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Distress in children with learning disabilities at a respite unit: perspectives on their experiences
- Authors:
- RADCLIFFE Jonathan J. L., TURK Vicky
- Journal article citation:
- British Journal of Learning Disabilities, 36(2), June 2008, pp.91-101.
- Publisher:
- Wiley
Numerous studies have investigated the benefits of respite to families with a disabled child. Far fewer have examined the effects on the child and none have systematically compared information about this from different sources. Reports of behavioural reactions and views on distress of children attending respite care in London were gathered from parents, teachers and respite staff. Children were also asked for their views. Over half the children (54%) were reported to show medium or strong negative reactions lasting for 1 or more days by a parent or teacher. Reported reactions varied widely between home and school and no concordance was found between parents, teachers and respite staff groups regarding distress. Some children’s views differed from those of their parent or teacher. The findings highlight the extent of differences in perspectives and suggest the need for greater awareness of the possible distress to children attending respite. This is discussed in relation to factors such as the potential conflict of interests between parents and children, communication and behavioural difficulties, and the context in which the child is observed.
Influence of gender, parental health, and perceived expertise of assistance upon stress, anxiety, and depression among parents of children with autism
- Authors:
- SHARPLEY Christopher, BITSIKA Vicki, EFREMIDIS Bill
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 22(1), March 1997, pp.19-28.
- Publisher:
- Taylor and Francis
A survey of Australian parents of children with autism was administered on a confidential and anonymous basis to find out influences on their levels of stress, anxiety and depression. Independent variables were: gender of parents, age of child and age of onset, parental health, access to other family members, and level of understanding of those family members of the child's problems. Data indicated that, although social support has previously been posited as an alleviating factor for parental stress, this may be a result of the perceived expertise of the family member who provides respite care for the parents. Issues of self-efficacy, training in behaviour management, and provision of home-based care for parents are discussed.