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Examples of individual supported living for adults with intellectual disability
- Authors:
- COCKS Errol, et al
- Journal article citation:
- Journal of Intellectual Disabilities, 20(2), 2016, pp.100-108.
- Publisher:
- Sage
- Place of publication:
- London
Background: This article provides a qualitative account of four models of support for adults with intellectual disability in individual supported living (ISL) arrangements. Materials and Methods: Completion of the first 50 evaluations of 150 arrangements for the third phase of the ISL project provided the examples. Results: Four approaches are described: living alone, co-residency, relationship and host family. Within each type, wide variations occur particularly based on security of tenure, formal and informal support and management variations. Conclusion: Fifty evaluations so far illustrated a wide range of approaches to ISL, providing evidence of the critical importance of the formal and informal support environment and reinforcing the contention that ISL is appropriate for people with high support needs. (Publisher abstract)
Housing support for people with learning disabilities
- Author:
- HUDSON Bob
- Journal article citation:
- Community Care, 17.04.08, 2008, pp.32-33.
- Publisher:
- Reed Business Information
Supporting people programmes are part of the personalised care agenda. The favoured model for providing housing and support to people with learning disabilities is some variant of supported housing or independent living. The Supporting People programme aims to improve housing related support to people who need help to retain their tenancies and secure independence. This article summarises the findings of research funded by the Joseph Rowntree Foundation, to examine the impact of the programme on people with learning disabilities in England. Although it reveals that most users are glad to be in their own home, it expresses some problems with the way Supporting people is working in practice.
Stress and the move into community accommodation
- Authors:
- BRAMSTON Paul, CUMMINS A. Robert
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 23(4), December 1998, pp.295-308.
- Publisher:
- Taylor and Francis
The move into community-based supported accommodation for people with an intellectual disability can be exciting and rewarding but also confusing, demanding and perhaps even frightening. This study follows the concerns and stresses of four Australian people with an intellectual disability for five months as they negotiate the trials and rewards of moving out into a flat in the community, with only drop-in support. Implications are drawn from the data for those involved in supporting people with an intellectual disability to move into supported accommodation.
'Low support' options for people with learning difficulties
- Author:
- JOSEPH ROWNTREE FOUNDATION
- Publisher:
- Joseph Rowntree Foundation
- Publication year:
- 1998
- Pagination:
- 4p.
- Place of publication:
- York
Most people with learning difficulties have little choice of housing and support options; residential care continues to dominate. This is a particular problem for people seen as relatively low priority for community care packages, with few effective 'low support' alternatives to residential care being developed. The 'living support networks' provided by KeyRing offer one possible model for such services. According to the research described this model provides reliable, affordable support in a way that is liked by those who use the service.
Being in control: choice and control of support received in supported living. A study based on the narratives of people with intellectual disability and support staff
- Authors:
- PALLISERA Maria, et al
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 46(2), 2021, pp.164-174.
- Publisher:
- Taylor and Francis
Background: This research aims to study the role of people with intellectual disability in taking decisions regarding the support provided under the supported living model. Method: Interviews were conducted with 13 people with intellectual disability, and six support professionals with experience working in organisations offering personalised support. These covered the person’s pathway, the support received, and their role in controlling this. Interviews were recorded and transcribed, and the data analysed through thematic content analysis in two consecutive phases, one descriptive and one interpretative. Results: While supported living aims to provide personalised solutions to individual needs, support is conditioned to a greater or lesser extent by the assessment professionals make regarding the autonomy of the person with intellectual disability. Conclusions: In order for individuals to make advances in their choice of, and control over, support received, people with intellectual disability must be empowered, and professional practices adapted through training. (Edited publisher abstract)
Staying connected during COVID-19: family engagement with adults with developmental disabilities in supported accommodation
- Authors:
- ARATEN-BERGMAN Tal, SHPIGELMAN Carmit-Noa
- Journal article citation:
- Research in Developmental Disabilities, 108, 2021, p.103812.
- Publisher:
- Elsevier
Background: Enduring family engagement and informal support is crucial to the health and well-being of adults with developmental disabilities (DD) residing in supported accommodation. The COVID-19 pandemic and restrictive measures enforced in residential settings have resulted in changes in daily routine and modified the ways families can interact with and provide support to residents. Yet, the impact of these changes has not been empirically explored. Aim: Explore how family caregivers have interacted with and supported their relatives with DD residing in supported accommodation during the pandemic. Methods: Changes in frequencies of communication modes and types of informal support were measured through a cross‐sectional and anonymous online survey which completed by 108 family caregivers of adults with DD. Results: Most family caregivers adopted remote communication technologies; however, these were not perceived to be effective in filling the gap created by reduced face-to-face contact. While families were able to provide emotional support and advocacy using digital technologies, they were limited in their ability to provide significant social support. Conclusions: Findings may help key stakeholders develop and implement novel strategies and policies to accommodate the changing circumstances and to ensure continuity of family engagement and informal support in the context of COVID-19. (Edited publisher abstract)
How can care settings for people with intellectual disabilities embed health promotion?
- Authors:
- ANROOIJ Kristel Vlot‐van, et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 33(6), 2020, pp.1489-1499.
- Publisher:
- Wiley
Background: People with intellectual disabilities (ID) depend on their environment to live healthily. Asset‐based health promotion enhances a settings’ health‐promoting capacity starting with identifying protective or promotive factors that sustain health. Method: This inclusive mixed‐methods study used group sessions to generate and rank ideas on assets supporting healthy nutrition and physical activity in Dutch intellectual disability care settings. Participants included people with moderate intellectual disabilities and family and care professionals of people with severe/profound intellectual disabilities. Results: Fifty‐one participants identified 185 assets in group sessions. They include the following: (i) the social network and ways “people” can support, (ii) assets in/around “places,” and person–environment fit, and (iii) “preconditions”: health care, prevention, budget, and policy. Conclusion: This inclusive research provides a user perspective on assets in the living environment supporting healthy living. This gives insight in contextual factors needed for development and sustainable embedment of health promotion in the systems of intellectual disability support settings. (Edited publisher abstract)
Dimensions of group home culture as predictors of quality of life outcomes
- Authors:
- HUMPHREYS Lincoln, BIGBY Christine, IACONO Teresa
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 33(6), 2020, pp.1284-1295.
- Publisher:
- Wiley
Background: Research has shown that there is variability in quality of life (QOL) outcomes for people with intellectual disabilities who live in group homes. The aim was to examine dimensions of group home culture as predictors of QOL outcomes. Method: The Group Home Culture Scale (GHCS) was used to measure staff perceptions of culture in 23 group homes. QOL data were available from 98 people with intellectual disabilities. Multilevel modelling was used to examine the associations between the GHCS subscales and four QOL‐dependent variables. Results: Of the GHCS subscales, Effective Team Leadership and Alignment of Staff with Organizational Values significantly predicted residents’ engagement in activities. Supporting Well‐Being significantly predicted residents’ community involvement. None of the GHCS subscales significantly predicted domestic participation and choice making. Conclusions: The findings suggest that strategies to improve Effective Team Leadership and Supporting Well‐Being dimensions of culture may contribute to enhancing certain QOL outcomes. (Edited publisher abstract)
How do people with learning disabilities talk about professionals and organizations? Discourse on support practices for independent living
- Authors:
- FULLANA Judit, PALLISERA Maria, DIAZ-GAROLERA Gemma
- Journal article citation:
- Disability and Society, 34(9-10), 2019, pp.1462-1480.
- Publisher:
- Taylor and Francis
The aims of the research presented here are two-fold: to determine the decision-making role that people with learning disabilities award organisations and professionals offering support for independent living; and to assess the extent to which the dominant discourses of people with learning disabilities incorporate individual or social approaches. Ten focus groups were held with self-advocacy groups of people with learning disabilities. The critical discourse analysis approach was used to analyse the transcripts. The analysis shows that the discourse of people with learning disabilities tends to legitimise the role of organisations and professionals as agents in making decisions regarding their own lives. The study highlights the need to make use of these discourses to work together with people with learning disabilities to promote the exercising of their rights in decision-making and taking control of their lives. (Edited publisher abstract)
Does supported living equal better quality of life?
- Authors:
- LAXTON-KANE Martha, SMITH Angie, CROSSLAND Rosalind
- Journal article citation:
- Learning Disability Today, September 2008, pp.35-37.
- Publisher:
- Pavilion
- Place of publication:
- Hove
A study by the Nottinghamshire Healthcare Trust looked at quality of life for people who have an intellectual disability living across different environments: supported living; residential accommodation; and living with parents. The study used questionnaires to rate quality of life and to measure levels of intellectual disability and challenging behaviour. The findings suggest that people in supported living experience a better quality of life than people who live in other types of accommodation.