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Complex behaviour service: content analysis of stakeholder opinions
- Authors:
- INCHLEY-MORT Sophie, HASSIOTIS Angela
- Journal article citation:
- Advances in Mental Health and Intellectual Disabilities, 8(4), 2014, pp.228-236.
- Publisher:
- Emerald
Purpose: Positive behaviour support has been positioned by current government policy as an important intervention for people with intellectual disabilities who display behaviours that challenge services. However, little is known about service user or carer opinions towards the use of this kind of model. The paper aims to discuss this issue. Design/methodology/approach: Opinions and experiences of 25 carers and six service users were collected through semi-structured interview as part of the evaluation of an enhanced service, Complex Behaviour Service, based on positive behaviour support principles. Findings: Content analysis indicated that the service was seen as acceptable and useful and that positive experiences of the service linked to: frequency and availability of the service; talking about behaviour and being listened to; understanding, and change in, the service user, carer and behaviour. Originality/value: This adds to the small but growing literature on service user and carer opinions towards specific interventions and highlights themes that future services could consider in delivering evidence-based care. (Publisher abstract)
Randomised controlled trials in learning disabilities: a review of participant experiences
- Authors:
- ROBOTHAM Daniel, HASSIOTIS Angela
- Journal article citation:
- Advances in Mental Health and Learning Disabilities, 3(1), March 2009, pp.42-46.
- Publisher:
- Emerald
Randomised controlled trials (RCTs) are considered the bedrock of evidence-based practice. However, they raise important issues about participant recruitment and the ethics of group allocation. This article reports relevant literature on how participants with learning disabilities and other stakeholders experience RCTs. Five quantitative studies have been published, one reporting on the views of people with learning disabilities and the remainder on carers' views. Despite the methodological limitations of the studies, carers appear to have a positive experience of RCT participation, and people with learning disabilities are able to understand certain aspects of research methods. The authors conclude that stakeholders are not hostile to RCTs, but the therapeutic misconception may affect their experiences. Further research is required to investigate interventions that might help promote RCTs in learning disabilities.