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The UN Convention on the Rights of Persons with Disabilities: a framework for ethical and inclusive practice?
- Author:
- JOHNSON Kelley
- Journal article citation:
- Ethics and Social Welfare, 7(3), 2013, pp.218-231.
- Publisher:
- Taylor and Francis
- Place of publication:
- Abingdon
The UN Convention on the Rights of Persons with Disabilities (CRPD) was passed in 2006 and came into force in 2008. It sets out a number of core values, including dignity, individual autonomy, non-discrimination, participation and community inclusion. Although the CRPD has been recognised as an important step forward by many disabled people and their supporters and provides the foundation for building a good life, the author argues that it does not necessarily equate with it. The underpinning Western values of choice, independence and control are important, but leave out groups of marginalised people for whom these goals may not be achievable. They also present challenges and dilemmas for those involved in supporting/caring roles. In this paper, the author reflects on the implications of the CRPD for the lives of people with learning disabilities, in particular those with profound needs and explores whether it provides a genuinely coherent framework for an inclusive society. (Publisher abstract)
As nature intended?: attitudes to new genetics and people with learning difficulties
- Author:
- DOWSON Steve
- Publisher:
- Values into Action
- Publication year:
- 2003
- Pagination:
- 52p.
- Place of publication:
- London
Reviews the moral dilemmas surrounding genetic engineering, eugenics and people with learning difficulties. Questions include: what is the place of people with learning difficulties in a society that values diversity?; what are the links between the abortion debates and debates on prevention of disability?; what is the potential impact of genetic technlogies on attitudes towards people with learning difficulties?.
Issues of informed consent in conducting medical research involving people with intellectual disability
- Authors:
- IACONO Teresa, MURRAY Vanessa
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 16(1), March 2003, pp.41-51.
- Publisher:
- Wiley
People with severe intellectual disability are considered vulnerable to exploitation in research. Discovery of exploitative practices in recent history has motivated the development of guidelines for informed consent and proxy decision-making procedures when involving these individuals in research. The complex process of involving in research people with severe intellectual disability who are particularly vulnerable by virtue of their institutionalized residential status is discussed within the context of a recent project into examining potential nutritional determinants of Pica behaviour (the eating of inedible items). This example serves to highlight the role of legislation, various government bodies and researchers in balancing principles of protection of vulnerable groups and rights to self-determination.
Spirituality and the lives of people with learning disabilities
- Author:
- SWINTON John
- Journal article citation:
- Tizard Learning Disability Review, 7(4), October 2002, pp.29-35.
- Publisher:
- Emerald
Reports on a project to explore some significant aspects of the 'forgotten dimension' of spirituality and to illustrate that available research evidence and the experiences of people with learning disabilities suggest it is an aspect of life which should be taken seriously. Offers some insights to enable service providers to begin to understand and incorporate spirituality into lives of people with learning disabilities.
Using values to change learning disability services: a context for the National Strategy
- Authors:
- ELIATAMBY Anna, HAMPTON Kerri
- Publisher:
- Office for Public Management
- Publication year:
- 2001
- Pagination:
- 35p.
- Place of publication:
- London
This monograph provides an understanding of what is required to manage change in services for people with learning difficulties. It provides an analysis of the new national strategy for learning disability and an introduction to strategic planning, and an explanation of the concept of building resilient communities to transform services for people with learning difficulties.
Ethics in quasi-experimental research on people with severe learning disabilities: dilemmas and compromises
- Authors:
- KELLETT Mary, NIND Melanie
- Journal article citation:
- British Journal of Learning Disabilities, 29(2), June 2001, pp.51-55.
- Publisher:
- Wiley
Examines the theme of research ethics focusing on the authors' quasi-experimental study evaluating the Intensive Interaction approach for pupils who are preverbal. Questions their own practice, and illustrates some of the dilemmas which they faced in their research and some of the compromises which they reached.
Use of multi-sensory rooms for children with profound and multiple learning disabilities
- Author:
- AYER S.
- Journal article citation:
- Journal of Learning Disabilities for Nursing Health and Social Care, 2(2), June 1998, pp.89-97.
This article explores the use of multi-sensory rooms (MSR) for children with profound and multiple learning disabilities (PMLD). Data were collected from teams of carers who use the MSRs as an additional facility to meet the needs of children with PMLD. Despite the obvious popularity of MSRs this study raises critical issues that need to be discussed. The need for rigorous research to assess and evaluate the impact of MSR on children with PMLD is highlighted.
Inclusion and autonomy for people with multiple and complex learning difficulties
- Authors:
- MERRILL Kirsten, BOYCE Peter
- Journal article citation:
- Applied Community Studies, 3(1), 1996, pp.77-91.
- Publisher:
- Whiting and Birch
For people such as those with severe learning difficulties who have had little or no involvement in decision making over their futures, learning to make decisions inevitably requires the time and resources afforded them by more able others. The Advocacy Movement has been hugely influential, though there is still a need for change in societal attitudes. This paper attempts to address issues relating to successful integration such as the availability of resources, ethical implications and the tension that can arise between the service users and professionals.
Learning disabilities: themes and perspectives
- Editors:
- MARKWICK Anne, PARRISH Anne
- Publisher:
- Butterworth-Heinemann
- Publication year:
- 2003
- Pagination:
- 206p.,bibliogs.
- Place of publication:
- London
This book provides a practical look at the way in which the care of those with learning disabilities is changing from an autocratic to a democratic approach, encouraging clients to become more responsible for their own treatment regimes. The book shows how the caring professions can have the client at the centre of their concerns whilst still complying with policy. The book discusses sensitive issues such as sexuality and spirituality, opening new avenues to enhanced care in difficult circumstances. It also looks at the implications for learning-disabled clients when directives from policy-makers have to be implemented.
Ethical approaches to physical interventions: responding to challenging behaviour in people with intellectual disabilities
- Editor:
- ALLEN David
- Publisher:
- British Institute of Learning Disabilities
- Publication year:
- 2002
- Pagination:
- 239p.,bibliogs.
- Place of publication:
- Kidderminster
This book, based on contributions from academics and practitioners in the UK and USA, is an overview of key developments and current best practice in the field. It includes and overview of current policies and practices, an examination of physical interventions and abusive practice, and a discussion of objectives for the immediate future. It is intended as a reference for commissioners, service providers and physical interventions trainers, as well as anyone concerned with improving our response to challenging behaviour.