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Staying connected during COVID-19: family engagement with adults with developmental disabilities in supported accommodation
- Authors:
- ARATEN-BERGMAN Tal, SHPIGELMAN Carmit-Noa
- Journal article citation:
- Research in Developmental Disabilities, 108, 2021, p.103812.
- Publisher:
- Elsevier
Background: Enduring family engagement and informal support is crucial to the health and well-being of adults with developmental disabilities (DD) residing in supported accommodation. The COVID-19 pandemic and restrictive measures enforced in residential settings have resulted in changes in daily routine and modified the ways families can interact with and provide support to residents. Yet, the impact of these changes has not been empirically explored. Aim: Explore how family caregivers have interacted with and supported their relatives with DD residing in supported accommodation during the pandemic. Methods: Changes in frequencies of communication modes and types of informal support were measured through a cross‐sectional and anonymous online survey which completed by 108 family caregivers of adults with DD. Results: Most family caregivers adopted remote communication technologies; however, these were not perceived to be effective in filling the gap created by reduced face-to-face contact. While families were able to provide emotional support and advocacy using digital technologies, they were limited in their ability to provide significant social support. Conclusions: Findings may help key stakeholders develop and implement novel strategies and policies to accommodate the changing circumstances and to ensure continuity of family engagement and informal support in the context of COVID-19. (Edited publisher abstract)
Does supported living equal better quality of life?
- Authors:
- LAXTON-KANE Martha, SMITH Angie, CROSSLAND Rosalind
- Journal article citation:
- Learning Disability Today, September 2008, pp.35-37.
- Publisher:
- Pavilion
- Place of publication:
- Hove
A study by the Nottinghamshire Healthcare Trust looked at quality of life for people who have an intellectual disability living across different environments: supported living; residential accommodation; and living with parents. The study used questionnaires to rate quality of life and to measure levels of intellectual disability and challenging behaviour. The findings suggest that people in supported living experience a better quality of life than people who live in other types of accommodation.
Perspectives of family members of people with an intellectual disability to a major reconfiguration of living arrangements for people with intellectual disability in Ireland
- Authors:
- O'DOHERTY Siobhain, et al
- Journal article citation:
- Journal of Intellectual Disabilities, 20(2), 2016, pp.137-151.
- Publisher:
- Sage
- Place of publication:
- London
Aim: To document the views of family members of people with an intellectual disability regarding implementation of a personalised model of social support in Ireland. Method: Forty family members participated in six focus groups. Data were thematically analysed. Results: Family members’ preference for particular types of living arrangements were highly reflective of their lived experience. Facilitators to community living included timely information on proposed moves, adequate staffing, suitable properties and locations and consideration of the characteristics of individuals who share a property. Barriers included high support needs, advanced age, a fear of relinquishing current supports, a fear of the sustainability of newer models of residential support and concerns about community opposition. Conclusion: The family perspective to reform is characterised by fear and suspicion of the motivation behind these reforms, with cost efficiencies being perceived as a main driver. Greater information is required to empower families to make informed decisions. (Edited publisher abstract)
Comparison of community residential supports on measures of information and planning; access to and delivery of supports; choice and control; community connections; satisfaction; and, overall perception of outcomes
- Authors:
- STAINTON T., et al
- Journal article citation:
- Journal of Intellectual Disability Research, 55(8), August 2011, pp.732-745.
- Publisher:
- Wiley
This paper reports findings from a large-scale survey (n = 852) of family members and support staff of adults with intellectual disabilities receiving community living services in British Columbia, Canada. It concentrates on comparisons across four types of community residential setting: group homes, family model homes, an independent home or apartment, and a family home. Six domains were evaluated: information and planning; access to and delivery of supports; choice and control; community connections; satisfaction; and, overall perception of outcomes. The responses revealed that a significant number of adults are still residing with family or in group homes. However 28% were living in an independent home, most of which were owned by the respondent. Overall satisfaction with residential supports was not very high; only 58.8% of participants indicated that they were always or usually happy with the support. On all measures other than choice and control, group homes and family model homes showed better outcomes than either independent settings or family homes. The authors conclude that the move to more independent living settings may not be accompanied by appropriate supports.
Where do you want to go next?: critical factors in care planning for people with learning disabilities, and their financial implications
- Authors:
- WILLIAMS Val, BATTLEDAY Suzanne
- Publisher:
- Norah Fry Research Centre
- Publication year:
- 2007
- Pagination:
- 47p., bibliog..
- Place of publication:
- Bristol
This study aimed to explore the factors which are associated with different outcomes of care planning for people with learning disabilities. In particular, it explored the differences for those going into residential care, and those who had a supported living placement, or some other community-based option. It drew upon record searches and care manager interviews for 28 cases from 4 social services departments in the South West of England, and also semi-structured interviews with 12 carers or service users. Ten of the cases had residential outcomes, and 18 had supported living or other outcomes. Amongst the findings were that people who received residential care placements were more likely to have a larger number of recorded support needs, to be amongst the oldest group of service users, not be moving from the family home, not have a person-centred plan taken into account, and to have had previous high levels of supplied support. A number of messages for good practice in care management are given, including the key recommendation to improve the use of tools for working out individual budgets.
Ensuring their futures
- Author:
- McKINSTRY Kath
- Journal article citation:
- Community Living, 16(2), 2002, pp.17-18.
- Publisher:
- Hexagon Publishing
Describes the work of the Federation of Local Supported Living Groups, a project where families have formed groups to make sure their children have a good quality of life when they leave home.
Deinstitutionalization and community living: intellectual disability services in Britain, Scandinavia and the USA
- Editors:
- MANSELL Jim, ERICSSON Kent
- Publisher:
- Chapman and Hall
- Publication year:
- 1996
- Pagination:
- 307p.,bibliog.
- Place of publication:
- London
Comparative study reviewing the changes that have taken place over the last 25 years in services to people with learning difficulties, focusing in particular on the development of care in the community. Includes papers on: closing institutions in New York State; issues in community services in Britain; deinstitutionalisation in the Norwegian welfare state; housing for people with learning difficulties; supported living programmes in the USA; the immediate psychological effects of deinstitutionalisation; transition to community services in Norway;and the impact on families of service users.