Search results for ‘Subject term:"learning disabilities"’ Sort:
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Developing social care: service users' vision for adult support
- Authors:
- SOCIAL CARE INSTITUTE FOR EXCELLENCE, BERESFORD Peter, et al
- Publisher:
- Social Care Institute for Excellence
- Publication year:
- 2005
- Pagination:
- 61p.
- Place of publication:
- London
This report is based on the views of a very diverse range of social care service users – 112 in all – gathered from many different parts of the country. More than a quarter of the participants in this project were black or from minority ethnic communities. The study was almost entirely undertaken by service users and their organisations, drawing on their networks and experience at local and national levels in undertaking user-led research, evaluation and consultation. There was a remarkable degree of consistency and agreement in what different service users and service users from different parts of the country said. The report is organised in three parts: the first sets out how the consultation was undertaken; the second contains the views of service users generally; and the third reports the views of three specific groups of of people with learning difficulties to ensure that their comments have equal visibility.
Coronavirus and people with learning disabilities in England
- Author:
- LEARNING DISABILITIES ENGLAND
- Publisher:
- Learning Disabilities England
- Publication year:
- 2022
- Pagination:
- 11
- Place of publication:
- Birmingham
This briefing paper highlights the policy implications of the Covid-19 pandemic in England, drawing on the Coronavirus and People with Learning Disabilities Study and the experiences and reflections of people with learning disabilities, family members and those supporting people. The Coronavirus and People with Learning Disabilities Study directly interviewed (by video call or telephone) adults with mild/moderate learning disabilities at three time points over 12 months (Cohort 1). There was also an online survey at the same time points with family members or paid carers of people with severe/profound learning disabilities (Cohort 2). Findings for England are presented in this brief, but people’s experiences were similar across the UK. Specifically, this policy brief looks at impact in seven key areas, with recommendations for policy makers: employment and money; mental health and wellbeing; social care services; health and health services; digital inclusion; information; experiences of people with greater support needs. (Edited publisher abstract)
Resource allocation priorities in social care for adults with a learning disability: an analysis and comparison of different stakeholder perspectives
- Authors:
- DAVIES Sue, et al
- Journal article citation:
- Tizard Learning Disability Review, 20(4), 2015, pp.199-206.
- Publisher:
- Emerald
Purpose: How resources for social care are allocated to individual service users has long been a concern. There are debates regarding the priority given to certain needs in Resource Allocation Systems (RASs). The purpose of this paper is to compare the views of adults with a learning disability and Directors of Adult Social Care regarding their priorities for resource allocation with priorities arising from observed resource allocation decisions. Design/methodology/approach: In a consultation workshop, 12 adults with learning disabilities were asked to rank the perceived importance of eight needs-related outcomes. Directors of Adult Social Care completed an online questionnaire concerning the distribution of resources across the same eight outcomes. Actual resource allocation data from 11 local authorities were also modelled against these outcomes. A variable importance metric (the percentage contribution of each outcome to predicting costs) was used to rank the importance of these outcomes in terms of determining actual resource allocation. Findings from these data collections were compared. Findings: There were discrepancies between the views of adults with a learning disability, the perspectives of Directors and actual resource allocation data. Whereas adults with a learning disability perceived psychological well-being as most important, Directors and actual resource allocation data stressed the importance of activities of daily living and carer burden. Originality/value: This analysis will prove useful in understanding the concerns of adults with a learning disability and whether these are adequately addressed by current RASs. (Publisher abstract)
Assessment of an expert committee as a referral process within health and social services
- Authors:
- TREMBLAY Audree, MORIN Diane
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 12(3), 2015, pp.162-171.
- Publisher:
- Wiley
In Quebec, Canada, health and social services available to persons with intellectual disability are hierarchically organised into three levels of care: primary, secondary, and tertiary care. The referral processes through which persons gain access to services at each level vary across facilities. As a result, persons with intellectual disability may not receive the appropriate level of care and the responsibilities of facilities at each level overlap, creating an undue burden on the public healthcare system. This study sought to propose a structured assessment and referral method within the network of public services. Specifically, it evaluated the correspondence between the currently received level of care and an expert committee's determination. Furthermore, it examined client-related variables that were associated with the level of services. An expert committee evaluated the level of specialisation of services required by 30 persons with intellectual disability. The committee's determination was based on participants' files and presentations by their primary case worker. It was found that 10 out of the 30 participants were not receiving the level of care determined to be necessary by the expert committee. Challenging behaviours were most strongly associated with the committee's determination. This study underscores the primacy of clinical judgement, rather than a predetermined list of participant characteristics, in order to refer persons with intellectual disability toward services that best meet their specific needs. It also highlights the importance of taking into account challenging behaviours. (Edited publisher abstract)
Enabling people with support needs to set up social care enterprises
- Author:
- COMMUNITY CATALYSTS
- Publisher:
- Community Catalysts
- Publication year:
- 2011
- Pagination:
- 27p.
- Place of publication:
- Harrogate
This report describes a two and a half year project, located in Oldham, Greater Manchester, to design and test a business model to support people with care and support needs wishing to set up or sustain a social care enterprise. The aim was to enable people with care and support needs to use their assets and experiences to run social care enterprises, and to provide people who use services with more choice and the opportunity to be supported by organisations run by people who themselves use services. The co-ordinator for the project started work at the beginning of July 2009, initially refining the focus of the project and identifying other organisations doing linked or relevant work. Over the period of the project the co-ordinator worked with 19 existing, developing or potential micro-enterprises in the Oldham area, providing active support to 16 of the micro-entrepreneurs. A number of key barriers and issues facing people who need support who wish to set up a social care enterprise are discussed. To overcome these barriers there is a need to set up a different and more intensive way of working. Recommendations for a strategy to address these issues and barriers, both locally and nationally, are provided.
Projections of demand for social care and disability benefits for younger adults in England: report of research conducted for the Commission on Funding of Care and Support
- Authors:
- SNELL Tom, et al
- Publisher:
- Personal Social Services Research Unit
- Publication year:
- 2011
- Pagination:
- 17p.
- Place of publication:
- Canterbury
Using an adapted version of a projections model for younger adults developed by the Personal Social Services Research Unit (PSSRU), this paper provides projections of demand and future public expenditure for social care and disability benefits for younger adults (aged 18 to 64) in England to 2030. Projections are broken down in the categories of: people with learning disabilities; people with physical or sensory impairments; other groups (such as people with mental health problems) combined. The paper describes the various data used in the modelling; presents a set of base case assumptions: presents the projections obtained using those assumptions: and investigates the sensitivity of the projections to changes in those assumptions. A final section sets out some conclusions.
Selling individual budgets, choice and control: local and global influences on UK social care policy for people with learning difficulties
- Authors:
- BOXALL Kathy, DOWSON Steve, BERESFORD Peter
- Journal article citation:
- Policy and Politics, 37(4), October 2009, pp.499-515.
- Publisher:
- Policy Press
The authors of this article examine the influence of a range of national and international actors and networks on UK learning disability policy over the last 30 years, with particular focus on the policy shift towards individualised support and personalisation. Policy changes and developments within the UK are considered in the context of similar developments internationally and the extent to which personalisation can be sustained in the face of the scale and economic rationality of global markets is questioned. The article covers moves from institution to community, the Valuing People white paper and Valuing People Now consultation document and person-centred planning, direct payments and individual budgets, the personalisation of social care, people with learning difficulties and the disabled people's movement, the origins of direct payments policy in North America, marketing individual budgets, and key actors and agendas in the UK. The authors conclude that robust systems of accountability need to be developed that offer protection for users of individual budgets, including moving funding and service brokerage elements from local councils to local organisations, funding service user organisations to offer support and advocacy to users, and allocating funding to organisations of service users to enable them to develop links with service user groups beyond the UK.