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Subjective quality of life of women with intellectual disabilities: the role of perceived control over their own life in self-determined behaviour
- Authors:
- STRNADOVA Iva, EVANS David
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 25(1), January 2012, pp.71-79.
- Publisher:
- Wiley
Using participants recruited in Australia and the Czech Republic, this study examined the subjective perception of quality of life in adult women with intellectual disabilities, the level of self determination shown, and the barriers to self-determination. Women aged 40 years or older with intellectual disabilities were recruited through agencies for people with intellectual disabilities in Sydney (28 women) and Prague (27 women). Semi-structured interviews were carried out, transcribed and analysed using a grounded theory approach. The strongest theme identified in the interviews was the lack of control participants perceived they had over their lives. The article discusses the findings, with examples from the interviews, including causes of women experiencing reduced or lack of control over their own lives and strategies to gain control over their lives.
Effect of perceived stigmatisation on the quality of life among ageing female family carers: a comparison of carers of adults with intellectual disability and carers of adults with mental illness
- Authors:
- CHOU Y.C., et al
- Journal article citation:
- Journal of Intellectual Disability Research, 53(7), July 2009, pp.654-664.
- Publisher:
- Wiley
Little account has been taken of quality of life (QoL) among family carers of adults with an intellectual disability (ID) and family carers of adults with a mental illness (MI), particularly the female ageing carers' perceived stigma. This study explores whether there are differences in the significant predictors of female ageing family carers' QoL between family carers of adults with ID and family carers of adults with MI and aims to examine the effect of these differences in stigma on carer QoL between the two groups. A structural survey interview was administered to 350 female family carers supporting persons with ID and 66 female carers supporting persons with MI; the carers were aged 55 years and older, and the interviews were carried between July 2006 and April 2007 at the carers' homes in a county in Taiwan. The survey package contained standardised scales to measure the carer's stigma, social support, QoL and health as well as adult and carer socio-demographic data. The results highlight that in both groups the ageing female family carers' health and social support were strongly associated with the level of their QoL even though there was also a strong effect of carers' perceived stigma on their QoL. Contrary to previous findings, ageing female family carers of adults with MI had a higher level of QoL compared with the carers of adults with ID. Hierarchical regressions show a stronger effect of perceived stigma on the carer QoL among the family carers of adults with MI than among the carers of adults with ID. The authors conclude that this study suggests that attempts to improve these female older family carers' health and social support must include their lifelong unmet needs in terms of how to cope with the perceived stigma associated with their position.
Life members: women with intellectual disabilities and aging
- Author:
- WALSH Patricia Noonan
- Journal article citation:
- Journal of Gerontological Social Work, 38(1/2), 2002, pp.121-135.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
Reviews some of the dilemmas faced by women with intellectual disabilities as they age and are trying to stake out a place in their communities. The article draws on recent testimony of older women themselves, their carers and advocates about optimal paths to healthy ageing. The author suggests that more flexible, individualized forms of support are likely to enhance the quality of longer lives and that supports for women with intellectual disabilities can be appraised in terms of efficacy in strengthening women's membership of their respective communities as they age. The author speaks to the implications for best practice on the part of professionals and othercarers who work with and support women as they age and proffers suggested research strategies for future women's studies.
Health, age, and gender: how do women with intellectual disabilities fare?
- Author:
- ANDERSON Deborah J.
- Journal article citation:
- Journal of Gerontological Social Work, 38(1/2), 2002, pp.137-159.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
The 1994-1995 Disability Supplement to the National Health Interview Survey (administeredto a representative sample of the U.S. population) was analyzed for women age 30 and older with intellectual disabilities (ID), developmental disabilities (DD) or both, in order to describe their functioning as they aged in the community. Definitions of ID and DD consistent with professional and legal standards were developedand adapted to the NHIS-D questions. An estimated .56% of the approximately 77 million civilian, noninstitutionalized, women age 30 and older in the United States have one of these disabilities. Compared with women in general,women with these disabilities had negative perceptions of their health status, particularlywomen with DD and health indicators tended to support their perceptions. Most were independent in activities of daily living , but instrumental activities of daily living posed more of a callenge, and limitations in major activities were common as was a high rate of distress and psychosocial difficulties.
Healthy ageing - adults with intellectual disabilities: women's health and related issues
- Authors:
- WALSH P.N., et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 14(3), 2001, pp.195-217.
- Publisher:
- Wiley
This report has been prepared by the Ageing Special Interest Research Group of the International Association for the Scientific Study of Intellectual Disabilities (IASSID) in collaboration with the Department of Mental Health and Substance Dependence and the Programme on Ageing and Health, World Health Organisation (WHO), Geneva, Switzerland. Explores factors related to well-being and quality of life for women, examines and defines sex-linked differences in their life experiences and opportunities and to define their distinctive vulnerabilities - including research on health status and access to healthcare.