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People with intellectual disabilities: towards a good life?
- Authors:
- JOHNSON Kelley, WALMSLEY Jan, WOLFE Marie
- Publisher:
- Policy Press
- Publication year:
- 2010
- Pagination:
- 234p.
- Place of publication:
- Bristol
This book asks the following questions: what does it mean to live a good life; why has it proved so difficult for people with intellectual disabilities to live one; and what happens when we make a good life the centre of our consideration of people with intellectual disabilities. These questions are explored through a re-examination of ideas from philosophy and social theory, and through personal life stories. This book provides an analysis and critique of current policies and underpinning ideologies in relation to people with intellectual disabilities and explores ways in which a good life may be made more attainable. Chapters include: exploring a good life; part one: reflecting on a good life: my own life: Marie Wolfe; thinking about a good life; a good life and people with intellectual disabilities; part two: re-examining key concepts in the light of current practice: a good life in policy?; changing problems changing solutions; changing constructions of work; part three: rethinking a good life: justice, rights and capabilities; community, inclusion and belonging; promoting a good life; conclusion.
The added value of inclusive research
- Authors:
- WALMSLEY Jan, STRNADOVA Iva, JOHNSON Kelley
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 31(5), 2018, pp.751-759.
- Publisher:
- Wiley
Background: The study asks when does inclusive research add value? The authors argue that this is important, given the additional time and cost of co‐researching with people with intellectual disabilities. The study is situated in debates about a “second generation” of inclusive research which advocates focussing more on outcomes than process. The authors argue that this is premature, rather the authors propose that inclusive research is valuable when it helps to recognize, foster, and above all communicate the contributions people with intellectual disabilities can make. Method: The authors conducted a literature review of 52 peer‐reviewed journal articles about inclusive research and analysed them. Results: The authors conclude that inclusive research adds value when there is a distinctive contribution which only co‐researchers with intellectual disabilities can make, when it highlights the contributions people with intellectual disabilities make, and when it contributes to better lives for the wider population of people with intellectual disabilities. Conclusions: The authors propose a revised definition of inclusive research to replace that published by Walmsley and Johnson in 2003. (Edited publisher abstract)
No Longer Researching About Us Without Us: a researcher's reflection on rights and inclusive research in Ireland
- Author:
- JOHNSON Kelley
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 22(5), September 2009, pp.250-256.
- Publisher:
- Wiley
This essay on ‘No Longer Researching About Us Without Us’, an innovative national project which aimed to develop inclusive research with people with intellectual disabilities in the Republic of Ireland, is the author’s personal reflection, as co-ordinator of the project, on work undertaken by and with people with intellectual disabilities during its 18-month life span. Using two examples from the project, focusing on a coffee shop in a small community, and bullying, this paper explores links between the inclusive research aspect of the project, and the rights of people with intellectual disabilities to participate within their communities. As a result of ‘No Longer Researching About Us Without Us’, it was found that people with intellectual disabilities began to initiate and take action on some issues that were important to them, becoming stronger self advocates, resulting in the development of longer term changes in their role within one service in Ireland.
“… but if you're afraid of things, how are you meant to belong?” What belonging means to people with intellectual disabilities?
- Authors:
- STRNADOV Iva, JOHNSON Kelley, WALMSLEY Jan
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 31(6), 2018, pp.1091-1102.
- Publisher:
- Wiley
Background: A policy commitment to social inclusion has brought about some positive changes in the lives of people with intellectual disabilities; yet many also continue to experience social isolation, poverty and abuse. The authors introduce a framework for belonging from the literature and then present a study exploring the views of people with intellectual disabilities about belonging. These are discussed in relation to the framework identified from the literature. Method: Three focus groups with 24 participants with intellectual disabilities were conducted in New South Wales and Victoria (Australia). The authors used inductive content analysis to identify four meanings of belonging: (i) belonging in relation to place, (ii) as being part of a community, (iii) as having relationships and (iv) as identity. Also discussed are commonly experienced barriers to belonging identified by participants. Conclusions: Implications for policy, service provision and practice are discussed. (Publisher abstract)