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A lifelong commitment: parental memories and reflections prompted by the impending discharge of long-stay patients with learning disabilities
- Author:
- BARTON R.
- Journal article citation:
- Journal of Learning Disabilities for Nursing Health and Social Care, 2(1), March 1998, pp.16-22.
This article is based on a series of interviews with parents and relatives of adults with learning disabilities who are expected to be resettled from the long-stay hospital, in which they have spent much of their lives, by the year 2000. A life story approach was used to explore these parents' feelings and experiences over time, and the six key themes emerged that were significant to all of the informants. It was concluded that the sense of marginalisation experienced by these parents at the point of impending institutional discharge mirrored their feeling of exclusion around the time of admission, reflecting continuing confusion, conflict and uncertainty over parental roles, rights and responsibilities in relation to adults with learning disabilities.