Search results for ‘Subject term:"learning disabilities"’ Sort:
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Lived experience of restraint, seclusion and segregation (RSS): stories and recommendations for safer care
- Authors:
- ADVONET, CHANGE
- Publishers:
- Advonet, Change
- Publication year:
- 2020
- Pagination:
- 23
- Place of publication:
- Leeds
This report aims to put the authentic voices of people with lived experience of restraint, seclusion and segregation (RSS) in care settings at the heart of the conversation about safe and effective care. Participant spoke of being afraid, scared, angry, upset when experiencing RSS; they felt that staff in healthcare settings lacked empathy and were not person-centred; and that there was a lack of adequate staffing in care settings. They saw the impact that poor resourcing, lack of training, and unsupportive cultures had on the staff who were at the frontline of their care. Some participants had positive experiences of RSS. They were clear that this was when it was used as part of a person-centred de-escalation strategy, with compassion, and as a last resort where safety was a concern. However, participants also provided very many examples of bad practice in implementing restraint, seclusion and segregation. People spoke of many experiences where they were physically, psychologically and emotionally harmed. People with lived experience expect: robust, personalised and appropriate training for care staff; accountability and action, at all levels, including funding commitments from the government for better, community-led care models; a stronger role for advocacy, including peer and family advocacy, and a more co-operative and involving culture within care providers. Most of our participants voiced the view that restraint, seclusion and segregation should be stopped, and people should be cared for in their own communities with appropriate support. (Edited publisher abstract)
Hidden voices of maternity: parents with learning disabilities speak out
- Authors:
- CHANGE, PATIENT EXPERIENCE NETWORK
- Publishers:
- Change, Parent Experience Network
- Publication year:
- 2015
- Pagination:
- 28
- Place of publication:
- Leeds
This research looks at how parents with learning disabilities experience their maternity care and provides recommendations for service improvements that could support care to be more person and family centred. The report draws on the results of an online survey of 107 professionals, five focus groups with parents with learning disabilities, an easy read accessible survey of parents with learning disabilities, and desk research. Focus groups used a 'ladder of power' to discuss how much power professionals had over them as parents. Social workers were viewed as being at the top of the ladder of power. Parents reported that community midwifery services, advocacy services, buddy schemes and support groups worked well to improve their experience of maternity care. Areas that had a negative impact on the maternity experiences of parents with learning disabilities were staff attitudes, conflicting information, fathers feeling unwelcome during the birth, and lack of support when babies are taken away. The report also includes examples from professional on what they felt was working well maternity services. Appendices includes a list of useful resources identified during the project. (Edited publisher abstract)
Building expectations: inquiry into community services and opportunities for people with learning disabilities
- Author:
- CHANGE
- Publisher:
- Mental Health Foundation
- Publication year:
- 1996
- Pagination:
- 31p.
- Place of publication:
- London
Version written for people with learning difficulties of a report of an inquiry to find out what services are needed to lead a good life in the community. The inquiry report was based on user views.