Search results for ‘Subject term:"learning disabilities"’ Sort:
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“LEARN”ing what is important to children and young people with intellectual disabilities when they are in hospital
- Authors:
- OULTON K., SELL D., GIBSON F.
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 31(5), 2018, pp.792-803.
- Publisher:
- Wiley
Background: The need to review health service provision for children and young people (CYP) with disabilities and their families in the United Kingdom has been expressed in multiple reports: the most consistent message being that services need to be tailored to meet their individual needs. Our aim was to understand the hospital‐related needs and experiences of CYP with intellectual disabilities. Method: An ethnographic study of a neurosciences ward and outpatient department was conducted within a paediatric tertiary hospital setting. Results: Five themes, developed using the acronym LEARN, explained what is important to CYP with intellectual disabilities in hospital: (i) little things make the biggest difference, (ii) eliminate unnecessary waiting, (iii) avoid boredom, (iv) routine and home comforts are key and (v) never assume. Conclusions: It is imperative that the present authors continue to challenge the idea that it is acceptable to exclude CYP with intellectual disabilities from research because of their inability to participate. (Edited publisher abstract)
Services for young people and adolescents: supplementary report to the national audit of specialist inpatient healthcare services for people with learning difficulties in England
- Author:
- HEALTHCARE COMMISSION
- Publisher:
- Healthcare Commission
- Publication year:
- 2008
- Pagination:
- 22p.
- Place of publication:
- London
Part of the material produced by the Healthcare Commission to support the findings from the national audit of specialist inpatient healthcare services for people with learning difficulties in England, this report provides details on the findings relating specifically to services for young people and adolescents. It is intended to be read alongside the full report of the audit, 'A Life Like No Other'. The exercise identified eight specialist inpatient healthcare services for adolescents across England, and as part of the audit six of these were visited. This report sets out the findings in the following areas: number and type of services; peer review visits; my needs; my choices; my day; my rights; me, and others; my wellbeing; staff; monitoring services; commissioning issues. Conclusions and recommendations are then summarised. It concludes that, from the evidence in the audit, young people in specialist services for adolescents are generally safe and protected from abuse, have their health needs met overall, and are well supported by staff, who receive the mandatory training they need to help young people. It discusses the findings and issues raised, and describes proposed next steps.
A pilot of interventions to improve health care in adolescents with intellectual disability
- Authors:
- LENNOX Nicholas G., REY-CONDE Therese F., FAINT Sonya
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 21(5), September 2008, pp.484-489.
- Publisher:
- Wiley
People with intellectual disability often have poor health which may be improved through better health advocacy and enhanced communication with their general practitioner. To this end, this study examined the use of the Comprehensive Health Assessment Program (CHAP) and the Ask health diary previously developed for adults with intellectual disability and trialled their use in adolescents attending a Special School in Australia. A CHAP health review completed by both carers and General Practitioners was used to collect information about adolescents' health. An Ask health diary was used in school to learn health advocacy and communication skills. Thirty students, their parents and their eight teachers participated in the trial. The CHAP health review resulted in a mean of 5.2 health conditions being found, and 1.4 planned actions by the general practitioner per adolescent. The Ask health diary was highly accepted by the students and teachers. There did not appear to be any increase in communication skills of the students after using the diary in the school for one term. The CHAP health review and Ask health diary have the potential to improve the health of adolescents with intellectual disability.
Quick guide: commissioning for transition to adult services for young people with special educational needs and disability (SEND)
- Author:
- NHS ENGLAND
- Publisher:
- NHS England
- Publication year:
- 2018
- Pagination:
- 18
- Place of publication:
- London
This quick guide aims to help health commissioners and providers tackle the challenges involved in implementing the joint commissioning of services for children and young people with special educational needs and disability (SEND) introduced by Part 3 of the Children and Families Act 2014. The guide is based on the ten key transition principles published by the National Institute for Health and Care Excellence (NICE) in 2016. These are: participation and co-production; person-centred transition planning; clear leadership and accountability; strategic vision across children's and adults' services; understanding transition needs; transition process and protocols; joint commissioning; training and development of staff; role of named worker; and needs of specific groups. Local areas can use this as a resource to inform their own practice. (Edited publisher abstract)
Attitudes of healthcare staff in the treatment of children and adolescents with intellectual disability: a brief report
- Author:
- ONG Natalie
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 42(3), 2017, pp.295-300.
- Publisher:
- Taylor and Francis
Background: Children with an intellectual disability (ID) have complex health needs that extend beyond the expected cognitive deficits, affecting a myriad of developmental domains. These children frequently receive inadequate health care such that their needs remain poorly managed. Methods: Staff from the Sydney Children’s Hospital Network (N = 160) completed a survey on attitudes, experiences, and training satisfaction when working with patients with ID. The 48-question needs analysis survey was distributed electronically to staff from a variety of disciplines and experience levels. Results: Although staff considered themselves broadly competent in caring for children with ID, they were less confident in specific skills, such as managing associated challenging behaviours in the clinic. As confidence in skills such as these decreased, the desire for further training increased. (Publisher abstract)
Development and evaluation of The KIT: Keeping It Together™ for Youth (the 'Youth KIT') to assist youth with disabilities in managing information
- Authors:
- FREEMAN M., et al
- Journal article citation:
- Child: Care, Health and Development, 41(2), 2015, pp.222-229.
- Publisher:
- Wiley
Background: This article presents findings from the development and evaluation of The KIT: Keeping It Together™ for Youth (the ‘Youth KIT’). The Youth KIT is a resource intended to assist youth with disabilities during their teenage years and during the transition to adulthood to give information to others about themselves, get from others about themselves, and organize their own information to the best of their ability. Methods: Thirty-six youth between the ages of 12 and 25 with physical and developmental disabilities were active participants in the development of the Youth KIT and partnered with a multidisciplinary team to conduct the qualitative evaluation. Focus groups and individual interviews were used in three phases of evaluation. Results: The results of qualitative content analysis found the Youth KIT to be useful for a variety of youth in different contexts. The themes that emerged about the utility and impact of the Youth KIT were: (1) self-discovery for youth; and (2) the importance of the ‘fit’ between youth and mentors to support youth as they started to use the Youth KIT. Conclusion: Clinical implications for healthcare providers working with youth during the transition to adulthood include recognition that discussions about adult goals should be a continuous dialogue throughout adolescence rather than a ‘special’ conversation occurring at the time of discharge from paediatric services. (Publisher abstract)
Living in transition: experiences of health and well-being and the needs of adolescents with cerebral palsy
- Authors:
- BJORQUIST E., NORDMARK E., HALLSTROM I.
- Journal article citation:
- Child: Care, Health and Development, 41(2), 2015, pp.258-265.
- Publisher:
- Wiley
Background: Transition to adulthood for adolescents in general is a multifaceted process, and for adolescents with cerebral palsy (CP) it also involves transition from child- to adult-oriented support. CP entails a variety and combination of disabilities, which in association with external factors may make the transition to adult health services difficult. The aim of this study was to gain a deeper understanding of how adolescents with CP experience their own health, well-being and need of support during their transition to adulthood. Methods: An inductive qualitative approach was used based on interviews with 12 adolescents with CP aged 17–18 years and living in Sweden. Manifest and latent content analysis was used for the analysis of data. Results: The results are described in the main theme ‘Living in transition and looking forward to being an adult, but not feeling ready yet and being in need of further support’. Five subthemes highlight the adolescents' experiences of belonging to a family, of the importance of friends and love, of managing daily activities, being surrounded by support and having hopes for the future. Conclusions: Interviews with adolescents with CP provide valuable information for the planning of transition programmes and for the support of adolescents with disabilities who are in the transition to adult living. According to the adolescents in this study, the support should be flexible and not be fixed to biological age. Personal, individualized information and support was desired by the adolescents in order to be able to manage their own transition. One option to facilitate transition is the stepping-stone of being close to parents or staff members during the first phase, after leaving the parental home. (Publisher abstract)
The feasibility of using local general practice data to estimate the prevalence of childhood disabling conditions
- Authors:
- LINGHAM Richard, et al
- Journal article citation:
- Child: Care, Health and Development, 39(1), 2013, pp.55-60.
- Publisher:
- Wiley
Aims: This study aimed to assess the feasibility of using general practice data to estimate the prevalence of potentially disabling conditions in young people aged 0–18 years. Background: There are limited data that estimate the prevalence of disabling conditions in children and young people and are suitable to inform service planning. This has been highlighted by several government documents and parent groups. The current study analysed anonymised data from 5 general practices in Bristol, UK (n = 10 756 children and young people aged 0–18 years). A comprehensive Read Code list was created to identify children and young people with potentially disabling conditions and the severity of conditions was compared with General Practitioner completed free text within the computerised system. Results: Across these practices an average 4.9% (95% confidence intervals 4.5–5.3) of children and young people had a significant physical or mental difficulty that could impact on their daily living. The most common disabling conditions in our sample were in the ICF category of mental function 36% (including general and specific developmental delays and mental health diagnoses). Conclusion: This study suggests that routinely collected data may provide much needed robust information to inform service provision for some of the most vulnerable children and young people in our communities. It also highlights the need for improved data systems for disability services. (Publisher abstract)
Health inequalities experienced by children and young people with intellectual disabilities: a review of literature from the United Kingdom
- Authors:
- ALLERTON Lindsay A., WELSH Vicki, EMERSON Eric
- Journal article citation:
- Journal of Intellectual Disabilities, 15(4), December 2011, pp.269-278.
- Publisher:
- Sage
- Place of publication:
- London
Evidence has highlighted that not only do people with intellectual disabilities have poorer health, but that the differences in health status are to a significant extent avoidable and consequently unjust. The aim of this literature review is to synthesise evidence on the prevalence and determinants of health conditions and impairments among children and young people with intellectual disability in the United Kingdom. Several databases were systematically searched for relevant studies published in 2010-2011. In addition, evidence from a 2002 and a 2010 literature review on health inequalities among individuals of all ages with intellectual disability was also reviewed. The review concludes that children with intellectual disability in the UK are likely to experience health inequalities in a number of areas, specifically in relation to health conditions that may increase the risk of serious ill health in later life, reduce quality of life, and act as barriers to social inclusion. The evidence suggests that these health inequalities are associated with several preventable environmental determinants.
Steering a new course
- Author:
- COCKBURN Barbara
- Journal article citation:
- Care and Health Magazine, 92, 2004, pp.16-18.
- Publisher:
- Care and Health
Discusses concerns about plans to transfer 7 Department of Health bodies (National Institute for Mental Health in England, Valuing People Support Team, Health & Social Care Change Agent Team, National Child and Adolescent Mental Health Services Support Service, Integrated Care Network, Integrating Community Equipment Services, and Change for Children) to form the Care Services Improvement Partnership (CSIP) under SCIE. Looks at their record and the contribution they are expected to make to social care excellence. Gives facts about who makes up CSIP.