Search results for ‘Subject term:"learning disabilities"’ Sort:
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'Pick and mix': supporting carers to have a break
- Author:
- THOMPSON Alison
- Journal article citation:
- Community Connecting, 22, September 2009, pp.14-15.
- Publisher:
- Community Connecting
The short break services provided by Heritage Care to help both people with learning disabilities and their carers is presented. The article explains how the introduction of personal budgets (including Individualised Service Funds) has enabled the organisation to develop more customised and flexible services. The organisation provides both residential and outreach services.
Give us a break
- Authors:
- JONES Vicky, SOUZA Anya, SUMMERS Jessica
- Journal article citation:
- Community Care, 24.8.95, 1995, p.4.
- Publisher:
- Reed Business Information
Short-term care provides rewarding experiences for service users and carers alike.
Time out
- Author:
- MARCHANT Catriona
- Journal article citation:
- Community Care, 2.12.93, 1993, p.8.
- Publisher:
- Reed Business Information
Respite care offers a much needed break for families of people with learning difficulties. The Natural Breaks project is a joint initiative between Liverpool SSD, MENCAP and the health authority. It focuses on enabling people with learning difficulties to use their chosen community and leisure facilities.
Respite care services for adults with mental handicaps: a survey of carers' views
- Author:
- MITCHELL F.
- Journal article citation:
- Mental Handicap, 18(1), March 1990, pp.33-34.
- Publisher:
- British Institute of Mental Handicap
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Supporting family carers of children and adults with intellectual disability
- Authors:
- KELLY Caraíosa, CRAIG Sarah, McCONKEY Roy
- Journal article citation:
- Journal of Social Work, 20(5), 2020, pp.639-656.
- Publisher:
- Sage
Summary: The extra strains experienced by families who care for a relative with intellectual disabilities are well documented. The provision of overnight (respite) breaks or supports in the home are common ways of supporting family carers. Often demand exceeds supply. Using data from a national register in Ireland, child and adults who received overnight breaks and in-home support were identified along with the characteristics that distinguished them from families that did not have these services. Moreover, changes in provision over a 10-year period were monitored and variations in provision across the country were ascertained. Findings: Overnight breaks were the dominant form of family support in Ireland. However, they were available to fewer persons in 2017 compared to 2007, whereas the provision of home supports remained constant. Persons with severe and profound disabilities were those most likely to receive home supports or overnight breaks as were persons aged 30 years and over. There were persistent marked differences across the country in the provision of home supports, although the variation in the usage of overnight breaks had contracted somewhat in 2017. Applications: Additional investment is needed to provide supports for families, given the increasing numbers of persons with intellectual disabilities living at home. A wider range of support options would provide greater choice and arguably improve the cost-effectiveness of current resources. Frontline professionals, such as social workers, need to be to the fore in persuading service commissioners of these needs based on empirical data as well as their personal experiences. (Edited publisher abstract)
Home from home
- Author:
- GREEN Geoff
- Journal article citation:
- Community Care, 16.10.97, 1997, p.26.
- Publisher:
- Reed Business Information
Discusses how all carers need a break, but carers of people with autism sometimes have problems securing a family placement. Explains what can be done to make sure that respite placements for people with autism are a success for everyone involved.
Person‐centred respite supports: the perspectives of adults with intellectual disabilities in Ireland
- Author:
- GADD Teresa
- Journal article citation:
- British Journal of Learning Disabilities, 48(4), 2020, pp.281-290.
- Publisher:
- Wiley
Background: Respite supports are highly valued by persons with disabilities and their families/carers. In Ireland, there has been regular commentary in relation to a lack of respite services, with users and other stakeholders reporting limited access, inequity of provision, and long waiting lists for support. Materials and Methods: Much of the research on respite focuses on the views of carers, with little account of the experiences of persons with disabilities. This study examines the perspectives of twenty‐eight adults with intellectual disabilities; most are regular users of traditional and/or alternative respite services. Information was gathered through individual interviews and focus groups. Findings: Participants identified nine key elements of a person‐centred respite service; fun, time and space, choice, independence, friendships, compatible groupings, positive relationships with staff, flexible supports, and user involvement in service design and delivery. Conclusions: Person‐centred supports should enable individuals to achieve maximum well‐being and flourish in all aspects of their lives. This study found that at a personal level, respite services and the interactions that occur within them are person‐centred in that they support the individual to do the things they want to do, make everyday choices, try new activities, develop positive relationships, and have a good quality of life. However, at the level of service planning and decision‐making, there is less evidence of a person‐centred approach. Participants reported having little involvement in the design and delivery of respite services at local or national level. The development of a respite policy in Ireland, that considers the views of respite service users, would be welcome. (Edited publisher abstract)
Contrasting perspectives of parents and service providers on respite care in Queensland, Australia
- Authors:
- TEO Cynthia, KENNEDY-BEHR Ann, LOWE John
- Journal article citation:
- Disability and Society, 33(9), 2018, pp.1503-1527.
- Publisher:
- Taylor and Francis
Parent-carers need support to continue to care for their child with significant disability in their home. There has, however, been little evidence that respite interventions have consistent or enduring beneficial effects on carer well-being. This article reports the findings of a qualitative study which adopted an Appreciative Inquiry philosophy to interview parent-carers of children with significant intellectual and/or developmental disabilities on how formal support services have helped them maintain their health and well-being, and disability support staff on how they help such parent-carers foster their health and well-being. We conclude that better communication and collaboration between service providers and users, more targeted training of workers, and embracing a person-centred and family-centred approach to respite services are needed. In addition, clearer definition and communication of the scope of respite services are required to best support families of children with significant disability in their home. (Edited publisher abstract)
Children and young persons, England: the breaks for carers of disabled children regulations 2011: statutory instrument 2011 no. 707
- Author:
- GREAT BRITAIN. Acts, Bills
- Publisher:
- Stationery Office
- Publication year:
- 2011
- Pagination:
- 4p.
- Place of publication:
- London
These regulations cover the duty of local authorities to make provisions for short break care for carers of disabled children and the types of services which must be provided.
Working out of the box: an evaluation of short breaks and intensive support services to families and disabled young people whose behaviour is severely challenging: summary report
- Author:
- McCONKEY Roy
- Publisher:
- Action for Children
- Publication year:
- 2011
- Pagination:
- 46p.
- Place of publication:
- London
This summary report brings together the main findings from an evaluation of three Action for Children services in Cardiff, Glasgow and Edinburgh. These services provide specialist short breaks and intensive support services to families and learning disabled young people with severely challenging behaviours. The report provides a literature review and a detailed analysis of the model of service that has evolved at the three locations. An overview of staff employed by the services shows that most have some form of higher qualification and access to regular training. Families using the service tend to be from poor backgrounds, with many being lone parent families, and many living in rented accommodation and dependent on benefits. More boys than girls accessed the services. Most were teenagers and most attended special schools, with many also being diagnosed with autism. About a quarter were dependent on others for feeding, dressing and toileting. Key workers rated the changes in children and families over the preceding six months and reported that a sizeable proportion had shown some improvements in communication and personal care. Interviews with stakeholders involved with a sample of children revealed a very positive evaluation of the services. The children benefitted from participating in a range of activities, but their social inclusion remains limited. The report concludes with recommendations on the future developments of these services.