Search results for ‘Subject term:"learning disabilities"’ Sort:
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Place in Europe
- Author:
- HOPKINS Graham
- Journal article citation:
- Community Care, 27.01.05, 2005, pp.46-47.
- Publisher:
- Reed Business Information
Phil Madden, Director of service development at the Home Farm Trust, describes the organisations involvement in a one year project 'Families In' funded by the European Commission. The project involved partners from Sweden, Finland, Spain, Belgium and Hungary. He describes the challenges and rewards of the project.
Home from home: thinking about improving home and family support services for people with mental handicaps in Alyn, Deeside and Wrexham, in Clwyd
- Author:
- TYNE A
- Publisher:
- Community and Mental Handicap Education and Research Association
- Publication year:
- 1987
- Pagination:
- 32p., tables, bibliog.
- Place of publication:
- London
Missed out, missing out: adults with learning disabilities who live in the family home and their right to recognition and resources
- Author:
- QUARRIERS
- Publisher:
- Quarriers
- Publication year:
- 2008
- Pagination:
- 16p.
- Place of publication:
- Bridge of Weir
This report demonstrates that age is not the only issue driving inequalities of opportunity and choice for adults with learning disabilities in Scotland. Where and with whom an adult with a learning disability lives are also key determinants of opportunity, choice and service availability. Adults with learning disabilities who live in the family home are missed out and missing out. This 'hidden' population is being missed by those responsible for planning and providing services now, and in the future when aging carers can no longer look after them. This report questions whether adults with learning disabilities who live at home with their families have the same level of choice and services, as adults who live in supported accommodation. Recommendations are outlined.
‘He's hard work, but he's worth it’. The experience of caregivers of individuals with intellectual disabilities and challenging behaviour: a meta-synthesis of qualitative research
- Authors:
- GRIFFITH G.M., HASTINGS R.P.
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 27(5), 2014, pp.401-419.
- Publisher:
- Wiley
Background: This review synthesises the qualitative literature on the perspectives of those caring for a family member with intellectual disabilities and challenging behaviour, with a focus on their experiences of support services. Materials and Methods: A thorough literature search resulted in 17 studies being selected for inclusion in the meta-synthesis. Results: Five primary themes were identified: (i) love, (ii) altered identity, (iii) crisis management, (iv) support is not just ‘challenging behaviour’ services, and (v) the future: low expectations, high hopes. Conclusions: Carers spoke of the deep love for their family member and of the chronic strain the demands of caregiving placed upon them. Support services often caused additional problems and high levels of stress for caregivers, although there were also reports of good practice. The findings may inform clinicians and service providers about how best to support families of individuals with challenging behaviour. (Edited publisher abstract)
Reaching out to people with learning disabilities and their families from black and minority ethnic communities
- Authors:
- POXTON Richard, et al
- Publisher:
- Foundation for People with Learning Disabilities
- Publication year:
- 2012
- Pagination:
- 32p.
- Place of publication:
- London
People with learning disabilities and their families from Black and Minority Ethnic (BME) communities continue to experience inequalities in health and social care despite various efforts to improve engagement. The aim of the Reaching out to Families project was to find new ways of addressing this issue - with particular attention to the role of third sector organisations and the use of action learning techniques in order to identify examples of good practice. Four areas agreed to become ‘development sites’: two London boroughs and two English cities, all with very diverse populations. The project used a broad action learning approach, supporting participants to work together to solve real work-based problems, acknowledging and building on actions already being taken in each site. A number of themes were identified through analysis of the interviews with families and in-depth discussion about the issues: effective identification of the needs, concerns and aspirations of different local communities; making sure that people understand what’s available and how local systems work; getting to grips with ‘personalisation’; developing local responses with community organisations; a competent workforce; working together; and being able to measure the impact of policies and practices on different BME communities. This report focuses on these aspects.
Early intervention services in Turkey: perspectives of south-eastern families
- Authors:
- BAYHAN Pinar, SIPAL R. Firat
- Journal article citation:
- International Social Work, 54(6), November 2011, pp.781-799.
- Publisher:
- Sage
Early intervention programmes can provide dramatic shifts in the competencies of children with special needs. In 2005, Turkey passed the Public Law for Individuals with Disabilities. In this law, the importance of early intervention is highlighted, which should be facilitated by a professional team to inform the families about the options and services available to them. These early intervention teams, comprising members of different professional domains, were set up in hospitals in order to serve families with respect to the new legislation. The purpose of this study was to explore families’ perceptions of the service delivery of early intervention support provided under this new legislation. In south-east Turkey, a total of 150 parents of children with cognitive disabilities were interviewed about their perception of service, including the information, guidance, and psychological support they were receiving. The findings demonstrate that the provision of services in the region varied greatly from one professional team task to the next. The team members often had difficulties in sharing responsibilities, as well as completing mandated tasks. Implications for the improvement of service delivery are discussed.
Supporting mutual caring: a booklet for workers in services who are supporting older families that include a person with learning disabilities
- Author:
- FOUNDATION FOR PEOPLE WITH LEARNING DISABILITIES
- Publisher:
- Foundation for People with Learning Disabilities
- Publication year:
- 2010
- Pagination:
- 26p.
- Place of publication:
- London
An increasing number of people with learning disabilities are providing regular and substantial care for their ageing relatives. This care ranges from help with personal care, medication, cooking and cleaning, to help with shopping and keeping them company as they go out and about less. In many cases, neither person would be able to remain living independently without this support. This is known as mutual caring. However, mutual caring amongst older families often remains hidden. This booklet highlights some of the main issues facing mutually caring older families and some of the ways that people in different services and roles can make a positive difference. This booklet should be read by anyone who is working in a service or role where they may come into contact with an older family in which a person with learning disabilities is taking on a caring role for their older relative. It focuses on 3 main topics: understanding mutual caring; responding to the challenge of mutual caring; and getting support right for families who are caring for each other.
The international handbook of applied research in intellectual disabilities
- Editors:
- EMERSON Eric, et al, (eds.)
- Publisher:
- John Wiley and Sons
- Publication year:
- 2004
- Pagination:
- 639p.
- Place of publication:
- Chichester
The handbook presents, explains, and illustrates key methods of research and evaluation of proven relevance and value to the field of intellectual disabilities. It features sections on the concepts and theoretical models underlying research and evaluation, the methods and techniques themselves, and the key application areas where the methods are demonstrated in action. Coverage includes applications in educational, social, family, health, and employment aspects of care and provision for those with intellectual disabilities.
Key worker services for disabled children: what characteristics of services lead to better outcomes for children and families?
- Authors:
- SLOPER P., et al
- Journal article citation:
- Child: Care, Health and Development, 32(2), March 2006, pp.147-157.
- Publisher:
- Wiley
Research has shown that families of disabled children who have a key worker benefit from this service and recent policy initiatives emphasize the importance of such services. However, research is lacking on which characteristics of key worker schemes for disabled children are related to better outcomes for families. A postal questionnaire was completed by 189 parents with disabled children who were receiving a service in seven key worker schemes in England and Wales. Path analysis was used to investigate associations between characteristics of the services and outcomes for families (satisfaction with the service, impact of key worker on quality of life, parent unmet need, child unmet need). The four path models showed that key workers carrying out more aspects of the key worker role, appropriate amounts of contact with key workers, regular training, supervision and peer support for key workers, and having a dedicated service manager and a clear job description for key workers were associated with better outcomes for families. Characteristics of services had only a small impact on child unmet need, suggesting that other aspects of services were affecting child unmet need. Implications for policy and practice are discussed, including the need for regular training, supervision and peer support for key workers and negotiated time and resources for them to carry out the role. These influence the extent to which key workers carry out all aspects of the key worker's role and their amount of contact with families, which in turn impact on outcomes.
Support for family carers of children and young people with developmental disabilities and challenging behaviour
- Authors:
- McGILL P., PAPACHRISTOFOROU E., COOPER V.
- Journal article citation:
- Child: Care, Health and Development, 32(2), March 2006, pp.159-163.
- Publisher:
- Wiley
This study gathered information about perceptions of family carers of children and young people with developmental disabilities and challenging behaviour of the help, support and treatment received from services and professionals. A total of 66 family carers completed postal questionnaires on the nature of, and their satisfaction with, services, professional help and advice received in respect of their family member's challenging behaviour. Most carers were dissatisfied with support and services received. Almost half reported receiving no professional input or none that was helpful. Over two-thirds reported receiving respite care but, in a third of these, the child had been excluded because of challenging behaviour. Families of children with challenging behaviour often do not receive services and supports that they find helpful. Treatments provided are not always evidence based. The 'rationing' of services creates a danger of inequality of access. We need a more proactive approach to identifying and meeting the need for family support.