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Inclusion for people with developmental disabilities: measuring an elusive construct
- Authors:
- NEELY-BARNES Susan Louise, ELSWICK Susan E.
- Journal article citation:
- Journal of Social Work in Disability and Rehabilitation, 15(2), 2016, pp.134-149.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
The philosophy of inclusion for people with intellectual and developmental disabilities (IDD) has evolved over the last 50 years. Over time, inclusion research has shifted from a focus on deinstitutionalisation to understanding the extent to which individuals with IDD are meaningfully involved in the community and social relationships. Yet, there has been no agreed on way to measure inclusion. Many different measurement and data collection techniques have been used in the literature. This study proposes a brief measure of inclusion that can be used with family members and on survey instruments. The measure of inclusion was designed for the research study based on a review of literature and was tested using a survey of 136 parents and caregivers. (Edited publisher abstract)