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Informal carers of adolescents and adults with learning difficulties from the south Asian communities: family circumstances, service support and carer stress
- Authors:
- HATTON Chris, et al
- Journal article citation:
- British Journal of Social Work, 28(6), December 1998, pp.821-837.
- Publisher:
- Oxford University Press
This article describes a survey in two metropolitan boroughs of people from the south Asian communities caring for people with learning difficulties aged 14 or over who were interviewed regarding family circumstances, service supports and levels of stress. In general, families were living in circumstances of material disadvantage and reported a high need for services, due to a lack of informal support and the considerable support needs of many of the people with learning difficulties. The implications of the findings for services are discussed.
Improving services for South Asian adults with learning disabilities
- Authors:
- HATTON Chris, et al
- Journal article citation:
- Focus, 22, October 1997, pp.1-9.
- Publisher:
- RNIB
Discusses the results of a survey of Asian families in the North-West of England with a person who has learning difficulties. The aims were to identify the circumstances and support needs of the families, and to find out how effectively these needs are met and how services could be improved.
The disclosure process and its impact on South Asian families with a child with severe intellectual disabilities
- Authors:
- HATTON Chris, et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 16(3), September 2003, pp.177-188.
- Publisher:
- Wiley
Although several research studies have investigated parental experiences of the disclosure process in White families with a child with severe disabilities, little work has focused on the experiences of South Asian families. This study aimed to provide a rich picture of the disclosure experiences of South Asian parents of a child with severe intellectual disabilities, using semi-structured qualitative interviews with 26 parents over two time points, and structured quantitative interviews with 136 parents. Parents reported variable experiences of the disclosure process, with many parents experiencing disclosure in the wrong language for them and most parents reporting little post-disclosure support. Parents identified good practice in disclosure as prompt disclosure in the appropriate language, with the partner present (where possible), with emotional support as part of the process, with clear and practical information, and linked to post-disclosure support from a keyworker. Good practice in disclosure was also associated with parental understanding of their child, and parents being more likely to mobilize informal and formal supports. The implications of these findings are discussed.
Supporting South Asian families with a child with severe disabilities: a report to the Department of Health
- Authors:
- HATTON Chris, et al
- Publisher:
- Lancaster University. Institute for Health Research
- Publication year:
- 2002
- Pagination:
- 176p.,bibliog.
- Place of publication:
- Lancaster
The prevalence of severe learning disabilities amongst UK South Asian communities may be up to three times higher than the general population. Combined with general epidemiological trends, projections suggest that the number of UK South Asian people with severe learning disabilities will increase substantially over the next 20 years, with big increases in the number of school-age children and young adults. South Asian communities in the UK, compared to their White peers, experience pervasive disadvantage and discrimination in terms of housing, education, employment, physical and mental health and access to services, with Pakistani and Bangladeshi populations particularly disadvantaged. Despite these high support needs, South Asian families with a person with learning disabilities receive little informal support from family or friends outside the household, largely due to extended family members living too far away.