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A host of opportunities: second NHSN survey of family based short break schemes for children and adults with intellectual and other disabilities in the Republic of Ireland
- Author:
- HANRAHAN Des
- Publisher:
- National Home-sharing and Short Breaks Network
- Publication year:
- 2010
- Pagination:
- 70p., bibliog.
- Place of publication:
- Mullingar
The National Home-Sharing and Short Breaks Network is an association which supports the use, promotion and provision of host family based services for Irish citizens with intellectual disability, physical disability and autism. While the majority of respite services are centre based, the family-based model of providing short breaks to people with disabilities involves recruiting approved individuals, couples and families who agree to provide personalised breaks in their own homes as an alternative to traditional residential respite. In this report the terms short breaks with volunteer host families or paid contract families, and home sharing provided by host families are used in place of respite care and residential care respectively. The report describes the methodology for the questionnaire based survey of 30 schemes, run by 12 separate organisations, that provided overnight breaks with host families. It presents information from the survey about the hosts, the guests, and other issues. It concludes with a discussion of the findings, and makes recommendations for policy makers, managers and further research.
What we think about Durham Rd: easy read report
- Author:
- CARE QUALITY COMMISSION
- Publisher:
- Care Quality Commission
- Publication year:
- 2011
- Pagination:
- 10p.
- Place of publication:
- London
Durham Road, part of Tees, Esk and Wear Valley NHS Foundation Trust, was inspected as part of a targeted inspection programme in hospitals that care for people with learning disabilities. The inspection was to assess how well they experience effective, safe and appropriate care treatment and support that meets their needs and protects their rights; and whether they are protected from abuse. Using words and pictures this easy read report describes the reasons for the inspection, the way the inspection was carried out and provides a summary of the main findings.
Breaking point: families still need a break
- Author:
- MENCAP
- Publisher:
- Mencap
- Publication year:
- 2006
- Pagination:
- 24p.
- Place of publication:
- London
The report found that families caring for children and adults with a severe or profound learning disability are reaching breaking point. The report reveals that 7 out of 10 families surveyed have come close to, or reached, breaking point because of a continuing lack of short break provision by local authorities and trusts. The survey also revealed that 1 out of 3 of families have experienced a cut in their short break services in the last year. Short breaks can be provided in a range of settings, for example care at home or an overnight stay at a respite centre. With 6 out of 10 families surveyed not getting a break that fully meets their needs, Mencap is demanding breaks that are reliable, flexible and frequent. The charity is calling for increased funding for short breaks to be addressed in the government’s 2007 Comprehensive Spending Review and for a minimum standards guarantee(2) to be introduced. This would entitle families in greatest need, to a minimum standard of one break a week, spread over the course of a year.
SCIE research briefing 5: short breaks (respite care) for children with learning disabilities
- Author:
- SOCIAL CARE INSTITUTE FOR EXCELLENCE
- Publisher:
- Social Care Institute for Excellence
- Publication year:
- 2005
- Place of publication:
- London
- Edition:
- Rev. ed.
A web-based briefing providing a concise summary of the current knowledge base on transition of young people with physical disabilities or chronic illnesses from children's to adults' services. Coverage includes ethical considerations, views of service users and carers, innovative practice examples and implications for practice. Also highlights additional contacts and resources. The Briefing was commissioned by the Social Care Institute for Excellence (SCIE). The latest edition of this Briefing was produced in April 2005 and the next updated is due in April 2006.
Person‐centred respite supports: the perspectives of adults with intellectual disabilities in Ireland
- Author:
- GADD Teresa
- Journal article citation:
- British Journal of Learning Disabilities, 48(4), 2020, pp.281-290.
- Publisher:
- Wiley
Background: Respite supports are highly valued by persons with disabilities and their families/carers. In Ireland, there has been regular commentary in relation to a lack of respite services, with users and other stakeholders reporting limited access, inequity of provision, and long waiting lists for support. Materials and Methods: Much of the research on respite focuses on the views of carers, with little account of the experiences of persons with disabilities. This study examines the perspectives of twenty‐eight adults with intellectual disabilities; most are regular users of traditional and/or alternative respite services. Information was gathered through individual interviews and focus groups. Findings: Participants identified nine key elements of a person‐centred respite service; fun, time and space, choice, independence, friendships, compatible groupings, positive relationships with staff, flexible supports, and user involvement in service design and delivery. Conclusions: Person‐centred supports should enable individuals to achieve maximum well‐being and flourish in all aspects of their lives. This study found that at a personal level, respite services and the interactions that occur within them are person‐centred in that they support the individual to do the things they want to do, make everyday choices, try new activities, develop positive relationships, and have a good quality of life. However, at the level of service planning and decision‐making, there is less evidence of a person‐centred approach. Participants reported having little involvement in the design and delivery of respite services at local or national level. The development of a respite policy in Ireland, that considers the views of respite service users, would be welcome. (Edited publisher abstract)
Children and young persons, England: the breaks for carers of disabled children regulations 2011: statutory instrument 2011 no. 707
- Author:
- GREAT BRITAIN. Acts, Bills
- Publisher:
- Stationery Office
- Publication year:
- 2011
- Pagination:
- 4p.
- Place of publication:
- London
These regulations cover the duty of local authorities to make provisions for short break care for carers of disabled children and the types of services which must be provided.
Working out of the box: an evaluation of short breaks and intensive support services to families and disabled young people whose behaviour is severely challenging: summary report
- Author:
- McCONKEY Roy
- Publisher:
- Action for Children
- Publication year:
- 2011
- Pagination:
- 46p.
- Place of publication:
- London
This summary report brings together the main findings from an evaluation of three Action for Children services in Cardiff, Glasgow and Edinburgh. These services provide specialist short breaks and intensive support services to families and learning disabled young people with severely challenging behaviours. The report provides a literature review and a detailed analysis of the model of service that has evolved at the three locations. An overview of staff employed by the services shows that most have some form of higher qualification and access to regular training. Families using the service tend to be from poor backgrounds, with many being lone parent families, and many living in rented accommodation and dependent on benefits. More boys than girls accessed the services. Most were teenagers and most attended special schools, with many also being diagnosed with autism. About a quarter were dependent on others for feeding, dressing and toileting. Key workers rated the changes in children and families over the preceding six months and reported that a sizeable proportion had shown some improvements in communication and personal care. Interviews with stakeholders involved with a sample of children revealed a very positive evaluation of the services. The children benefitted from participating in a range of activities, but their social inclusion remains limited. The report concludes with recommendations on the future developments of these services.
It’s about time: An overview of short break (respite care) planning and provision in Scotland
- Author:
- REID-HOWIE ASSOCIATES
- Publisher:
- Shared Care Scotland
- Publication year:
- 2010
- Pagination:
- 77p.
- Place of publication:
- Dunfermline
This research was carried out for Shared Care Scotland by Reid Howie Associates to look at the planning and provision of short break care in adult and older people’s services. The report presents the findings of research carried out between April and August 2010 to: improve knowledge and understanding of the landscape of respite care and short break provision for adults in Scotland; identify good practice in the planning, commissioning and design of respite care and short break services; and better understand the challenges and identify solutions to moving towards more flexible, personalised respite care and short break services for adults. The research focused on the views of stakeholders in the public sector, although a number of carers’ and other organisations also contributed views.
Social care and mental health indicators from the national indicator set: further analysis 2008-09
- Author:
- NATIONAL HEALTH SERVICE. Information Centre for Health and Social Care
- Publisher:
- National Health Service. Information Centre for Health and Social Care
- Publication year:
- 2009
- Pagination:
- 51p., tables
- Place of publication:
- Leeds
The set of national indicators (NIs) for English local authorities and partnerships underpins the new performance framework for local government and introduces a clear set of national outcomes with a single set of national indicators by which to measure them. The first official year for these indicators is 2008-09 which also form part of the vital signs set for Primary Care Trusts. The social care information presented is an update of the social care data published on the 13th August 2009 (Social Care indicators from the National Indicator Set, Provisional, England 2008-09). The report provides figures for the following indicators: achieving independence for older people through rehabilitation/intermediate care (NI125); timeliness of social care assessment (NI132); timeliness of social care packages (NI133); number of carers receiving services (NI135); adults with learning disabilities in settled accommodation (NI145) and in paid employment (NI146); adults in contact with secondary mental health services in settled accommodation (NI149) and in paid employment (NI150).
A guide to short breaks: supporting family carers and people with learning disabilities to have short breaks that work for them
- Authors:
- FITZPATRICK Julia, WOOD Alicia
- Publisher:
- Paradigm
- Publication year:
- 2007
- Pagination:
- 30p.
- Place of publication:
- Birkenhead
This is a guide written by Paradigm on behalf of the Valuing People Support Team, aimed at family carers and people with learning disabilities. There are sections on: the importance of breaks; what is a short break?; short breaks - a recipe for success; the short breaks menu; essential ingredients; and sharing information and best practice.