Search results for ‘Subject term:"learning disabilities"’ Sort:
Results 1 - 10 of 10
About dementia: for people with learning disabilities
- Authors:
- DODD Karen, TURK Vicky, CHRISTMAS Michelle
- Publisher:
- British Institute of Learning Disabilities
- Publication year:
- 2005
- Pagination:
- 12p.
- Place of publication:
- Kidderminster
Easy-to-read booklet for people with learning disabilities who want to understand dementia. It will be particularly helpful for people who have a friend or family member with dementia, or who are worried about developing dementia themselves. This booklet is designed to help more able people with learning disabilities who want to understand and talk about dementia.
The journey of life: how people change from babies to older people
- Authors:
- DODD Karen, TURK Vicky, CHRISTMAS Michelle
- Publisher:
- British Institute of Learning Disabilities
- Publication year:
- 2005
- Pagination:
- 15p.
- Place of publication:
- Kidderminster
Easy-to-read booklet for people with learning disabilities who want to understand dementia. It will be particularly helpful for people who have a friend or family member with dementia, or who are worried about developing dementia themselves. This booklet will be useful for helping people with learning disabilities understand the human life cycle.
About my friend: for friends of people with Down's Syndrome and dementia
- Authors:
- DODD Karen, TURK Vicky, CHRISTMAS Michelle
- Publisher:
- British Institute of Learning Disabilities
- Publication year:
- 2005
- Pagination:
- 15p.
- Place of publication:
- Kidderminster
Easy-to-read booklet for people with learning disabilities who want to understand dementia. It will be particularly helpful for people who have a friend or family member with dementia, or who are worried about developing dementia themselves. This booklet looks at what happens when a friend develops dementia.
A synthesis of the evidence on peer research with potentially vulnerable adults: how this relates to dementia
- Authors:
- DI LORITO Claudio, et al
- Journal article citation:
- International Journal of Geriatric Psychiatry, 32(1), 2017, pp.58-67.
- Publisher:
- Wiley
Background: This study aims to identify the benefits, the risks and the practical challenges and to develop a model of good practice in peer research with people with dementia. Methods: The review conducted searches on PsycInfo, PubMed and Google Scholar for empirical investigations or discussion papers on peer research. Given the limited literature in the field of dementia, studies with groups who share similar demographics (older people), experience of stigma (mental health service users) and exclusion from research (people with learning disabilities) were included. No restrictions on language and publication date were applied. Analysis: Three themes were identified: the potential benefits, the potential risks and the practical challenges of peer research. The authors the developed a model of good practice. The European Working Group of People with Dementia reviewed the authors' paper and added to the findings. Results: Seven papers were included in the evidence synthesis. Potential benefits of peer research included enriched data and empowering people with dementia. Potential risks included power differentials between researchers and issues of representativeness. The practical issues for good practice included the training of peer researchers, defining involvement and roles, working with cognitive impairment and considering resource implications. The European Working Group of People with Dementia emphasised the importance of equality issues. Conclusion: Involving people with dementia in peer research can generate several benefits, including empowerment and opportunities for inclusion for the peer researchers and the research participants living with dementia, challenging academics' traditional views on research processes and gathering enhanced research data. There remains a need for further research on the impact of peer research in dementia studies. (Edited publisher abstract)
Making reasonable adjusments to dementia services for people with learning disabilities
- Authors:
- KENNEY Amanda, IMPROVING HEALTH AND LIVES: LEARNING DISABILITIES OBSERVATORY
- Publisher:
- Improving Health and Lives: Learning Disabilities Observatory
- Publication year:
- 2013
- Pagination:
- 25
- Place of publication:
- London
'Making reasonable adjusments to dementia services for people with learning disabilities' is part of a series of reports produced by IHaL which focus on reasonable adjustments to mainstream services, so that they meet the needs of people with learning disabilities. The report is a provides sources of evidence, research, policy and guidance, resources, and case studies and good practice examples. It can be used by people with learning disabilities (there is an easy read summary at the start of the report), carers, commissioners, providers, public health leads, and advocacy services, to improve dementia services for people with learning disabilities. (Edited publisher abstract)
'They don't quite fit the way we organise our services': results from a UK field study of marginalised groups and dementia care
- Authors:
- BEATTIE Angela, et al
- Journal article citation:
- Disability and Society, 20(1), January 2005, pp.67-80.
- Publisher:
- Taylor and Francis
The accessibility of dementia services to two groups of marginalised service users (people under 65 years of age and people from minority ethnic groups) was examined as part of a UK field study. In 61 interviews with a purposeful sample of professionals and paid carers in dementia care, the main issue in service access related to the small numbers of potential service users and their geographical dispersal. Other issues reflected those faced by people with dementia in general. At present, it seems as though decisions on care are based mainly on financial considerations and perceptions of the risk and dangerousness posed by people with dementia. These findings are linked to broader debates within the social model of disability about the need to address issues relating to people with learning impairments.
Eliciting user perspectives on what works
- Authors:
- STALKER Kirsten, GILLIARD Jane, DOWNS Murna G.
- Journal article citation:
- International Journal of Geriatric Psychiatry, 14(2), February 1999, pp.120-134.
- Publisher:
- Wiley
This article considers how research with people with learning difficulties has developed a culture for hearing the views of service users. It outlines various methodologies, with considerations of their strengths and weaknesses. Then reviews the research in dementia care which features the subjective experience, and finally draws out lessons and identifies possible ways forward.
Co-producing support for people with long-term health conditions: evaluation of an NHS East of England co-production programme
- Author:
- NATIONAL DEVELOPMENT TEAM FOR INCLUSION
- Publisher:
- National Development Team for Inclusion
- Publication year:
- 2016
- Pagination:
- 42
- Place of publication:
- Bath
Shares the knowledge and experience from an evaluation of six NHS sites in the East of England Strategic Clinical Network region which adopted co-production to develop support for long-term health conditions such as progressive neurological disease, mental health and learning disabilities. The evaluation findings are reported in three sections. Section one looks at how the projects worked in co-production, the challenges they faced, the lessons they learned and the outcomes achieved around working in co-production. Section two reports on the activities and progress made towards to achieving an improved service outcome for people using services. Section three discusses the wider impact of the projects in local areas going forward. The sites all faced challenges in implementing co-production, These included the process being more time-consuming than anticipated; more resource intensive; and difficulties in achieving equal partnerships due to well-established power relationships. However, early evidence suggests that alternative approaches to service delivery are developing that should lead to outcome and cost-effective benefits in the future. In addition the projects have identified an increased understanding between services and people who use services and benefits for those involved including development of skill levels and work competencies. The report identifies eight lessons for those trying to implement co-production strategies within the health sector. (Edited publisher abstract)
Support workers’ mental health knowledge and confidence in relation to exposure, experience, work setting and training
- Authors:
- KILANSKA Ann, PRIEST Helena M.
- Journal article citation:
- Advances in Mental Health and Intellectual Disabilities, 8(4), 2014, pp.260-267.
- Publisher:
- Emerald
Purpose: In the context of improved UK training programmes, this paper explores the factors that can predict support workers’ knowledge and confidence in recognising mental health problems in service users with intellectual disabilities. Design/methodology/approach: In total, 80 support workers (40 residential and 40 community-based) completed a questionnaire about their length of work experience, exposure to service users with additional mental health needs, training, general and specific mental health knowledge, and confidence in working with mental health issues. It was hypothesised that length of work experience, extent of training, and level of exposure would predict knowledge about mental health problems, and also predict confidence in working with people with mental health problems. It was further predicted that residential support workers would be more knowledgeable and confident than community workers. Findings: Results showed that level of exposure could predict knowledge about schizophrenia, but not about depression, anxiety, or dementia, while length of experience could predict overall mental health knowledge and confidence. Extent of training could only predict knowledge about anxiety, and work setting (residential or community) had no effect to on knowledge or confidence. Implications for practice and training are discussed. (Edited publisher abstract)
Rights, needs and the user perspective: a review of the National Health Service and Community Care Act 1990
- Editors:
- BALLOCH Sue, et al
- Publisher:
- National Institute for Social Work
- Publication year:
- 1999
- Pagination:
- 105p.,bibliogs.
- Place of publication:
- London
Review looking at the diverse and sometimes contradictory perspectives and experiences of a wide range of stakeholders in community care services. Aims to record what they think has really been taking place. Contains chapters on: key issues; identifying need; users' perspectives; the perspective of black communities; older people; older people with dementia and their carers; people with learning difficulties; rationing, charging and costs; housing and community care; community care and substance misuse; and social services departments and their staff.