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Assessing the barriers to achieving genuine housing choice for adults with a learning disability: the views of family carers and professionals
- Authors:
- BOWEY Laura, McGLAUGHLIN Alex, SAUL Claire
- Journal article citation:
- British Journal of Social Work, 35(1), January 2005, pp.139-148.
- Publisher:
- Oxford University Press
It has been reported that the capability of adults with learning disability to choose housing is too often impeded by the views and actions of their family carers and involved professionals. This study further explores these apparent barriers to providing genuine housing choice for such people, discussing findings from a series of focus groups which explored family and professional views about housing and choice. They indicate that risk is a fundamental concern for professionals and families when considering more independent housing for this group. Although opportunities for choice were generally supported, many argued for the need to assess the ability to make informed decisions. There were also examples of problematic relationships between professionals and carers, creating a barrier to choice. Carers need involvement, information and support during the development of housing plans if the needs of the primary service users are to be met. The barriers identified have to be removed if users are to truly become the focus of decisions and be enabled to make genuine informed choices.
Involving people with learning disabilities in research: issues and possibilities
- Author:
- GILBERT Tony
- Journal article citation:
- Health and Social Care in the Community, 12(4), July 2004, pp.298-308.
- Publisher:
- Wiley
Advances in the social position of people with learning disabilities have led to a situation where research and evaluation studies are increasingly required to include their views and opinions. One key outcome of this shift is that some major funding bodies now insist on the inclusion of people with learning disabilities as a condition of research funding. This has produced new possibilities and new challenges for researchers, and has real consequences for people working in health and social care. This paper sets out to explore some developments and challenges in research with people with learning disabilities, providing a selective overview of developments with the aim of demonstrating the richness, ingenuity and potential of research involving people with learning disabilities. Three broad sections focus on the ethics and philosophy of participatory research, methodologies employed at particular points in the research process designed to ensure the involvement of participants in research, and building capacity in participatory research as a precondition to the further development of this approach. An investment in capacity would enable this approach to move into the mainstream of research activity involving people with learning disabilities.
See what we have to say!
- Author:
- -
- Journal article citation:
- Viewpoint, January 2005, p.25.
- Publisher:
- Mencap/Gateway
Looks at the work of Mencap's National Service Users Forum, which is made up of people that use Mencap's Housing and Support services. The Forum have produced a DVD to explain what the Forum is and how it is run. The Forum also helps Mencap in their quality assurance process.
Learning disability partnership boards: making participation real?
- Author:
- NICOLL Tricia
- Journal article citation:
- Journal of Integrated Care, 12(6), December 2004, pp.36-42.
- Publisher:
- Emerald
Considers the role and function of learning disability partnership boards, focusing on how they have developed their skills in working in partnership with people with learning disabilities (self-advocates) and using examples from self-advocates themselves.
Learning difficulties
- Author:
- WARD Linda
- Journal article citation:
- Research Matters, 18, October 2004, pp.25-32.
- Publisher:
- Community Care
Asks how much, 3 years after publication, the white paper 'Valuing people' has translated into practice on the ground. Summarises the 'Making Valuing people work' project. Discusses information presentation, the spirit of co-operation, and the influence of the board chair. Lists points for practice on user and carer involvement, and how good the partnership board is in involving carers, and key points.
Progress on participation?: self-advocate involvement in learning disability partnership boards
- Authors:
- FYSON Rachel, McBRIDE Gordon, MYERS Brian
- Journal article citation:
- Tizard Learning Disability Review, 9(3), July 2004, pp.27-36.
- Publisher:
- Emerald
Aimed to gather information about the objective and subjective experiences of self-advocates attending learning disability partnership boards, in order to promote effective practices. Findings show that although people with learning disabilities were present at meetings a variety of barriers limited their ability to participate actively. Problems included lack of financial and practical help as well as the limited availability of accessible information. There were, however, examples of good practice, and many self-advocates were pleased at how local authorities were beginning to implement effective partnership working practices. Ways of supporting self-advocates and others with learning disabilities to fulfil a truly representative, rather than merely symbolic, function at meetings are discussed.
Im a researcher!
- Author:
- -
- Journal article citation:
- Llais, 73, Summer 2004, pp.8-10.
- Publisher:
- Learning Disability Wales
Looks at the process involved in undertaking the participatory research and the experiences of the people involved in doing the research. It draws on the experience of a research project in South Wales, where people with learning disabilities have been involved as researchers to explore the perceptions of 'health' of people with learning disabilities who can verbalise.
Research: what it is and how to do it
- Author:
- CUPPLES Joan
- Publisher:
- Hexagon Publishing
- Publication year:
- 2004
- Pagination:
- 38p.
- Place of publication:
- Minehead
Provides an easy to read training handbook (including a tape) for people being supported to do research in the community.
Uncharted territory
- Author:
- HOPKINS Graham
- Journal article citation:
- Community Care, 22.7.04, 2004, pp.40-41.
- Publisher:
- Reed Business Information
Reports on a user group in Tower Hamlets is shaping services for people with learning difficulties. Looks at how the Map Squad's creative and simple consultation methods have helped other service users to speak up.
What matters is what works
- Author:
- DAVIES Sue
- Journal article citation:
- Llais, 72, Spring 2004, pp.10-12.
- Publisher:
- Learning Disability Wales
Conwy Connect helps people with learning difficulties to take part in making decisions that effect their lives, and an opportunity to participate in the planning of services. Explains what they do and how they do it.