Search results for ‘Subject term:"learning disabilities"’ Sort:
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Are people with intellectual disabilities represented in European public health surveys?
- Authors:
- LINEHAN Christine, et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 22(5), September 2009, pp.409-420.
- Publisher:
- Wiley
Evidence suggests that people with intellectual disabilities experience secondary health conditions and report inequities in health status and access to health systems. Reliable information is essential to identify health disparities. A review of health interview and health examination surveys conducted in 17 European countries was undertaken to determine whether people with intellectual disabilities were represented. One hundred and twenty three health surveys were examined to determine whether they contained questions relevant to the Pomona 18 indicator set, and whether data could be extracted specifically on behalf of respondents with intellectual disabilities. Findings reveal that while items relating to 16 of the Pomona 18 health indicators were found in 123 of the surveys scrutinized, only nine surveys were identified as having potential to extract data on respondents with intellectual disabilities.
Dying for things to change
- Author:
- BATES Claire
- Journal article citation:
- Learning Disability Today, 14(3), March/April 2014, pp.24-25.
- Publisher:
- Pavilion
- Place of publication:
- Hove
Drawing on the findings from recent reports, and a health survey from the charity Choice Support, this article discusses the inequalities people with learning disabilities can face in primary health care settings. Choice Support surveyed its staff to investigate the experiences of supporting a person with a learning disability who had an unplanned stay in hospital. The results found a lack of understanding and training for NHS staff relating to the needs of people with learning disabilities. Choice support staff also considered the support they gave to a person in hospital as fundamental to a positive outcome. (Original abstract)
Health, age, and gender: how do women with intellectual disabilities fare?
- Author:
- ANDERSON Deborah J.
- Journal article citation:
- Journal of Gerontological Social Work, 38(1/2), 2002, pp.137-159.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
The 1994-1995 Disability Supplement to the National Health Interview Survey (administeredto a representative sample of the U.S. population) was analyzed for women age 30 and older with intellectual disabilities (ID), developmental disabilities (DD) or both, in order to describe their functioning as they aged in the community. Definitions of ID and DD consistent with professional and legal standards were developedand adapted to the NHIS-D questions. An estimated .56% of the approximately 77 million civilian, noninstitutionalized, women age 30 and older in the United States have one of these disabilities. Compared with women in general,women with these disabilities had negative perceptions of their health status, particularlywomen with DD and health indicators tended to support their perceptions. Most were independent in activities of daily living , but instrumental activities of daily living posed more of a callenge, and limitations in major activities were common as was a high rate of distress and psychosocial difficulties.
Healthy ageing - adults with intellectual disabilities: women's health and related issues
- Authors:
- WALSH P.N., et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 14(3), 2001, pp.195-217.
- Publisher:
- Wiley
This report has been prepared by the Ageing Special Interest Research Group of the International Association for the Scientific Study of Intellectual Disabilities (IASSID) in collaboration with the Department of Mental Health and Substance Dependence and the Programme on Ageing and Health, World Health Organisation (WHO), Geneva, Switzerland. Explores factors related to well-being and quality of life for women, examines and defines sex-linked differences in their life experiences and opportunities and to define their distinctive vulnerabilities - including research on health status and access to healthcare.
Promoting healthy lifestyles for people with learning disabilities: a survey of provider organisations
- Author:
- TURNER Stephen
- Journal article citation:
- British Journal of Learning Disabilities, 24(4), 1996, pp.138-144.
- Publisher:
- Wiley
Gives the results of a postal survey of UK provider organisations which investigated the nature and organisation of healthy lifestyle initiatives currently being offered to people with learning disabilities. Seventy percent of social services or social work departments in England, Scotland and Wales were represented in the survey.
Factors affecting access to daily oral and dental care among adults with intellectual disabilities
- Authors:
- CHADWICK Darren, CHAPMAN Melanie, DAVIES Gill
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 31(3), 2018, pp.379-394.
- Publisher:
- Wiley
Background/Purpose: Accessing oral health care can be more difficult for adults with intellectual disabilities with reports of poorer levels of oral health. This investigation identifies factors influencing engagement in day‐to‐day oral and dental health care for adults with intellectual disabilities. Method: A survey, containing questions about facilitators and barriers to maintaining oral health and hygiene, was completed with adults with intellectual disabilities and their caregivers (N = 372). Results: Data were analysed using thematic network analysis. Two global themes were identified; “Personal and lifestyle influences,” mentioned more often as barriers to oral care, included physical, sensory, cognitive, behavioural and affective factors and “social and environmental factors,” mentioned more as facilitators, included caregiver support, equipment and adaptations used and oral hygiene routine. Conclusions: Numerous individual, social and environmental factors influence oral care. A coordinated organisational response is advocated involving collaboration between dental and intellectual disability services and training for caregivers and people with intellectual disabilities. (Edited publisher abstract)
Dementia-related care decision-making in group homes for persons with intellectual disabilities
- Authors:
- JANICKI Matthew P., MCCALLION Philip, DALTON Arthur J.
- Journal article citation:
- Journal of Gerontological Social Work, 38(1/2), 2002, pp.179-195.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
Alzheimer’s disease and related dementias affects a significant number of adults with intellectual disability (ID), in particular those with Down syndrome. Many affected adults live in small community group homes or with their families. How to provide sound and responsive community care is becoming a challenge for agencies faced with an increasing number of affected adults. This study reports the outcome of a survey of group homes serving adults with ID and dementia, explores the onset, duration and effects of dementia, and speaks to the impact of these on planning for community care of adults with ID. It also examines emerging community care models that provide for “dementia capable” supports and services. Two models, “aging in place” and “in place progression” are examined, as well as “referral out” reactions, with regard to care practices and critical agency decision making.
Barriers and supports for exercise participation among adults with Down Syndrome
- Authors:
- HELLER Tamar, HSIEH Kelly, RIMMER James
- Journal article citation:
- Journal of Gerontological Social Work, 38(1/2), 2002, pp.161-177.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
Examines the impact of exercise barriers and carer attitudes regarding exercise outcomes on the exercise participation of adults with Down syndrome (DS). The sample included 44 adults age 30 years and older with DS and mild to moderate intellectual disability and their carers (family members or staff). Measures included personal characteristics of the adults with DS (age, level of adaptive behavior, and health status),carer perceived outcomes of exercise for people with DS, socio-emotional barriers, and access barriers to exercising. The significant determinants of exercise participation were carers' perceived outcomes of exercise for persons with DS and access barriers. When carers perceived greater benefits of exercise and when there were fewer access barriers, the adults with DS were likely to exercise more frequently.
Health gain through screening - users' and carers' perspectives of health care: developing primary health care services for people with an intellectual disability
- Authors:
- MARTIN D.M., et al
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 22(4), December 1997, pp.241-249.
- Publisher:
- Taylor and Francis
Describes Primary Health Care Project for People with an Intellectual Disability which began early in 1995 in Northern Birmingham to facilitate equal access to health care services for adults with an intellectual disability, and to establish a health screening protocol. The aim of the study was to identify the experiences, expectations and opinions of the people using these services. The implications of this methodology and its findings are discussed.