 7(3), July 2002, pp.27-33.
- Publisher:
- Emerald
Prior to the launch of Valuing People, the authors were appointed by the Department of Health as co-coordinators of the learning disability research initiative People with Learning Disabilities: Services, Inclusion and Partnership, which was intended to inform the implementation and outcome of the White Paper Valuing People during its early years. In this article the authors describe the development of the research initiative, the research commissioning process and intentions for a research communication strategy.