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Are people with intellectual disabilities represented in European public health surveys?
- Authors:
- LINEHAN Christine, et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 22(5), September 2009, pp.409-420.
- Publisher:
- Wiley
Evidence suggests that people with intellectual disabilities experience secondary health conditions and report inequities in health status and access to health systems. Reliable information is essential to identify health disparities. A review of health interview and health examination surveys conducted in 17 European countries was undertaken to determine whether people with intellectual disabilities were represented. One hundred and twenty three health surveys were examined to determine whether they contained questions relevant to the Pomona 18 indicator set, and whether data could be extracted specifically on behalf of respondents with intellectual disabilities. Findings reveal that while items relating to 16 of the Pomona 18 health indicators were found in 123 of the surveys scrutinized, only nine surveys were identified as having potential to extract data on respondents with intellectual disabilities.
Long-stay mental health care institutions and the COVID-19 crisis: identifying and addressing the challenges for better response and preparedness
- Author:
- WORLD HEALTH ORGANIZATION. Regional Office for Europe
- Publisher:
- World Health Organization. Regional Office for Europe
- Publication year:
- 2020
- Pagination:
- 20
- Place of publication:
- Copenhagen
This report presents the results of a survey with 169 long-stay institutions to assess the impact of the COVID-19 pandemic on services, staff, service users and residents with psychosocial and intellectual disabilities. Specific themes explored in this report are how well the institutions were prepared for the crisis by authorities, the quality of communications, the availability of personal protective equipment, and the impact of the risk of infection and protective measures on staff and residents. The report finds that there were significant differences between the types of institution reporting, which included psychiatric hospitals; care homes; and other settings for mental health care. Responses from psychiatric, intellectual disability and autism services were broadly consistent with those from social care homes, except for the following significant areas of difference: social care homes were happier with information from the authorities and the information they provided for residents in accessible formats; care home staff reported challenges with more workload, stress, frustration and burnout; care homes were less likely to use discharge to reduce numbers and manage the virus; and more likely to report an increase in the use of restrictive measures. The analysis highlights the need to put in place comprehensive and practical plans to facilitate management and day-to-day operations under crisis conditions. The keys to this are: having clear guidelines and tested systems in place; ensuring clarity of communication; implementing a comprehensive and facility-based infection prevention and control plan; establishing clear procedures and protocols to ensure safe environments; being able to increase staff capacities according to need; and having a clear focus on ensuring person-centred and human rights-based care in all decision-making. (Edited publisher abstract)