Summarises the main themes discussed at an event held for families who had children and young people in Assessment and Treatment Units, or who had recently had them in there. The event aimed to find out where the issues began, what support had been available, what support was needed and also what recommendations they had. The event was attended by 29 parents from across the England. The findings are discussed around 14 themes covering issues families raised and recommendations based on the solutions they identified. The themes cover: social care and local services; special education needs, personalisation, legal support and information, parents being blamed rather than seen as a resource, lack of understanding of autism, criminal justice, mental health, the complaints, care and treatment reviews, medication, staffing and assessment treatment units, and the discharge experience. Based on the findings of the event the report makes a series of recommendations.
(Edited publisher abstract)
Summarises the main themes discussed at an event held for families who had children and young people in Assessment and Treatment Units, or who had recently had them in there. The event aimed to find out where the issues began, what support had been available, what support was needed and also what recommendations they had. The event was attended by 29 parents from across the England. The findings are discussed around 14 themes covering issues families raised and recommendations based on the solutions they identified. The themes cover: social care and local services; special education needs, personalisation, legal support and information, parents being blamed rather than seen as a resource, lack of understanding of autism, criminal justice, mental health, the complaints, care and treatment reviews, medication, staffing and assessment treatment units, and the discharge experience. Based on the findings of the event the report makes a series of recommendations.
(Edited publisher abstract)
Reports on a survey to investigate the support and information needs of families of disabled children and young people who are approaching, or who are currently in, crisis. The survey asked parents what support families had had, how easy it was to find and how useful it was. The survey received 86 responses from 53 different local authority areas across England. The age range of the person with a disability was between 4 and 55. Direct quotations from the survey are included throughout. It found that just over half of the families reported being given any advice on where to seek help. When advice and guidance was given, families often found that help was hard to get and inadequate. Once families founds support, only half of families felt the support package was helpful. Families identified emotional support, specialist advice, circles of support, advocacy and legal advice as the top priorities to sustain and support them. Based on the results of the survey, Justice Together plans to develop support for families at two 2 levels: generic support for families approaching or in crisis, including information, counselling and support, and access to a helpline; and intensive advocacy work for a limited number of families.
(Edited publisher abstract)
Reports on a survey to investigate the support and information needs of families of disabled children and young people who are approaching, or who are currently in, crisis. The survey asked parents what support families had had, how easy it was to find and how useful it was. The survey received 86 responses from 53 different local authority areas across England. The age range of the person with a disability was between 4 and 55. Direct quotations from the survey are included throughout. It found that just over half of the families reported being given any advice on where to seek help. When advice and guidance was given, families often found that help was hard to get and inadequate. Once families founds support, only half of families felt the support package was helpful. Families identified emotional support, specialist advice, circles of support, advocacy and legal advice as the top priorities to sustain and support them. Based on the results of the survey, Justice Together plans to develop support for families at two 2 levels: generic support for families approaching or in crisis, including information, counselling and support, and access to a helpline; and intensive advocacy work for a limited number of families.
(Edited publisher abstract)
Subject terms:
surveys, families, parents, information needs, children, young people, autistic spectrum conditions, mental health problems, learning disabilities, young adults, user views, access to services, crisis intervention, advice services;