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Parenting Chrissy: a transformational journey through the hazards of the disability system
- Author:
- GREGORY Jane
- Publisher:
- Centre for Welfare Reform
- Publication year:
- 2017
- Pagination:
- 41
- Place of publication:
- Sheffield
This autoethnography explores the journey of a mother of a woman with intellectual disabilities whose complex needs and behaviour has presented significant challenges to services. The biographical accounts include the experiences of receiving the daughter’s diagnoses of a rare chromosome disorder and autism in her adulthood. The former allowed a unique story which emerged from phenomena that is being swept in by the tide of the technological revolution in the detection of gene mutations and structural genomic variations causing learning disability. Within the theoretical frameworks of critical disability studies, social constructionism and family systems approaches, the author weaves 31 years of autobiographical accounts with cultural and structural factors that influence the experiences of parents of children with learning disabilities. Included in the investigations were the uncovering of new knowledge about the culture of intellectual disability and an examination of the events leading up to the daughter’s four-year incarceration in an institution. Evidence of oppressive, dehumanising social policies and practices intersect with new themes, including the journey from asking ‘why?’ to knowing, and chasing new ‘fixes’ to the liberating possibilities of policy changes and transformative validation. (Edited publisher abstract)
Bringing up a challenging child at home: when love is not enough
- Author:
- GREGORY Jane
- Publisher:
- Jessica Kingsley
- Publication year:
- 2000
- Pagination:
- 188p.,list of orgs.,bibliog.
- Place of publication:
- London
The author describes bringing up her daughter, now aged eleven, who has learning difficulties, mental health problems and challenging behaviour. She relates her struggles to cope with her daughters difficult behaviour, the effects on the rest of the family, and her attempts to understand the reasons behind it. Offering practical advice for other parents, she explains how she got the right support and effective treatment. Her story provides professionals as well as parents with a unique insight into what it is like to bring up a complex and challenging child.