Search results for ‘Subject term:"learning disabilities"’ Sort:
Results 1 - 10 of 10
“Living the life I want”: a framework for planning engagement with people with intellectual disability and complex support needs
- Authors:
- DEW Angela, et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 32(2), 2019, pp.401-412.
- Publisher:
- Wiley
Background: Self‐determination involves autonomy, agency, choice and control. This study investigated how these aspects of self‐determination relate to engaging people with intellectual disability and complex support needs in setting goals and making plans. Method: Body mapping was used to understand the planning experiences of 30 adults with intellectual disability and complex support needs. Each participant created two body maps using a guided group‐based process. Visual and text data were thematically analysed and a framework for planning engagement developed. Results: The framework identifies the centrality of having a well‐developed sense of self which includes insight, motivation and agency, and which is shaped by contextual barriers and facilitators and influenced by helpful and unhelpful support. Conclusions: A well‐developed sense of self and ability to harness resources and people is fundamental to the ability of individuals with intellectual disability and complex support needs articulating goals, identifying aspirations, and attaining valued outcomes. (Edited publisher abstract)
In control
- Author:
- DUFFY Simon
- Journal article citation:
- Journal of Integrated Care, 12(6), December 2004, pp.7-13.
- Publisher:
- Emerald
Argues that human services should move towards self-directed support. If people have more control over their own individual support they will be better able to control the quality of the support and to participate in community life. Reports on the 'In Control' programme which is currently working with six local authorities to help develop a new model of service delivery for people with learning difficulties.
Keys to citizenship: a guide to getting good support services for people with learning difficulties
- Author:
- DUFFY Simon
- Publisher:
- Paradigm
- Publication year:
- 2003
- Pagination:
- 157p.,bibliog.
- Place of publication:
- Birkenhead
A better way of thinking about the organisation of service delivery to people with learning difficulties is offered by the Citizenship Model of service delivery. This model assumes that the starting point for our thoughts must be the individual living as a member of their community. The role of both the provider and purchaser of services is to enable the individual to play a full part in the community and not to cut the individual off from their community. It has the following features: the individual is an active part of their community and is supported by that community; the purchaser and the provider are "off-stage" providing support or finance and at times leadership, but without disabling the community; there is a balance of power between the different legitimate interests of the individual, the purchaser and the provider; the individual negotiates with the purchaser and the provider to agree a fair level of resources and appropriate professional inputs; and the community provides the purchaser with the resources to enable it to give individuals the resources they are entitled to.
My life: a person-centred approach to checking outcomes for people with learning difficulties
- Authors:
- CATTERMOLE Martin, BLUNDEN Roger
- Publisher:
- British Institute of Learning Disabilities
- Publication year:
- 2002
- Pagination:
- 79p.
- Place of publication:
- Plymouth
Enables the user and carer to: find out about the quality of a person's life; assess and improve the quality of services run by a single organisation; take an overview of what life is really like for people with learning disabilities who use services; and to inform individual planning.
Using my life: a guide to conducting a Quality Network review
- Authors:
- CATTERMOLE Martin, et al
- Publisher:
- British Institute of Learning Disabilities
- Publication year:
- 2002
- Pagination:
- 101p.
- Place of publication:
- Plymouth
This guide has been written to help people undertake a Quality Network Review. It is a guide to the resource material in 'My life: a person centred approach to checking outcomes for people with learning disabilities.
Quality enhancement in developmental disabilities: challenges and opportunities in a changing world
- Authors:
- BRADLEY Valerie, KIMMICH Madeleine
- Publisher:
- Paul H. Brookes
- Publication year:
- 2003
- Pagination:
- 340p.,bibliog.
- Place of publication:
- Baltimore, MD
As person-centered services and supports become more prevalent, people with disabilities in the United States are enjoying more choices and opportunities, making it challenging to ensure the quality of every service offered. This book aims to understand the changed expectations of people with disabilities and their families and the resulting challenges to quality enhancement; seeks to clarify the roles of Medicaid and the Centers for Medicare and Medicaid Services; addresses health and safety issues, including investigation of abuse, neglect, and death; advises on the design databases that track outcomes and target areas for service improvement; translates quality information into reliable quality enhancement approaches; and shows how to manage staffing challenges like recruitment, retention, and professional development.
Time to make up your mind: why choosing is difficult
- Author:
- HARRIS John
- Journal article citation:
- British Journal of Learning Disabilities, 31(1), 2003, pp.3-8.
- Publisher:
- Wiley
This article gives an overview of the current understanding of the concept of choice. It concludes that aspirations to promote choice for people with learning disability are undermined by conceptual confusion about the meaning of choice, inappropriate methods for helping people to make choices and an absence of applied research to guide practice in service settings. This review is designed to establish a conceptual framework for examining choice and empowerment for people with learning disability, and to describe the implications for future research and practice.
Issues of informed consent in conducting medical research involving people with intellectual disability
- Authors:
- IACONO Teresa, MURRAY Vanessa
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 16(1), March 2003, pp.41-51.
- Publisher:
- Wiley
People with severe intellectual disability are considered vulnerable to exploitation in research. Discovery of exploitative practices in recent history has motivated the development of guidelines for informed consent and proxy decision-making procedures when involving these individuals in research. The complex process of involving in research people with severe intellectual disability who are particularly vulnerable by virtue of their institutionalized residential status is discussed within the context of a recent project into examining potential nutritional determinants of Pica behaviour (the eating of inedible items). This example serves to highlight the role of legislation, various government bodies and researchers in balancing principles of protection of vulnerable groups and rights to self-determination.
Falling through the gap not an option
- Author:
- HOPKINS Graham
- Journal article citation:
- Community Care, 19.09.02, 2002, pp.46-47.
- Publisher:
- Reed Business Information
Young people with profound and complex learning difficulties have often been left out of the process of planning their own futures, but now a project set up in Wales aims to give them more options by focusing on each individual and creating personalised portfolios.
Essential lifestyle planning: a handbook for facilitators
- Authors:
- SMULL Michael, SANDERSON Helen, ALLEN Bill
- Publisher:
- North West Training and Development Team
- Publication year:
- 2001
- Pagination:
- 342p.
- Place of publication:
- Manchester
Essential lifestyle planning is a guided process for learning how someone wants to live and for developing a plan to help make it happen. It’s also: a snapshot of how someone wants to live today, serving as a blueprint for how to support someone tomorrow; a way of organizing and communicating what is important to an individual in “user friendly”, plain language; a flexible process that can be used in combination with other person centered planning techniques; and, a way of making sure that the person is heard, regardless of the severity of his or her disability. Developing plans that really reflect how people want to live require: the perspectives of those who know and care about the person; their stories about good days and bad; and, what they like and admire about the person.