Search results for ‘Subject term:"learning disabilities"’ Sort:
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Stress and coping in families caring for a child with severe mental handicap: a longitudinal study
- Authors:
- QUINE Lyn, PAHL Jan
- Publisher:
- University of Kent. Institute of Social and Applied Psychology
- Publication year:
- 1989
- Pagination:
- 238p., tables, bibliog.
- Place of publication:
- Canterbury
Second stage in a longitudinal study of 200 families caring for a severely mentally handicapped child,which includes analysis of behaviour problems, contact with professionals and services; and the transition to adult life.
The hidden costs of support: experiences of family carers who support someone with learning disabilities
- Authors:
- BLOOD Lauren, COONEY Geraldine
- Publisher:
- National Development Team for Inclusion
- Publication year:
- 2020
- Pagination:
- 32
- Place of publication:
- Bath
Findings from a survey to explore the role and input of family carers, to determine how much time and money family carers typically spend providing support to their relative, and to assess the broader impact on the family carer. The findings show a considerable input from family carers, of both money and time, in the areas of coordinating support, providing practical support, supporting their relative’s health and community involvement. However, there were minimal differences between supported living and residential care and the housing model appeared to have little impact on the amount of support that family carers provided. As expected, family carers whose relative lived at home with them spent significantly more time providing practical support than those whose relative lived outside of the family home. The extensive comments provided by family carers revealed additional impacts on all areas of their lives, beyond time and money. These included impacts on their health, career and relationships. Respondents highlighted that the stress associated with liaising with, and navigating, services on the behalf of their relatives was a huge strain. These difficulties led to family carers having significant anxiety about the future. Parents in particular were worried about who would look after their relative as they age and become incapable of caring, particularly in the event of their death. As they were overseeing and coordinating their relative’s care, there was a fear that support arrangements would fall apart without them. (Edited publisher abstract)
First impressions: emotional and practical support for families of a young child with a learning disability
- Author:
- FOUNDATION FOR PEOPLE WITH LEARNING DISABILITIES
- Publisher:
- Foundation for People with Learning Disabilities
- Publication year:
- 2005
- Pagination:
- 36p.
- Place of publication:
- London
The research aimed to address the emotional needs of families from the time of diagnosis until the child is five years old and explored four main areas: how the diagnosis was delivered; information given immediately following the diagnosis and during the following years. The emotional and practical support required at this time. The impact on family life, including the effects on other children, extended family and lifestyle. It found that while around half of all parents interviewed received adequate help, most described how they were left in the dark, forced to fight for a diagnosis, received poor information and were left to cope on their own. The research also found that what happens to families in the early stages following a diagnosis is crucial - even relationships between parents can deteriorate because of the strain.
Living with a mentally handicapped child
- Author:
- JEFFORD Judy
- Publisher:
- University of East Anglia
- Publication year:
- 1990
- Pagination:
- 47p., tables, bibliog.
- Place of publication:
- Norwich
Aims to offer a framework for understanding the meaning of mental handicap for individual families. Assesses the variables that affect how families cope & looks at the effect on marital relationships.
Now is the time: supporting disabled children and their families
- Author:
- SAMARASINGHE Shane
- Publisher:
- SCOPE
- Publication year:
- 2018
- Pagination:
- 20
- Place of publication:
- London
This report provides qualitative evidence on the experiences of families raising a disabled child and identifies some of the barriers in early years which can prevent disabled children fulfilling their potential. It draws on interviews with parents of disabled children and an analysis of survey data to examine current and historical attitudes towards disability. The research also commissioned a poll of parents of disabled children to test the findings from the research. Analysis of interview data identified a number of barriers facing families, which included: access to timely and appropriate information and support; negative attitudes and prejudice against disabled children; and the emotional stress experienced by many parents, which can make supporting their child more difficult. Quotations from parents are included throughout illustrate to illustrate the key themes. The recommendations include for Government appoint a Minister for Disabled Children and Families and to establish an early intervention and family resilience fund. The fund would include investment in emotional support for the whole family during the diagnosis journey, such as counselling, advocacy, and relationship advice. (Edited publisher abstract)
Stress and coping in mothers caring for a child with severe learning difficulties: a test of Lazarus' transactional model of coping. (In) Journal of Community and Applied Social Psychology v. 1 pp. 57-70 1991
- Authors:
- QUINE Lyn, PAHL Jan
- Publisher:
- [none]
- Publication year:
- 1991
- Pagination:
- 14p.,tables,bibliog.
Report of a study of 166 mothers, which investigated both the factors associated with maternal stress, and those which might mediate or buffer the effects, taking into account those elements of family functioning which make families vulnerable or resistant to stress. Concludes that there is a need for a comprehensive method of assessing child and family in order to identify needs and target resources accurately.
What the future holds: older people caring for adult sons and daughters with disabilities
- Authors:
- DILLENBURGER Karola, MCKERR Lyn
- Publisher:
- Changing Ageing Partnership
- Publication year:
- 2009
- Pagination:
- 150p., bibliog.
- Place of publication:
- Belfast
This report is based on interviews with 29 parents reporting on 27 adult sons and daughters with disabilities in which issues were explored in relation to present life circumstances, support from family and service providers, levels of health and impairment, and futures planning. Findings expose high levels of commitment and love for sons and daughters in the face of, at times, severe disabilities and carers’ ill health. Carers also experienced twice the level of psychological stress than the general population. They faced worry and loneliness, experienced severe lack of statutory support, and reported near non-existence of futures planning, especially in cases with highest levels of impairment.
Mental health in learning disabilities: a training resource
- Editors:
- HOLT Geraldine, HARDY Steve, BOURAS Nick, (eds.)
- Publisher:
- Pavilion
- Publication year:
- 2005
- Place of publication:
- Brighton
- Edition:
- Rev. ed.
This pack aims to provide the trainer with up-to-date information and a variety of training techniques to develop skills and knowledge that support staff need to meet the mental health needs of people with learning disabilities. The resource is suitable for staff supporting people with learning disabilities in the community or in-patient services, and for staff working in either mainstream or specialist services. It includes modules on offending behaviour in people with learning disabilities, cultural diversity, working with families and psychological and social intervention. The materials for each module are contained on a CD and include: trainers notes, PowerPoint slides, handouts and evaluation forms.
Young carers in the UK: the 2004 report
- Authors:
- DEARDEN Chris, BECKER Saul
- Publisher:
- Carers UK
- Publication year:
- 2004
- Pagination:
- 16p.
- Place of publication:
- London
The 2004 Report is based on data collected from 87 projects concerning a total of 6,178 young carers – the largest survey of its kind. 56% of the sample are girls, 44% are boys. The average age is 12. 84% of the sample is white; the largest minority group being African Caribbean. 56% of young carers are living in lone parent families. Two thirds of the young carers provide domestic help in the home; 48% provide general and nursing-type care; 82% provide emotional support and supervision; 18% provide intimate personal care and 11% also provide child care. The recognised incidence of emotional support has increased dramatically since 1997. Intimate care is most commonly provided where the person with care needs has a physical health problem or disability. Emotional support is far more common where the person has mental health problems. One in ten young carers is caring for more than one person. Overall, girls are more involved in all types of caring tasks, especially as they get older. The overall incidence of missed school and educational difficulties has reduced, decreasing between 1995 and 1997 and again between 1997 and 2003. However, 27% of all young carers of secondary school-age are experiencing some problems, and the equivalent proportion of young carers of primary school age is 13%. 18% of young carers have been assessed, an improvement on 1997. One third (36%) of young carers had been caring for 2 years or less; 44% for 3-5 years; 18% for 6-10 years and 3% for over 10 years. One fifth of young carers and their families receive no other support except for their contact with a specialist young carers project. Social Services support is the most common external service received.
Mental health in learning disabilities: a training pack for staff working with people who have dual diagnosis of mental health needs and learning disabilities
- Editors:
- HOLT Geraldine, BOURAS Nick
- Publisher:
- Pavilion
- Publication year:
- 1997
- Pagination:
- 192p.
- Place of publication:
- Brighton
- Edition:
- 2nd
Teaching pack aimed at all staff working with people with learning difficulties and mental health problems. Contains material on: the aetiology of learning difficulties; individual, family and social adjustment; emotional disorders; the use of behavioural strategies; challenging behaviour; commonly used medication; mental health service factors; epilepsy in people with learning difficulties; stress and burnout; and legal and ethical issues.