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Day services for people with profound intellectual and multiple disabilities: an analysis of thematically organized activities
- Authors:
- PUTTEN Anette van der, VLASKAMP Carla
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 8(1), March 2011, pp.10-17.
- Publisher:
- Wiley
A recent idea to emerge in the Netherlands for improving the quality of activities provided for people with profound intellectual and multiple disabilities is to organise these activities of thematically, with activities offered in thematic rooms at a centre where clients spend the whole day. This in-depth study aimed to analyse the nature and duration of activities organised according to theme offered at a particular day service centre. The study focused on 23 adult attendees with profound intellectual and multiple disabilities. Information was collected on the number, type and length of activities offered and the duration of individual attention each attendee was given during activities. The study found that 63% of the activities were care-related activities (such as starting and finishing the day, waiting and resting), and that the other type of activities offered showed less variation than expected, with watching television or listening to music representing a substantial part of the programme and artistic and creative activities or playing and games offered less frequently. More time was spent giving attention to individuals than to the group when compared with non-thematic centres, but the percentage of individual attention provided was highest during care-related activities. The expected effects of using a thematically centred model, such as less waiting, more variety, and more individual attention, were only partially found, and the authors suggest that further research is required.
Neighbourhood social inclusion from the perspective of people with intellectual disabilities: Relevant themes identified with the use of photovoice
- Authors:
- OVERMARS‐MARX Tessa, THOMESE Fleur, MEININGER Herman
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 32(1), 2019, pp.82-93.
- Publisher:
- Wiley
Background: Earlier studies show that to gain more understanding of the concept of social inclusion, the views and experiences of people with intellectual disabilities are needed. The aim of this study was to investigate their perspective on neighbourhood social inclusion from an ecological point of view. Method: We carried out a photovoice study with 18 people with intellectual disabilities in three neighbourhoods in the Netherlands. Participants took photographs in their neighbourhood they considered relevant, and these photographs were discussed during an interview. Results: Six themes emerged from qualitative analysis: attractiveness of the neighbourhood, social contacts in the neighbourhood, activities in the neighbourhood, social roles in the neighbourhood, independence and public familiarity. Conclusions: As regards neighbourhood social inclusion, participants were often focused on small and informal activities and situations. Public familiarity proved very important. Framing the concept of neighbourhood social inclusion within an ecological approach may help to better understand processes of social inclusion. (Edited publisher abstract)
Does the severity of disability matter? the opinion of parents about professional support in residential facilities
- Authors:
- LUIJKX Jorien, BRUG A.Ten, VLASKAMP C.
- Journal article citation:
- Child: Care, Health and Development, 42(1), 2016, pp.8-15.
- Publisher:
- Wiley
Researchers have shown that the characteristics of a person with an intellectual disability (ID), in particular the severity of the disability, are related to the outcomes of professional support. Hardly any studies have asked parents and/or legal guardians for their own opinion about the quality of support given to their child/family member with ID. Therefore, this study examined the relationship between the severity of a person's disability and the opinions voiced by the parents and/or other legal guardians of that person concerning several aspects of the quality of support received in residential care. (Publisher abstract)
Do they agree? How parents and professionals perceive the support provided to persons with profound intellectual and multiple disabilities
- Authors:
- JANSEN Suzanne L.G., et al
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 43(4), 2018, pp.441-452.
- Publisher:
- Taylor and Francis
Background: The aim of this study was to explore agreements in the way parents of a person with profound intellectual and multiple disabilities and professionals perceive the support in terms of its family-centredness in order to gain a better understanding of their collaboration. Method: An adapted version of the Dutch Measure of Processes of Care was completed by 109 parents, and an adapted version of the Dutch Measure of Processes of Care for service providers was completed by 144 professionals. Agreements between parents and professionals were analysed using multilevel analysis. Results: In general, the parents and the professionals disagreed on occurrence and importance of both the Enabling and Partnership scale and the Respectful and Supportive Care scale. Conclusion: In order to deliver family-centred support, service providers should be aware that there are disagreements between the parents’ perception of what is important in the support provided and the perception of the professional. (Publisher abstract)
Emancipation and self-determination of people with learning disabilities and down-sizing institutional care
- Authors:
- LOON Van Jos, HOVE Van Geert
- Journal article citation:
- Disability and Society, 16(2), March 2001, pp.233-254.
- Publisher:
- Taylor and Francis
In Arduin, an organisation for services to people with learning disabilities in the Netherlands, the emancipation and self-determination of people with learning disabilities has been positively adopted as fundamental in order to secure the best possible quality of life of the clients. In this article the background and developments in perception are outlined, and those dimensions in quality of life are elaborated that are seen as most essential in the innovation: inclusion, self-determination and personal development. The choices that were made as a consequence in Arduin and most fundamental the choice to dismantle the institution are described.