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Doing it your way: the story of self-directed support in Worcestershire
- Authors:
- PITTS Jenny, SOAVE Vivien, WATERS John
- Publisher:
- Worcestershire County Council. Social. Learning Disability Service
- Publication year:
- 2008
- Pagination:
- 15p.
- Place of publication:
- Worcester
The 'Doing it your Way' partnership, made up of Worcestershire's Learning Disability Service, the British Institute of Learning Disabilities and Mencap, was set up to provide independent advice and guidance to help local people in Worcestershire make best use of their personal budgets. This report presents an evaluation of the service and the impact of personal budgets on how people were able to live their lives. Short case studies of people using personal budgets are included.
A positive approach to risk: safeguarding through personalisation
- Author:
- CLOSE Louise
- Journal article citation:
- Community Connecting, 20, May 2009, pp.8-13.
- Publisher:
- Community Connecting
A common concern in relation to the personalisation agenda is that employing personal assistants as part of self-directed support will leave people with learning disabilities more open to abuse. In this article the author explores counter arguments to explain how, when people are truly enabled to self direct their support, and when that support is delivered in a truly person centred way, those people are at less risk of abuse than they are under the current system of care management. The author draws on the Keys to Citizenship model and provides six potential points at which to check for safeguarding and risk issues.
“It's like two roles we're playing”: parent perspectives on navigating self‐directed service programs with adult children with intellectual and/or developmental disabilities
- Authors:
- BROWN Melissa, et al
- Journal article citation:
- Journal of Policy and Practice in Intellectual Disabilities, 15(4), 2018, pp.350-358.
- Publisher:
- Wiley
Publicly funded self‐directed budgets for purchasing community‐based long‐term services and supports for people with intellectual and/or developmental disabilities (IDD) have become a wide‐spread service model in the United States and internationally. The current study aims to understand parents' experiences in navigating self‐directed support programmes with their adult child with IDD. The authors utilised qualitative content analysis of interviews with 26 parents of adult children with IDD enrolled in self‐directed budget programmes in five U.S. states. Twenty‐four parents reported numerous programmatic barriers to person‐centred supports falling within three thematic areas: administrative issues, budgeting challenges, and inadequate supports. Parents of adult children with IDD value self‐directed supports, although programmes cannot cover all possible independent living needs due to a number of factors, including unavailability of desired supports, programme rules, or budget limitations. As practices vary by programme, the author's research suggests approaches from different programmes that families may find helpful. (Edited publisher abstract)
Personal budgets: whose money is it?
- Author:
- DUFFY Simon
- Journal article citation:
- Community Living, 25(4), Summer 2012, pp.18-19.
- Publisher:
- Hexagon Publishing
The focus of this article is direct payments, personalisation, and self-directed support for disabled people. The article argues that there were major problems with direct payments for people with learning difficulties and that self-directed support was designed to tackle these problems and create a new system for social care. It describes the work of a project called In Control from 2003 to 2009 in challenging previous practice and proposing new ways of using personal budgets, and reports that despite some improvements there are still considerable problems. The author asserts that personal budgets should belong to disabled people and their families but that there are often barriers to how they can use them, and argues that campaigning is needed to ensure further progress.
Our escape from 'serviceland'
- Author:
- TOMLINSON Caroline
- Journal article citation:
- Learning Disability Today, June 2008, pp.30-32.
- Publisher:
- Pavilion
- Place of publication:
- Hove
A mother discusses her experience of a self-directed support pilot, and explains how it transformed her sons live.
In control
- Author:
- DUFFY Simon
- Journal article citation:
- Llais, 80, Summer 2006, pp.9-13.
- Publisher:
- Learning Disability Wales
In Control has been working to change the current system for social care into a system of self-directed support. This has led to great interest in its idea of Individual Budgets and how they can be used to help all disabled people to get control of their own support and achieve better lives for themselves. This article explains the concept of self-directed support and looks at In Control's model.
I have the power
- Author:
- VALIOS Natalie
- Journal article citation:
- Community Care, 16.03.06, 2006, pp.32-33.
- Publisher:
- Reed Business Information
The author reports on 'In Control', which provides self-directed support for people with learning difficulties, whilst seeing the social care system from the perspective of the service user. Users are told their annual funding entitlement so they have the information to devise their own support plan. The article includes details of how 'In Control' made an impact on one service users life.
Delivering personal budgets for adult social care: reflections from Essex
- Author:
- OFFICE FOR PUBLIC MANAGEMENT
- Publisher:
- Office for Public Management
- Publication year:
- 2010
- Pagination:
- 9p.
- Place of publication:
- London
Essex County Council (ECC) has commissioned a three year study to investigate the impact of personal budgets taken as cash payments by older and disabled people and their families. This paper reflects on some of the issues raised through face-to-face interviews, conducted between November 2009 and January 2010, with 46 older and/or disabled people who were receiving cash payments and/or interviews with their relatives. In addition four interviews were conducted with older service users whose personal budgets were being managed by the council. The majority had only been receiving cash payments for a couple of months at the time of interview. Generally service users reported positive outcomes. The predictors of take-up of self-managed budgets appeared to be the confidence of service users, based on their own sense of rights, their skills and support available from close relatives and wider social networks. For older service users and those with learning disabilities family members often played a central role in making the initial decision about whether to opt for cash payments. Findings suggested that frontline staff may be making implicit assumptions about which service users are capable of managing cash payments which may influence what choices, if any, are offered. A lack of clarity was found about what is meant by ‘choice and control’ leading to open interpretation by individual frontline staff. The importance of ensuring frontline staff are clear about choice and control and confident in explaining the principles underpinning self-directed support is stressed.