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A model system fro the evaluation of individual program plans
- Authors:
- CUMMINS Robert A., et al
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 21(1), March 1996, pp.59-70.
- Publisher:
- Taylor and Francis
Individual Programme Plans are an essential component of quality assurance in service delivery to people with an intellectual disability. This paper describes a system for the evaluation of such plans in Australia. One hundred and sixty-three plans were analysed from clients being serviced by 11 Community Living Support Services. While the plans prepared by non-government agencies were generally superior, the average level of plan presentation was poor. Only 14% offered any criterion for evaluating performance objectives, the average number of skill-building objectives was less than three per plan, and only 39% of plans were current. Concludes that if Individual Programme Plans are to realise their quality assurance potential, the issues of staff resources, staff training in plan preparation and overall professional accountability will need to be addressed.
A survey of self-advocacy groups for people with learning disabilities in an English region: part II
- Author:
- McNALLY Steve
- Journal article citation:
- Journal of Learning Disabilities, 7(3), September 2003, pp.231-250.
- Publisher:
- Sage
This article is on the development, implementation and analysis of a survey of self-advocacy groups for people with learning disabilities in the midlands region of England. One hundred questionnaires were posted to groups and 53 were completed — a good response for remote work with groups whose members may not read. In postal surveys non-response can be overestimated because ineligible or unreachable respondents may be regarded as refusals. Three respondents identified themselves as ineligible; therefore the response rate was no less than 54 percent. Groups provided information about their origins, structure and functioning. Among the key findings were the consistency of the issues identified as important, and the willingness to engage in research. The overwhelming majority of groups indicated that they would participate further in the project. Participatory research paradigms from the social model of disability can enhance our understanding of self-advocates' experience.
Daily activity, community participation and quality of life in an ordinary housing network
- Authors:
- RAPLEY Mark, BEYER Stephen
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 9(1), 1996, pp.31-39.
- Publisher:
- Wiley
Many studies of the quality of ordinary housing have relied upon objective indices, which permit only inferential judgments to be made about quality of life of service users. Quality of life has recently emerged as a key outcome criterion against which to assess the success of community based services for people with intellectual disabilities. A small scale study was conducted to assess the extent to which objective measures of service quality were enhanced by the addition of a QOL measure. Data suggested that isolation and disengagement characterised the sample. It is concluded that the ordinary house remains a necessary, but insufficient component of an integrative service model.
Dementia-related care decision-making in group homes for persons with intellectual disabilities
- Authors:
- JANICKI Matthew P., MCCALLION Philip, DALTON Arthur J.
- Journal article citation:
- Journal of Gerontological Social Work, 38(1/2), 2002, pp.179-195.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
Alzheimer’s disease and related dementias affects a significant number of adults with intellectual disability (ID), in particular those with Down syndrome. Many affected adults live in small community group homes or with their families. How to provide sound and responsive community care is becoming a challenge for agencies faced with an increasing number of affected adults. This study reports the outcome of a survey of group homes serving adults with ID and dementia, explores the onset, duration and effects of dementia, and speaks to the impact of these on planning for community care of adults with ID. It also examines emerging community care models that provide for “dementia capable” supports and services. Two models, “aging in place” and “in place progression” are examined, as well as “referral out” reactions, with regard to care practices and critical agency decision making.