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Deciding what to research: an overview of a participatory workshop
- Authors:
- NORTHWAY Ruth, et al
- Journal article citation:
- British Journal of Learning Disabilities, 42(4), 2014, pp.323-327.
- Publisher:
- Wiley
This paper discusses how a participatory workshop with people with learning disabilities was held to try and identify priority areas for research. It is hoped that by sharing these experiences, other people will be encouraged to try similar approaches. (Edited publisher abstract)
Getting involved in research
- Authors:
- HOWARTH Joyce, HURLEY Karen, O'CONNOR Chris
- Journal article citation:
- Llais, 104, Autumn 2012, pp.10-13.
- Publisher:
- Learning Disability Wales
The Welsh Government has made a commitment to involving people in planning services for the NHS. This article describes how Aneurin Bevan Health Board and 5 local authorities are involving people with a learning disability in the research process. Specifically, it describes a workshop which was conducted in order to find out what priorities people with learning disabilities in the Gwent area have for research. The workshop was attended by 25 people with learning disabilities and 15 professionals. The workshop started with explaining the research process. The participants then went into groups to discuss what they thought should be researched. Voting to identify the topics considered to be of most importance resulted in the following top 3: independence; parents’ issues; and communication. Groups of participants then formed to discuss research questions relating to each of these topics. The hope now is to be able to fund continued planning of these priority research areas.
Looking into abuse: research by people with learning disabilities
- Author:
- HOWARTH Joyce
- Journal article citation:
- Llais, 103, Summer 2012, pp.12-15.
- Publisher:
- Learning Disability Wales
People with learning disabilities are acknowledged as one of the most vulnerable groups in society. Studies give estimates of the numbers who have been victims of abuse ranging from 30 – 50%. Identification of abuse is recognised as problematic, so the issue could be even greater than these figures suggest. It is usually staff who are asked to report abuse, with little involvement of the people who have been affected. This article describes a unique project that involved people with a learning disability as researchers into abuse, rather than just being passive subjects of research. Ten years ago the Unit for Development in Intellectual Disabilities (UDID) at the University of Glamorgan brought together an advisory group of people with learning disabilities. Named TRAC, the Teaching and Research Advisory Committee meets monthly and advises on teaching and research initiatives from their position as experts in living with learning disabilities. The author describes the work that has been done.
Staying on TRAC
- Authors:
- JONES Victoria, et al
- Journal article citation:
- Learning Disability Today, April 2010, pp.34-36.
- Publisher:
- Pavilion
- Place of publication:
- Hove
People with learning disabilities are acknowledged as a particularly vulnerable group, with estimates of the number who have been victims of abuse ranging from 30-50%. However, research has often failed to ask people with learning disabilities what they think and feel about abuse. Participatory research aims to give power back to disabled people and bring about change both in research and wider society. It involves people with learning disabilities working as co-researchers and being actively involved in all stages of the research process. This article describes a planned 3-year study by the Teaching and Research Advisory Committee (TRAC) at the University of Glamorgan with their partners Rhondda Cynon Taff People First and New Pathways. The planned study will explore what people with learning disabilities understand by abuse, what help and support they need to keep themselves safe from abuse and, if someone has been abused, what are the best ways to provide support. The project will actively involve people with learning disabilities at all stages of the research process, with 3 people with learning disabilities employed as co-researchers. The information gathered from the study will be used to directly inform the development of counselling provision for people with learning disabilities.
Having a say: helping people with learning disabilities participate in planning services
- Authors:
- EVANS John, (Producer), THOMAS Jeanette, (Author)
- Publisher:
- Learning Disability Wales
- Publication year:
- 2006
- Pagination:
- CD ROM
- Place of publication:
- Cardiff
Outlines the work of Learning Disability Wales (formerly SCOVO), the collective voice of the voluntary sector in Wales which promotes the right of children and adults with a learning disability to have valued lives.
Report on the learning disability 'What's Next' workshops
- Authors:
- WALKER Glayne, LUKE Cyril
- Journal article citation:
- Llais, 76, Spring 2005, pp.14-17.
- Publisher:
- Learning Disability Wales
Having decided to develop a community based day service model Caerphilly Social Services ran a number of workshops to find out what service users wanted from the service. This article provides some background to the project and evaluation of the workshops that took place in 2004.
What matters is what works
- Author:
- DAVIES Sue
- Journal article citation:
- Llais, 72, Spring 2004, pp.10-12.
- Publisher:
- Learning Disability Wales
Conwy Connect helps people with learning difficulties to take part in making decisions that effect their lives, and an opportunity to participate in the planning of services. Explains what they do and how they do it.
In the driving seat
- Author:
- MURRAY Nicholas
- Journal article citation:
- Social Work Today, 10.10.91, 1991, pp.20-21.
- Publisher:
- British Association of Social Workers
Talks to members of Clwyd People First, a self-advocacy group for people with learning difficulties, who are finding their own way in the community.
A tokenistic exercise? User involvement in service planning
- Authors:
- KAEHNE Axel, CATHERALL Chris
- Journal article citation:
- Learning Disability Today, August 2012, pp.22-24.
- Publisher:
- Pavilion
- Place of publication:
- Hove
In recent years, policy makers have been increasing service user involvement in service planning, normally via consultation processes. However, the scope of these consultations varies greatly. This study investigated the views of two parents of children with learning disabilities who had been involved in steering groups designed to plan new services. Two themes were highlighted: the parents felt unable to comment on the details of the services due to a lack of understanding of the terminology used; and the link between user consultation and service planning was unclear. The article concludes that more research is required in order to understand how to effectively include service users in service planning.
Learning disability in Wales: a technical document produced by a panel considering people centred issues
- Author:
- CROWSON David (chair)
- Publisher:
- Great Britain. Welsh Office. NHS Directorate. Welsh Health Planning Forum
- Publication year:
- 1992
- Pagination:
- 43p.
- Place of publication:
- Cardiff